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Someone please help!!!!-lost and confused Someone please help!!!!-lost and confused

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Unread 03-27-2009, 08:58 PM
Someone please help!!!!-lost and confused

Hello Ladies,
My day of going to the castle is getting near and the closer it gets the more questions I have. I thought it would be the other way around. My surgery is going to be on the 1st of April--the pain associated with my periods and ovulation have reached an all time high. Over the last couple of months they have progressively gotten worse--and this month I actually had to start taking Vicoden to control my ovulation pain. My period is not suppost to start until Monday and already my cramps and low back ache is worse than that of my period in the past. I have 3 small children (6, 4 and 3) and taking Vicoden to control the pain is not a feasible option on a montly basis. My kids don't know who Mommy is anymore. My Dr. has given me the option of taking my ovaries. He has left that completely up to me. With the pain worseing and the PMS getting worse and feeling like the "exorcist" I am really wanting him to take everything--BUT I am scared. I know the pain will be gone--which is the worst, but what about the menopause and those symptoms. I am not opposed to taking estrogen. A week ago I had made up my mind to have him take everything. But now that the pain is tolerable I have second thoughts. I dont think the pain is going to get better. I am lost--- not knowing which way to turn. My husband is supportive but will not give me input in any way. "Whatever you decide is fine with me, I will be here to support you through". Greatful for the support but thanks anyways for the lack of input. SOMEONE PLEASE HELP!!!!!!
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Unread 03-27-2009, 09:18 PM
Re: Someone please help!!!!-lost and confused

It really is a matter of personal choice, based on the type of pain that you have. I don't know what your diagnoses for your surgery are, so it's hard to say if taking/leaving your ovaries would help alleviate your pain. For me, the pain is localized in my uterus, so I am keeping my ovaries. I understand that they still produce hormones and can still cause pain elsewhere, but since the uterus is where 99.9% of my pain originates, I am keeping my ovaries.

Where is your pain? And what has your doctor advised?
Unread 03-27-2009, 09:29 PM
Re: Someone please help!!!!-lost and confused

Up until the last few months my pain was localized to my uterus and low back. Now its the complete pelvic area. I can feel myself ovulate and the pain is now getting to the point where it never really goes away, with either the uterus or to the left lower quadrant, and not as bad to the right lower quad. My initial reason for the hysterectomy is due to fibroids and very heavy, painful periods with large clots.
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Unread 03-27-2009, 09:30 PM
Re: Someone please help!!!!-lost and confused

Deb, I think you've answered your own question. You've written that you have pain with ovulation. If you keep your ovaries, you're still going to ovulate. Menopause isn't that bad. I gladly traded my ovaries, uterus and everything else to get rid of pain, poorly controlled bleeding and a whole host of other issues.

I can't take HRT due to a blood clotting disorder, but we've come up with other solutions to alleviate most of the hot flashes.

I know you're considerably younger than I am (I'm 57), but I decided I wanted to be totally pain free.

We each have to decide for ourselves, but weigh your pros and cons about pain control, etc.

Best of luck.
Unread 03-27-2009, 09:48 PM
Re: Someone please help!!!!-lost and confused

Deb, I know April 1 is getting close, but you still have questions. I felt that way too. I wrote the questions down and called my doctor. She answered questions several times over the phone as I continually came up with some. For peace of mind, you want to be absolutely sure as you go into surgery. I even had questions for my doc as I was in the pre-op area! But, when I went in, all of my questions were answered and I felt at ease.

Your DH seems to be wanting you to make the decision for yourself. I admire that -- it is your body. My DH gave his input -- yet after surgery, he needed to hear from the doctor if the decision was the right one. I think he felt guilty when it was said and done.

I hope you get all of your questions/concerns answered and feel positive about your decision for surgery. Take care,
Unread 03-27-2009, 10:47 PM
Re: Someone please help!!!!-lost and confused

I made an agreement with my doctor that she would look at them during surgery and make the decision if they were healthy enough to keep.

It turned out that my left ovary was enlarged and needed to be removed and my right ovary was healthy enough to keep. This was the best decision for me and I was willing to live with the idea of not having my ovaries. I personally did not want to deal with anymore pain.

The down side to doing it this way is you won't know the outcome until after surgery.

Good luck in your journey and I know in the end you will make the best decision for you!
Unread 03-28-2009, 09:44 AM
Re: Someone please help!!!!-lost and confused

Hi Deb

You may want to take a look at our Pre-Op Resources page. There are a couple articles there on keeping ovaries that you might find helpful in making your decision. What has your doctor recommended? It's generally a good idea to keep healthy ovaries, and it's important to get your doctor's insight on whether yours are healthy. If you keep them for now, you can always have them removed later--but once they're removed they can't be put back.

There are so many decisions and preparations to make with this surgery. I wish you with this one.


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