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I Have returned! I Have returned!

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  #1  
Unread 09-04-2001, 06:49 PM
I Have returned!

I just absolutely hate this I am even more frustrated then ever! It is almost like I have to start all over again. Dr. checked my surgical site from the LEEP said it looked great and I could have sex. Ha Ha Ha well I told him that my appointment was put off so many times that I had all ready done the deed! He said Good Girl! The man drives me mad! We continued to talk about the prognosis and what I wanted to do. I told him I wanted the aliens gone they do not belong there. He said ok but what if we got everything, I said what if you didnt??? My second or third reading on the slides have not come back yet, so he allowed me to sign the consent forms, had to tell me all the bad stuff that could happen that I could die of cancer elsewhere in my body, that I would no longer have a period (like I would miss that) He said we could do the cold cone and follow up with that. Who in the world wants to go through that with the thoughts that more surgery may have to come! He is well aware of my family history, so he wants me to go to the GYN Oncologist first. He says he has to have a back up. Whats up with this??? Ok I understand that the 's have to cover their rear ends, but isnt this my decision??? Not theirs or the Insurance companies??? Now I am more confused than ever and I suppose the nightmares will continue. Guess I should really take charge huh? Show them some girly :muscle: ! Ok so has anyone had to go through all this??? Argggg! and a double squeeze to all.
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  #2  
Unread 09-04-2001, 07:34 PM
I Have returned!

Hi Terri,

Although our situations are a bit different, I did consult with a Gyn Oncologist prior to my surgery. He then became my surgeon as well with my regular Gyn assisting. I know its must be very frustrating for you to have to jump through all these hoops but they do need to make sure they do whatever is best for you.

The Gyn Oncologist is probably the best Dr you can talk to. Since this is their specialty, they will be able to accurately assess your situation. I know if yours is anything like mine was, once any decisions were made, it all moved very quickly.

I wish you the best of luck on your upcoming appt, I hope all turns out well for you. Please let us know when you hear. I hope in the meantime the nightmares will calm down. Did you happen to mention this trouble to your Dr? maybe they can help you get this under control.

Take care and many prayers coming your way.

{{hugs}}

Vicki
  #3  
Unread 09-04-2001, 07:35 PM
I Have returned!

Hi Terri!!

Its rough when you leave the doctors office with more questions than you had going in isn't it? It seems to happen to all of us.

I will tell you this though....I think you have a very smart doctor there if he wants to consult with the gyn/oncologist. They are the specialists, and they know their stuff, so I think that is a good thing myself.

As for him wanting a "backup"....my take on that is that probably he doesnt' want to put you though one procedure first and then feel he should call in the oncologist. This way you consult with the onc. first, and then between the two of them they decide the best route to take.

Just my thoughts on this.
Hang in there girl! I really think you have a very thorough, good doctor there!!
Keep us posted!
Hugs,
Maria
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  #4  
Unread 09-05-2001, 12:05 AM
I Have returned!

Gee Terri, you must feel like :hair: It sounds like your DR wants to give you all the information and options. I suppose this is a good thing but it can be very frustrating, its like you are in limbo for the time being. :eyes: I didnt have a gyn/onc when I had my hyster , my gyno thought he could handle it all himself. He tore my cervix during the op and left some abnormal tissue there. Hence the progression to cancer. SO....... it looks like this is a good thing ..... so just hang in there ( hang around here too) and it will be all over eventually. We are here for you always x x
  #5  
Unread 09-05-2001, 02:18 AM
After sleeping on it ( Ha Ha Ha )

Sisters you mean so much to me you really do. Thank you! Last night's nightmares was a dance contest I was participating in and the Aliens came in a ruined it all! Now I know what that was all about. Anyway, My mom would like me to talk to her Oncologist, she is an awesome lady, she did my Moms surgerys, Uterine and Breast Cancer. You see that the family history is there, everyone in my family has died from cancer. I knew that my doc was very good and does not like to leave stones unturned, thats the good thing. We had a conversation about the slides, dh to be seems to think that all the readings were wrong, they are still out there waiting to be read by another pathologist. I asked doc about how many times in his experience were the labs wrong, he said never, the post testings were the same as the initial testing. He wanted to know why I had chose to send them out again, I guess it was more pressure from dh to be and his family. Doc told me, well have them pay for it, I dont care about them I care about you. What a sweetie! I think that I will also talk with my Primary Doc as well. He is pretty cool too. So now do I go see both Oncologists and get their take on everything, just see the one that Gyno wants me to see. This is way to much pressure. Do I just forget about the whole thing. I have like fallen into this huge depression. I really dont know how much more I can take.
Robyn, you see what happened to you are my thoughts "what if" "what if" then there is more of this and more of that. My thoughts are go straight for the heart of the matter. And yes I am in the biggest of my brain is buzzing, I just want to go back to bed and wait to wake up from yet another nightmare. So on that note, I am going to get into the shower and try to get rid of the KY smell. I love you all.
  #6  
Unread 09-05-2001, 04:44 AM
I Have returned!

Hi Terri, just wanted to send some 's your way too. I've been reading your posts and you really have been through a lot.

I wanted to respond in regards to the ONC GYN. I had an abnormal PAP, followed by colposcopy, with a LEEP procedure after that which showed squamous cell carcinoma and the margins were not clear on my path report. At this point, my GYN (whom I really like) recommeded me to see a GYN ONC. She felt that the ONC GYN was a specialist in this area and she wanted me to have the best possible care.

It was really scary for me to see the ONC GYN, especially when I got to the office for the first time with a big sign posted outside CANCER CENTER...I guess it really hit home for me then. Well, the ONC GYN did my surgery and I have been having my f/u appts with him. But, my GYN visited me in the hospital, which really meant a lot to me. I haven't looked back though, and am grateful that my GYN referred me to the cancer specialist...this is my life we're dealing with, and I know that I want the most qualified Dr. to take care of me. I too want to be around to see my kids grow up and grow old with my DH.

I'm fortunate that my hyster seems to have removed all of the "monsters" and I pray that this will be it. I wish the same success and peace of mind to you!
  #7  
Unread 09-05-2001, 04:54 AM
I Have returned!

I think seeing an Oncologist is really a good thing! They specialize in cancer and with all of the tests and wondering which readings were correct, well you need some real answers!! Hang in there dear, as hard as that may be! If you need to decide between oncologists, then you could do some research. If your mind is at wits end, then I would go with your Mother's oncologist because she knows of your family history already. It would probably make things easier on you, and it sounds like you need that right now! Know that we are all here for you!! Sending some positive vibes your way and a warm
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