Question about adenomyosis | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Support Posts > Preparing for Hysterectomy (pre hysterectomy) is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators. is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

Question about adenomyosis Question about adenomyosis

Thread Tools
Unread 05-24-2009, 11:32 AM
Question about adenomyosis

If no adeno is found on an transvag u/s does that mean you don't have it?
Sponsored Links
Unread 05-24-2009, 12:04 PM
Re: Question about adenomyosis

My Dr. suspected Adenomyosis. It did not show up on the abd. or vag. ultrasound. I had LSH for my painful fibroid. The pathology on my uterus came back adenomyosis.

LSH kept ovaries
age 51
Unread 05-24-2009, 12:15 PM
Re: Question about adenomyosis

Nothing showed up on my transvag ultrasound. I was in severe constant pain and then had to beg for a laparoscopy. I then had a hysterectomy BSO. My pathology showed severe adenomyosis and numerous other probems including endometriosis. Adeno is insidious. I had never heard about it but it caused pain like labor pains, heavy bleeding and clotting, lower back pain, etc. My doctor was certain I had nothing wrong with me before my hysterectomy. I don't know why they can't detect adeno earlier.
Sponsored Links
Unread 05-24-2009, 12:33 PM
Re: Question about adenomyosis

Even though my adeno. showed up on U/S, two docs. said that it was my depression causing the pain. Doc. number 3 couldn't believe it.
Get another opinion, then another, till you feel confident in your diagnosis.
Unread 05-24-2009, 01:41 PM
Re: Question about adenomyosis

adeno is only 100% diagnosed during pathology after the uterus is removed. as far as i know, there is no test beforehand that can tell you that you definitely have it. everything else has to be ruled out as a cause of the problems and usually you have a hysterectomy for suspected adeno. from what ive read here, when its suspected, it seems most people do have it, but there have been a few who didnt.
Unread 05-24-2009, 04:12 PM
Re: Question about adenomyosis

I have been told that my uterus looks like it has adenomyosis.. now is that something that goes away once the uterus is gone?
Unread 05-24-2009, 05:12 PM
Re: Question about adenomyosis

Hi doulaamber

Adenomyosis doesn't necessarily show up on an ultrasound. When I was tested for it a couple years ago, I had a pelvic MRI that I was told would be more likely to show it if it was there (it wasn't).

I would ask for additional tests to help determine what is best.

Unread 05-24-2009, 05:37 PM
Re: Question about adenomyosis

What kind of tests can I ask for?
Unread 05-24-2009, 05:37 PM
Re: Question about adenomyosis

My adeno now shows up clearly on an ultrasound. They can also do it via MRI. Possibly, depending on how extensive it is.
Unread 05-25-2009, 12:24 AM
Re: Question about adenomyosis

My dr suspected it but nothing was confirmed until the path report came back after surgery.

Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
2 Replies, Last Reply 01-13-2010, Started By kelushia
12 Replies, Last Reply 01-08-2009, Started By stosh9191
1 Reply, Last Reply 12-18-2008, Started By hope09
41 Replies, Last Reply 11-24-2008, Started By stosh9191
8 Replies, Last Reply 07-21-2008, Started By kat17046
12 Replies, Last Reply 09-26-2007, Started By Tired X4
2 Replies, Last Reply 04-17-2007, Started By quailene
3 Replies, Last Reply 02-05-2007, Started By tracywag
5 Replies, Last Reply 04-20-2006, Started By tbri_4ever
10 Replies, Last Reply 06-17-2005, Started By Roo456
6 Replies, Last Reply 07-04-2004, Started By MistyEyes
10 Replies, Last Reply 06-07-2001, Started By Laurasc
1 Reply, Hysterectomy Recovery (post hysterectomy)
2 Replies, Hysterectomy Options and Alternatives
2 Replies, Hysterectomy Recovery (post hysterectomy)
6 Replies, Hysterectomy Options and Alternatives
2 Replies, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Recovery (post hysterectomy)
4 Replies, Hysterectomy Recovery (post hysterectomy)
3 Replies, Hysterectomy Options and Alternatives


Hysterectomy News

April 18,2021


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!