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Adenocarcinoma In Situ and LAVH Adenocarcinoma In Situ and LAVH

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Unread 05-21-2009, 08:20 PM
Adenocarcinoma In Situ and LAVH

I'm so thankful I found this board. I've gotten a lot of great info and support on the PreOp board, but haven't come across anyone else in my same situation.

I was diagnosed with Adenocarcinoma in Situ about 8 years ago at age 32. I had a cone biopsy for treatment and thank God the margins came back clean. Clean paps every 3 months since then. The oncologist told me I needed to have a total hysterectomey when I was "done having children".

Well, I just married at age 40 and we're childless by choice. I've decided to have this ticking time bomb removed for peace of mind, yet I struggle because it's been "quiet" for so long.

I trust my doctors fully and they explained because of the types of cells and how sneaky they can be versus squamous, the risk of recurrence is present even now.

I know I'm doing the right thing but since I "feel" fine, I'm concerned about possible complications/long-term impacts of my decision. Has anyone else had a hysterectomy years after Adenocarcinoma in situ has been "quiet"?
Thank you sisters,
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Unread 05-21-2009, 10:42 PM
Re: Adenocarcinoma In Situ and LAVH

I had an LAVH last June for adenocarcinoma Ia1. I was fortunate that it was found so early. My only treatment was the hyst. I feel blessed.

I don't know how long I had the glandular problems. As soon as we found out I had glandular problems I had the cold knife cone biopsy (one week after being told I had AIS) and I had the hyst 2 months after the AdCA diagnosis.

I know that some doctors treat AIS and AdCA conservatively. Personally, I wanted it all out of me.

Hubby and I never had children. Partially by choice, partially by chance.

I am pleased with my gyn/onc, my hyst choice, and my recovery from the hyst. If you have any questions, please ask.
Unread 05-26-2009, 09:26 AM
Re: Adenocarcinoma In Situ and LAVH

Hi fellow AIS sister-

I just had my TAH on May 11th, 2009. I found out that I had AIS last April after a LEEP. Never having an abnormal pap in my life, so it came as a small shock. I meant with the oncologist this year after getting our health insurance back and my normal OB/GYN doctor not wanting to treat me since AIS can be aggressive. He suggested that we see an oncologist, so that is what we did. After many more biopsy's of the cervix and uterus and the fact that my family is complete the oncologist suggested that I have the TAH. After his explanation of how hard it was going to be to "watch" it I felt it was the best decision. The best advice I could give you is make sure you have a great oncologist. Mine is wonderful and so are his nurses. He will take all day with me if I had that many questions, unbelievable bedside manner. Ask all the questions and find peace in that choice. I would do it all over again, the TAH. I would not want to mess around with the Adenocarcinoma from the stories I have read. Just my personal feelings. I know I made the right choice for me.
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Unread 05-28-2009, 01:34 PM
Re: Adenocarcinoma In Situ and LAVH

I have a friend whom I've just reconnected with and she had/has AIS. She had it originally just like us in the cervical canal and had radical hysterectomy. She had multiple surgeries, chemo and radiation. She had been going back every 3 mos and then 6mos for scans and now after 5 years of being clean now has AIS in her lungs. She has had several resections and said that the AIS is very sneaky in that they hide or are so small as to be unseen and then will start to re-emerge. I am sorry I asked but in the same token I think I'd rather be made aware of all the chances although her situation may be on the extreme side of the scale. Still I wouldn't want to be blind sided in not knowing what could potentially happen.

I think we all or will make the right decision to preserve ourselves as best we can.

Unread 05-29-2009, 04:40 PM
Re: Adenocarcinoma In Situ and LAVH

droc -

Thanks for that information. I will be talking to my doctor about that when I see him again in 4 weeks.

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