endolymphatic stromal myosis anyone out there? | HysterSisters
HysterSisters Hysterectomy Support and Information
Advertising Info HysterSisters Hysterectomy Support Tutorial

Go Back   Hysterectomy HysterSisters > Hysterectomy Special Needs > Cancer Concerns - GYN

HysterSisters.com is a massive online community with over 475,000 members and over 5 million posts.

Our community is filled with women who have been through the Hysterectomy experience providing both advice and support from our active members and moderators.

HysterSisters.com is located at 111 Peter St, Toronto, Canada, M5V2H1 and is part of the VerticalScope network of websites.

With free registration, you can ask and answer questions in our HYSTERECTOMY forum community, get our FREE BOOKLET, access Hysterectomy Checkpoints and more.

You are not alone. The HysterSisters are here for you. Join us today!
join HysterSisters for hysterectomy resources and support

endolymphatic stromal myosis anyone out there? endolymphatic stromal myosis anyone out there?

Thread Tools
Unread 09-15-2001, 03:18 PM
endolymphatic stromal myosis anyone out there?

Kinda scared, I had a fibroid myomectory on 9/4, and never in my wildest dreams did I think that IT would turn out to be cancer, a very rare type. I am scheduled for a TAH BSO from stem to stern surgery on October 15, my son's thirtieth birthday and the due date for his first child. Has Anyone out there been treated for this, and can let me really know the odds. DR, the best at Dartmouth Medical Center, wrote the text on this, and he seems too happy for me to have this. (my perception).

Thanks for a wonderful forum. I have little experience expressing myself online. I have started a cancer journal and it seems to help me get through the dark.

Braiding Lady
Sponsored Links
Unread 09-15-2001, 04:01 PM
endolymphatic stromal myosis anyone out there?

Hi Leona,
I am so sorry to hear of your cancer diagnosis. I have not heard of this, but hopefully one of the ladies here may have some information for you.

Have you searched this on line Leona? I find 2 sites very helpful when looking for info on things here. First I always search the site here, which I did on this, and there are only the 2 posts of your on it.
So....you could try www.webmd.com as well as www.google.com Those seem to be wonderful search engines, and I find that google has a great deal of information.

I think its wonderful that you are keeping a journal. I wish I had done that. My sister who came to every appt. and chemo treatment with me has kept alot of notes and things, so when I am trying to think of when something happened during my ordeal I ask her and she checks her notes. But I think its great what your are doing.

I wish you the best, and please keep in touch with us. You will find a great deal of support here Leona as you go through this.
Sending big hugs!!
Unread 09-15-2001, 05:58 PM
endolymphatic stromal myosis anyone out there?

You came to the right place to bring your fears and all your feelings. You can know that even though we don't have the same thing, we know what you're feeling because someone here has felt it too.

I did some research around the Web. I think your doctor seems happy because it is so treatable, not because he's callous about his specialty. In fact, if it is Stage I endolymphatic stromal myosis, a TAH/BSO brings a 100% cure rate. You can't get better than that.

I too had a rare stromal cancer (ovarian). Unless it's a late stage, they are routinely cured with hysterectomies. I didn't even have to have chemo or radiation, just lots of follow-up to keep an eye on things.

Nonetheless, a cancer journal is a wonderful thing to do. Even the word starts to change your life and for sure the surgery does too. It's good to process that on paper.

You express yourself beautifully.


Our Free Booklet
What 350,000 Women Know About Hysterectomy: Information, helpful hints as you prepare and recover from hysterectomy.
Answers to your questions

Thread Tools

Forum Jump

Similar Threads
From This Forum From Other Forums
29 Replies, Last Reply 09-01-2011, Started By tsahleen
4 Replies, Last Reply 10-09-2010, Started By Tigerlily18983
4 Replies, Last Reply 09-13-2008, Started By HMD45
15 Replies, Last Reply 11-21-2007, Started By countrysunshine
10 Replies, Last Reply 11-20-2007, Started By herebygrace
14 Replies, Last Reply 08-19-2006, Started By KBC
3 Replies, Last Reply 01-21-2006, Started By KatherineP
1 Reply, Last Reply 03-15-2005, Started By bonny h
8 Replies, Last Reply 02-07-2005, Started By tdbm
12 Replies, Last Reply 07-19-2004, Started By Gillsburg
1 Reply, Last Reply 10-10-2003, Started By bebrave
5 Replies, Last Reply 06-18-2003, Started By lynneblack
4 Replies, Last Reply 06-16-2003, Started By Nancycarol
4 Replies, Last Reply 03-04-2003, Started By jewie
0 Reply, Started By lchurt
6 Replies, Last Reply 02-24-2003, Started By kathymp
11 Replies, Last Reply 01-22-2002, Started By sjl
3 Replies, Hysterectomy Recovery (post hysterectomy)
1 Reply, Hysterectomy Recovery (post hysterectomy)
1 Reply, Hysterectomy Recovery (post hysterectomy)


Hysterectomy News

April 11,2021


HysterSisters Takes On Partner To Manage Continued Growth And Longevity
I have news that is wonderful and exciting! This week’s migration wasn’t a typical migration - from one set ... News Archive


Calendar - Hysterectomies - Birthdays

Request Information

I am a HysterSister


Featured Story - All Stories - Share Yours


Your Hysterectomy Date

CUSTOMIZE Your Browsing  

$vbulletin->featuredvideos is not an array!