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10 year anniversary coming up 10 year anniversary coming up

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  #1  
Unread 09-17-2009, 09:36 PM
10 year anniversary coming up

I've spent some time reading through old posts and have read so much sadness and heartache - I know my problems are trivial in comparison. I hope this isn't offensive to anyone.

On December 3rd it will be 10 years since I had a gigantic ovarian tumor removed, along with my right ovary and fallopian tube. It ended up being a cystadenoma which is benign, and I was thrilled and put it out of my mind. I was 28 at the time.

Six months later I got a call from our state's cancer registry, wanting to make sure they had my correct address and phone number for their records as they have to maintain a current database of all present and past cancer patients. I told the lady that she must be mistaken - my tumor was benign, so I didn't fall into this category. She was quiet for a minute and said, "Honey, I have your pathology report in front of me and I think you should call your doctor." I hung up in a panic and called my doctor, getting the nurse and telling her I needed him to call me right away.

I was absolutely panicked and called in sick to work, thinking of all the horrible things that could be going on with me. I waited all day for the phone call and it never came. I called back at 4:55 and the office had already closed for the day.

After a sleepless night, I called again first thing in the morning. The nurse assured me he would call as soon as he got in. He didn't. I called back right before lunch, right after lunch, and at 4:00. Finally he called me at 5:00. I told him what the lady said, and he got very short with me and said, "It was determined by tumor board that your tumor was borderline and had cells that were developing into cancer, but you didn't need any further treatment because removal of the tumor removed any possible cancer. If you had waited 3 months to come in it would have been another story. You're fine and I don't know why you're worrying about this."

!!!! This was the first I'd heard anything other than that it was benign and there was nothing to worry about. I guess that's true, but the whole truth is a bit more than that and is certainly something I should have known, if for nothing else than that I should probably have been watched more carefully from then on. He said nothing at all about that at any time, even when he was reading to me from the pathology report.

I found another ob/gyn after that and never went back to him again. I still get letters from the cancer registry once a year, and just got another one. Every time I get one I go into a funk, reliving that experience and wondering if they really got everything or if there are still some cells lurking around waiting to start acting up. I know it's been 10 years, so if anything was going to happen it would already have happened, right? I'm guessing my fears are irrational, but having the hysterectomy 8 weeks ago and getting the letter have brought the fears to the surface again.

Anyway, I really do understand that my concerns are trivial compared to what everyone else is going through, so I really hope this hasn't upset anyone. ((Hugs)) to everyone.
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  #2  
Unread 09-17-2009, 09:44 PM
Re: 10 year anniversary coming up

ViolinStephanie

Doesn't matter if your concerns are trivial compared to someone else's concerns, these are your concerns and big for you.

I think everyone who had a cancer diagnosis or the potential of a cancer diagnosis has these triggers. I can imagine it caused you some panic when you got that phone call and I'm glad you found a new doctor.

You are a survivor and you deserve

G.
  #3  
Unread 09-17-2009, 09:46 PM
Re: 10 year anniversary coming up

I would freak out too!!! The first doctor I saw sounds much like your first doc. Very cold, very callous, and very "i'm the doctor and know what I am doing even if I dont' explain it all to you-the lowly patient".

I'm sorry its all hitting you again, it happens to all of us. I'm going through it myself at the moment. Did you ask the doc who did your hyster if s/he checked to make sure everything was clear? Sometimes they'll run additional tests for their own records and not "worry" us with something they expect to come back normal. (((HUGS)))
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  #4  
Unread 09-18-2009, 03:26 AM
Re: 10 year anniversary coming up

I am sorry that you had to deal with additional worries... along with an insensitive *** for a doctor. I think that they need to be reminded that we are the "customers" and have rights to be treated with respect.
I find it interesting that you were contacted by a cancer "registry". I have never heard of it or been contacted. I think that would upset me too.... Guess I would still like to believe some things are confidential.
  #5  
Unread 09-18-2009, 08:30 AM
Re: 10 year anniversary coming up

Never be afraid to voice your opinion/experience here...it does matter to us and let's us know about strange happenings out there to watch out for. Your dr. was an insentitve boob...hope you have found a better one by now and that you can rest easier...the cancerhead never goes away, even if you only have an idea that what it was. Your feelings are valid...because they are yours.
  #6  
Unread 09-18-2009, 12:34 PM
Re: 10 year anniversary coming up

thank you for posting this and i'm very sorry you had to re-live the anxiety you had 10 yrs. ago. i think your experience underlines the importance of getting copies of surgical, operative, pathology reports, etc. i'm sure there's a lot our drs. don't bother to explain to us for fear we will "freak out" about it. we shouldn't be treated as children.

i hope you are recuperating well from your most recent surgery and you can put that awful experience behind you. thanks again for your very helpful post. take care.
  #7  
Unread 09-18-2009, 05:25 PM
Re: 10 year anniversary coming up

Thansk for sharing your experience. Years ago, I changed gynies because my gynie told me that I did not need to know a pap was abnormal since I would "automatically assume that meant cancer." It is so disheartening when we trust our doctors and they treat us so arrogantly. We do have to advocate for ourselves all of the time.

I hope you are healing well and wish you many more years of good health.
  #8  
Unread 09-18-2009, 10:15 PM
Re: 10 year anniversary coming up

Ladies, thank you so much for reading my novel and offering your support and encouragement. It means so much and I really needed it right now. We have been having some challenges as a family and I think the stress of everything (along with the lack of hormones, etc) has made it harder than usual to cope with the situation. I am so grateful for your thoughts, words, and hugs. Thanks again.
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