CIN III or CIS??? | HysterSisters
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Unread 09-11-2001, 01:14 PM

Two weeks ago I had a LEEP to remove moderate dysplasia (CIN II) from my cervix. After the biopsy, they found that I had severe dysplasia (CIN III) in the endometrial cells / glands of my cervix.

Two things are really freaking me out. My gyn has referred me to a gyn oncologist, but said that I shouldn't be seen for 10 weeks because they need to wait for 10 weeks post-LEEP, otherwise, the cells will look inflamed and they won't be able to tell what's going on. This progressed to this point in only one year (my last pap came back normal), and needless to say, I'm frightened about what could happen in this time period.

Second, my doctor says, "Don't worry, this is not cancer." While doing research on the net I found that CIN III is also called carcinoma in situ (CIS) and that it is in fact an early form of cancer. When I called my gyn back and asked, "So is it cancer or not," they just said, "Don't worry, cervical cancer is the slowest growing cancer in the human body." I don't know where to go from here, but I am really not doing well emotionally right now and don't know how I'll make it for 10 weeks.
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Unread 09-11-2001, 08:15 PM


I went through the same confusion with CIN3 & CIS. My dr told me the path report showed a high-grade lesion high in the cervix. He said it was pre-cancer. When I got a copy of the report a few weeks later, it noted CIN3 in one place and CIS in another. I jumped on the internet looking for info and found it all confusing. Many places showed CIS as a pre-cancer, others noted it as a Stage 0 cancer. In all cases, however, the fact that it's "in situ" was positive because it's still in the original site.

BTW, it was 9 months between my Cone Biopsy and my eventual surgery. I had a GYN/ONC from the beginning. I had the Cone, then another pap 3 months later. We had hoped the Cone would take care of it, but still showed on the follow-up pap.

I know it's hard to wait, but it is a common practice. You need to heal from previous procedures.
Unread 09-11-2001, 10:53 PM

Hello, I know that you are scared right now, it is real scary when you have the word 'cancer' in your life. But you do have to heal before any other tests can be done. The excised area must be given a chance to heal. 10 weeks does seem a long time to wait, have you spoken to the Dr about this?

As far as I know CIN3 or carcinoma in situ is the same thing. Both still in the pre cancerous stage,most usually, but not always this does progress to cancer if not treated . Treatment can be done a few ways usually a cone biopsy or hysterectomy are the chosen treatments.

I know when I found out about my precancer/CIN3 I just freaked . Please remember that we are here for you always. It is a scary path to walk alone. Much love always x x
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Unread 09-12-2001, 04:40 AM

I sure hope that your mind is cleared from the confusion soon. You will be in my thoughts and prayers. The begining is always so confusing for all of us.
Unread 09-12-2001, 06:12 AM
Thank You

Thank you all for your kind replies. This board right now is one way for me to hang on to some sanity.
Unread 09-15-2001, 10:30 AM
DO YOUR RESEARCH FIRST!!!- Trachelectomy

robynb said:
Treatment can be done a few ways usually a cone biopsy or hysterectomy are the chosen treatments.

These are NOT your only options, please educate yourself on this subject, this is your life. There are many websites that explain the difference in stages of cervical cancers.

You will have to have treatment to get rid of the abnormal cells, that is extremely important but don't ever make a final decision such as a hysterectomy until you research your options.

I had cervical cancer-adenocarcinoma stage 1b and had one cone done. I was then misinformed by a few doctors who told me I needed a hysterectomy and did NOT tell me I had options.

I did my own research and found a specialist in Quebec City and I had a trachelectomy, a laproscopic and vaginal surgery that only removes the cervix and some surrounding tissue, small piece of the vagina and lymph nodes. It turns out they did not find any more cancer!

I posted a message about preserving your fertility-cervical cancer on the alternatives board. Please read it and contact me if you have any questions.

Being misinformed can cost you your ability to have children and put you through unnecessary major surgery.


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