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Newbie with some questions Newbie with some questions

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Unread 09-19-2001, 05:30 PM
Newbie with some questions-Hashimoto's&HRT

Hi everyone, I have been reading your messages to each other, what a warm and supportive group you are!!

I find myself in a situation that I am seeking opinions on, and I'd appreciate even a brief reply.

I have recurring cysts on each ovary that no longer respond to the BCP. I had another sonogram yesterday and my GYN recommends removal of both ovaries and uterus. I have painful heavy periods even while on the pill.

I am 46 yrs old, could never conceive and have hashimoto's thyroid disease too.

My doctor said she should remove the right ovary which is the worst, and if I wished, we could leave the other, however in her educated assessment, it should be a total hyster. The left ovary gets cysts too, just not as bad as the right. I have had three cysts rupture in the right ovary over the years....OUCH!!! So if the left is left, it is likely inevitable that I will have continuing problems.

My Doc wants me to go on HRT as soon as I have the hyster, she feels it is the best course.

Can anyone offer some insight? What questions should I ask? We are going to make our decision in a month (I am going off the BCP and she wants a cycle off of it before we proceed).

Can they do vaginal hysters with the removal of everything?

I know this is a lot to ask!! Any advice is helpful as I know NOTHING!

Many thanks,
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Unread 09-19-2001, 06:29 PM
Newbie with some questions

Hi there. I am sorry that you are having so many problems. But as we all did at some point and time to bring us here or to have a hyst done. There is a vaginal hyst that can be done. But depending on your perticular situation it may or may not be possible. That is one of the things that you should ask your doctor. The recovery time is about the same for both ways, so that should not be a concern. I had a TAH/BSO which means I had the incision and everything is gone including the fallopian tubes(BSO). If they have to go the incision route, don't worry it is not bad at all! Lord knows that I am the biggest whiner when it comes to pain!! Of course this is my opinion and suggestion, but if you have even the smallest of problems with the left ovary have them take it. Recovery is long and not worth going through the surgery again if the cysts get worse on that side...which I think you already realize. If you have any other questions that I may be able to help you with please don't hesitate to email me and ask. Here if you ever need!! Take care and things will be better for you. I am not regretting my hyst one bit...NO MORE PAIN..NO MORE PERIODS!!!

BIG 's
Unread 09-20-2001, 03:48 AM

Wow girl, you sure have been having a hard time of it.
I'm not an expert, but from what you say you have been suffering long enough. Life must be so much better without all the painful baggage you are carrying around.
As you say, you are unfortunately unable to conceive, your ovaries are making you miserable. Say goodbye to the lot of them and listen to your doctor. You have so much to look forward to. Life without the pain and suffering and the worry that the other ovary will malfunction, you don't need that kind of stress......
I'd say you have been trying to cope with it all for years. Recovery time for a hyster, no matter which kind you opt for, is about 6 to 8 weeks. After that it can only get better.
Go for it and begin to enjoy your life. You're only 45 years old and you still have a lot of living to do..........
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Unread 09-20-2001, 09:34 AM

I suppose we have problems that we consider 'normal' for us. I bled constantly prior to discovering hashimoto's. As I set here this moment, I have cramps and I should not start my period for 4 days (and this is while on the BCP).

In summary, I appreciate the advice and I am going to 'go for it'. After reading so many positive experiences, the overwhelming majority say "YES, I would do it again!", I am looking forward to the whole thing now!

Thanks for replying to my post and thanks to the founders for creating this site! I'll be checking in often, who know, perhaps someday I can answer a newbies question.

God bless-
Unread 09-21-2001, 03:16 PM
Newbie with some questions

Hi Bev
You have a difficult decision to make. Research as much as you can in the next 4 weeks, or alternatively delay your decision until you have all the facts. Having Hashimoto's may complicate your HRT and it may not be a case of taking a one size fits all estrogen replacement if you have your ovaries removed. However, getting cysts constantly is no fun either I know, I suffered from them on and off for years before my op). If you decide on an oopherectomy then look into Natural Hormone Replacement Therapy, including the supplementation of Progesterone. Depending on your doc's knowledge and views on this they may say, oh you will only need estrogen - but it's not always that easy with autoimmune patients.
Leaving one ovary may be an option, but finding balance, depending on how close you are to menopause anyway could be difficult.
There are some ladies over on the Hormone Jungle Message Board who have had their ovaries removed and who also have Hashimoto's, or developed it after their hysterectomy. I'll copy your post to this board and you may get some more insight into this.
You'll find it here:
Bear in mind that most women on this board are the ones having problems with HRT, there are a lot of others who do fine on the standard regime. Which category would you fit into? It's VERY hard to say and that's why you need to think about this carefully.
I'll also direct you to the hormone jungle home page where there is some info on thyroid (not specifically Hashimoto's though) and also some articles on HRT choices in the drop down boxes.

You, and only you can decide what to do here - after weighing up all the facts and researching as much as you can.
I'm sorry I couldn't be of more help but it is unclear how you will go, so perhaps some of those ladies in the jungle will be able to give you their two cents worth
Unread 09-22-2001, 06:15 AM
Newbie with some questions

I am 45 years old with Hashimoto's Thyroiditis (diagnosed since 1996) and always had heavy periods. This year they turned into one 4 month long one that ended with the hysterectomy. I chose to have both ovaries removed: 1. because the Dr suggested it and 2. because I did not want to have to go in for another surgery if one or both that were left got worse. Turned out I had cysts on both ovaries and on one of the tubes in addition to fibroids, adenomyosis, cervicitis and dysplasia. I am finally starting to get my health back and am working on balancing the thyroid meds with the estrogen and progesterone. Read up as much as you can on this site, it saved my sanity and I found answers to questions before I even had a question.

Unread 09-22-2001, 12:10 PM
Newbie with some questions

You may want to have the doctor see what your hormone levels are. Cysts on the ovaries could be from either too much estrogen or too much testosterone. The way you could treat this condition is by adding natural progesterone. Even lack of progesterone could cause low thyroid. It might be something to at least try before making that final decision of surgery. Tell the doctor to test your progesterone, estradiol, and testosterone hormones.

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