Question about adenomyosis

If no adeno is found on an transvag u/s does that mean you don't have it?

My Dr. suspected Adenomyosis. It did not show up on the abd. or vag. ultrasound. I had LSH for my painful fibroid. The pathology on my uterus came back adenomyosis.

LSH kept ovaries
age 51

Nothing showed up on my transvag ultrasound. I was in severe constant pain and then had to beg for a laparoscopy. I then had a hysterectomy BSO. My pathology showed severe adenomyosis and numerous other probems including endometriosis. Adeno is insidious. I had never heard about it but it caused pain like labor pains, heavy bleeding and clotting, lower back pain, etc. My doctor was certain I had nothing wrong with me before my hysterectomy. I don't know why they can't detect adeno earlier.

Even though my adeno. showed up on U/S, two docs. said that it was my depression causing the pain. Doc. number 3 couldn't believe it.
Get another opinion, then another, till you feel confident in your diagnosis.

adeno is only 100% diagnosed during pathology after the uterus is removed. as far as i know, there is no test beforehand that can tell you that you definitely have it. everything else has to be ruled out as a cause of the problems and usually you have a hysterectomy for suspected adeno. from what ive read here, when its suspected, it seems most people do have it, but there have been a few who didnt.

I have been told that my uterus looks like it has adenomyosis.. now is that something that goes away once the uterus is gone?
Barb

Hi doulaamber

Adenomyosis doesn't necessarily show up on an ultrasound. When I was tested for it a couple years ago, I had a pelvic MRI that I was told would be more likely to show it if it was there (it wasn't).

I would ask for additional tests to help determine what is best.

What kind of tests can I ask for?

My adeno now shows up clearly on an ultrasound. They can also do it via MRI. Possibly, depending on how extensive it is.

My dr suspected it but nothing was confirmed until the path report came back after surgery.