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Adhesion pain - almost 5 yrs later Adhesion pain - almost 5 yrs later

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Unread 07-07-2009, 07:50 AM
Adhesion pain - almost 5 yrs later

I haven't posted in a loonggg time, but the pain has gotten worse and is now keeping me up and limiting my activities.

i have alot of the symptoms that are on other threads.

Had everything completely removed 8/2004. ob/gyn told me post-op that my left ovary adhesed to rectum, lots of adhesions, she just "got in and got out" so I know she didn't fix or cut out anything.

I have even resorted to a pain mgmt dr this year, but am wondering if I could not take any pain meds if I had the adhsesion removal surgery.

History: tubes tied lap, partial hyst at age 30 (i'm 51) there were fibroids inside outside of uterus, blood clotting, etc.

NO PROBLEMS until end of 2003 and i was diagnosed with perimenopause, started HRT. It got worse and the pelvic pain increased so they did test and discovered cysts, one really big one wouldn't go away on right ovary.

she tried to do lapa but wound up with incision since she couldn't find my left ovary.

what would you do? I know my ob/gyn doesn't want to mess with me. back then, after getting 2nd opinions, she kept saying are you going to have surgery? it was really frustrating since i DID NOT want to go in that direction.

last yr. complaining again on my annual visit, she said, 'you don't wanat bladder surgery".....ugh! REALLY frustrated then I just gave it up.
i saw her in Jan 09 and she gave me name of a pain mgmt.
its really not helping. probably better than taking other pain meds (narcotics) this is still some type of baseline pain med.

My question (sorry to be so long) is WHAT would you do?

I am ready to change drs since I think mine only wants simple surgeries or delivering babies.

the best dr's i hear of have LONG wait lists, of course it "has been 5 yrs"....

my husband has since become disabled (see old threads) and so my job is a precious commodity and my accrued time off just about "nil"....

Okay, this is the best place to vent, to get great advice and I told my daughter in law last year to go to this site and she had a complete hyst at age 25 really sad, but i'm sure her body is better off!

Thanks again,
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Unread 07-08-2009, 08:02 AM
Re: Adhesion pain - almost 5 yrs later

Hi TWhite

I am so sorry you've continued to be in pain. If I were you, I'd try to schedule consultations with a couple different doctors. You might even want to look for someone who does gynecology only and doesn't deliver babies.

Even if they tell you the same thing your current doctor is saying, maybe they will be more understanding or better at explaining it for you.

I'm sending you big in hopes that they help just a little.
Unread 07-08-2009, 10:57 AM
Re: Adhesion pain - almost 5 yrs later

The problem with surgery for adhesions is the very surgery to remove the adhesions can create adhesions. The next problem with adhesions is that without surgery you don't 100% know for sure that adhesions are even the problem. It can be a catch 22.

I have had surgery for adhesions by an endometriosis and pelvic pain specialist (I traveled for surgery to an expert!). Over a year later, I am still doing well. I had surgery because of known endometriosis, supposed adhesions, and post hysterectomy bleeding issues that could have been endo in my bladder. I have had issues with cysts coming and going and it was a complex cyst thrown into the mix that did help lead me to surgery. I don't know that I would have had surgery without there being all of the issues mixed together!

I would suggest at least a second opinion with someone who is an expert/specialist in pelvic pain issues. Keep a journal of all of your symptoms and issues that you can share with each doctor. Talk to your pain management doctor about possible options besides medication. Deep tissue massage, physical therapy, alternative treatment options, etc. in conjuction with the medications could be helpful for you. The pain management doctor may also be able to suggest other doctors who might be able to help you.

Another thing to consider is that your pain and symptoms could be from something other than adhesions so you might want to see your GP to discuss everything and determine what other avenues can be explored. GI issues for one can mimic all kinds of other conditions.

I wish you all the best and hope that you can put together a team of medical personnel who can help you feel your best soon!

Oh, it sounds like you had a your hysterectomy 16 years ago. Was that an LAVH (Laparoscopic Assisted Vaginal Hysterectomy) where the complete/entire uterus is removed? Or did you have the LSH (Laparoscopic Supracervical Hysterectomy) which is a partial hysterectomy because the cervix is not removed? You then had an Oophorectomy (removal of the ovaries) in August of 2004. Do I have that right?

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Unread 07-08-2009, 02:24 PM
Re: Adhesion pain - almost 5 yrs later

Oh, it sounds like you had a your hysterectomy 16 years ago. Was that an LAVH (Laparoscopic Assisted Vaginal Hysterectomy) where the complete/entire uterus is removed? Or did you have the LSH (Laparoscopic Supracervical Hysterectomy) which is a partial hysterectomy because the cervix is not removed? You then had an Oophorectomy (removal of the ovaries) in August of 2004. Do I have that right?

WOW - I am not a medical expert. I only had my uterus removed in 1988, 20+ yrs ago. Approx. 15 yrs later (having NO problems during the 15 yrs) I began perimenpause.

The complete hysterectomy, who knows what all she removed? just parts to me!

I do understand (2005 research and 2nd opinion) that all surgeries "can" but do not necessarily cause adhesion or scar tissue.

I was wondering if women who have had all reproductive organs removed can get endo. Don't know that much about it.

Thanks for all the hugs, very much appreciated.
Unread 07-09-2009, 01:12 AM
Re: Adhesion pain - almost 5 yrs later

Okay, if you had your uterus removed in 1988, that is when you had your hysterectomy. A hysterectomy is the removal of the uterus. A complete hysterectomy would mean all of the uterus was removed. A partial hysterectomy would mean that the cervix portion of the uterus was not removed. Your most recent surgery was an oophorectomy.

As far as endometriosis, it can occur pre hysterectomy and post hysterectomy. If all of it is not completely removed, it can grow and spread with or without a uterus and with or without ovaries.

Have you been diagnosed with endometriosis in the past? If so, then I would suggest keeping a symptom diary and trying to find an endometriosis specialist. Statistically, if you have not been diagnosed with endometriosis prior to or at the time of having your uterus and ovaries removed, you likely won't be diagnosed with it now. However, there are women who have been diagnosed with endo post hysterectomy, post menopause.

Unread 07-09-2009, 09:48 AM
Re: Adhesion pain - almost 5 yrs later

Thanks, I'm looking for someone now.

I know I've been diagnosed with adhesions, severe and after 4 yrs it must have really spread. it seems like the last month has been the worst.

i do not have IBS, everything else is pretty normal except when the bladder and colon get full (say it hurts to walk to the bathroom when my bladder is really full) then its better.

i have thought of a gastro dr too. since my current ob/gyn tells me this is adhesion issues, I have sort of accepted that since i have no other symptoms besides pelvic pain but oh my, it can HURT!
Thanks for all the information, when I first joined this website, I never noticed all the terminology until you mentioned it. It sounds like you have had either a medical background or conducted a lot of research on these subjects.

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