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Hysterectomy 3 wks ago now with cancer diagnosis Hysterectomy 3 wks ago now with cancer diagnosis

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Unread 09-25-2009, 06:01 PM
Hysterectomy 3 wks ago now with cancer diagnosis

Had a laproscopic hysterectomy-uterus only 3 weeks ago. Path report showed Grade 1 cancer after surgery. Referred and have just met with an Oncology/Gyn today. He is recommending another surgery removing ovaries and lymph nodes. Any info or advice from anyone on what immediate and long term side effects of lymph node removal? This surgery will be using the daVinci method and am hoping it will be just as easy as the last surgery I just had. Hate to have another surgery so soon, but want to make sure there are no more cancer cells, so feel I am forced to go ahead with another surgery.
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Unread 09-25-2009, 06:45 PM
Re: Hysterectomy 3 wks ago now with cancer diagnosis

I am sorry that you have had this diagnosis... There are many women that have had lymph node removal with no problems, however, there are some of us that have mild to moderate lymphodema from removal.
I am not sure why it occurs in some people and not in others. But a complete idea of what you are dealing with (a staging surgery) is in my opinion worth the risk.
Unread 09-25-2009, 07:14 PM
Re: Hysterectomy 3 wks ago now with cancer diagnosis

Hi DG,

I was in your boat 4 years ago and also had a 2nd laparoscopic surgery to remove lymph nodes so that I'd have a complete cancer staging surgery. For my peace of mind, I am glad I had the 2nd surgery since now I know that my lymph nodes were clear and that Stage 2 (rather than higher) was my diagnosis. Still, I had to undergo 3 doses of internal radiation recommended to me to reduce my risk of recurrence. This is because Stage 2 is considered intermediate risk.

I had a very unusual side effect that was not lymphedema, but was a lymphocyst (also called lymphocele)--a sac of lymphatic fluid. And just as unusual, it got infected and I was hospitalized, but the sac resolved after draining and I've had not a single incident further, including lymphedema. I do watch for swelling though.

Good luck to you.
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Unread 09-25-2009, 07:56 PM
Re: Hysterectomy 3 wks ago now with cancer diagnosis

Thanks for the positive info that you are glad you had the second surgery. My uterine cancer was a Grade 1 and i am reading conflicting info on taking the lymph nodes with such an early stage, but hate to live my life worrying if cancer had spread.
Unread 09-26-2009, 08:07 AM
Re: Hysterectomy 3 wks ago now with cancer diagnosis

Hi DG, I am sorry you face this dilemma and second surgery. As you note lymph node removal is not always done with early stage. My gyn/onc actually decided not to do the lymph node dissection but he did do an abdominal wash, etc.; I understand other factors are involved re this decision including the location, size, etc of the tumor removed. If you harbor any doubts you can always get a second or even third opinion from other gyn/oncs but if you will just worry if not done than you'll want to heed your current doctor's advice. It also seems like most gyn/oncs do the lymph node dissections.
Good luck and pls keep us posted.

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