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Glad I asked.... Glad I asked....

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  #1  
Unread 09-20-2001, 02:16 PM
Glad I asked....

Ok went to Primary today, Danielle you will be glad to know I asked all the right questions! A practice run my primary called it! I also have an appointment with another Oncologist on Oct 1st. I already faxed my records, and they said they needed to see me sooner than later. I'm ok. So here is the info he gave me. My bloods were great and all hormone levels were exceptional. My margins are not clear, what has him concerned is the fact that it is pretty far up the canal. He said I do need another surgery, if I want my fertility for a while to conceive the best bet was the cold cone, BUT a hysterectomy would be a definate somewhere down the road, he explaned that 75% of the woman he had to send for the cold cone had a successful pregnancy with no complcations. ok well that made DH happy. He also explained to me that being close to 40 the chances of getting pregnant is about 50%. This would all have to be cleared with the Oncologist first. There is only 1 very small area that shows CIS, which yes they do grade differently from CIN III it is just a tiny bit worse and it can be handled. Female type cancers do run in families but usually skip a generation. Bad news for dd. He explained that it is a slow progessing cancer. And he called it cancer, he said once it hits the III stage it usually doesnt reverse its self like a I or II, he said it has to be taken care of. He was glad that I came in he hated to be out of the loop and that I looked like garbage, my blood pressure was high 140/85 which is very high for me, my face is all broken out from the stress and the worry. He wants me to take Paxal for a while and keep taking the Ambien at bed time. He drew me pics too. He told me not to take the situation lightly it is serious. Especially with having HPV the problem will never go away and I must take good care of myself. So I feel a lot better about the whole thing now. DH to be is happier and I didnt cry! So we will see what the Oncologist has to say about everything dh's concerns, my concerns, the what if's etc, and we will leave MIL to be home alone I really think I am going places now and I am not so freaked out by that "c" word anymore and it sounds as though that I can make everyone happy, including myself and still be safe. Big Thanks again for everyones support to get me through this.
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  #2  
Unread 09-20-2001, 06:40 PM
Glad I asked....

Sounds like good news Terri!!
I think our attitude has alot to do with how we are received by the medical professionals, and you took a stance and pushed forward. Things are looking up and thats wonderful!!

You did well to get the appt. so quickly with the onc. Thats great!
Keeping you in my thoughts and prayers!!
Hugs,
Maria xo
  #3  
Unread 09-21-2001, 06:42 AM
Glad I asked....

You really sound good!! That's wonderful!! I'm glad that your doctor was nice and even drew pics for you to better understand things! It sounds like you had a good visit and still have some options for now. Best of luck to you and keep your spirits up!
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  #4  
Unread 09-21-2001, 08:58 AM
How does he know...

Terri,
Sounds like you are doing quite well! That's great!

One thing I was wondering, how does your doctor know how far up the endocervical canal the CIS is? Did he do another colposcopy after the leep? Also, when was your leep and have you had another pap since then? I'm just wondering why the onco wants to see you so soon.

The onco that I saw earlier this week said that with a leep procedure, even though the margins aren't clear, that sometimes everything is gone. This is because the electricity kills the surrounding cells. Both the onco and my ob said there was no way to know that for sure until 3 months post leep, when they will do another pap. They said I have to wait 3 months to give the surviving cells a chance to recover - if they do a pap now, it will come back abnormal. Only after this pap will either of them agree to do another surgery - either cone or hyst.

Sorry for all of the questions, but it sounds like you and I are going through the exact same ordeal and I'm just curious about the specifics (what's the same/what's different) in our treatment plans.

My leep was on 8/28 and my results were on 9/10. My pap will be scheduled sometime in mid-November. Waiting until then (thinking of the possiblity that things are getting worse in there) is hair-raising, but I'm trying to stay positive. Talking to someone else going through the same thing at the same time sure helps!!!
Danielle
  #5  
Unread 09-21-2001, 01:54 PM
Glad I asked....

Hi Terri, well.... I am so glad for you that you now seem to be getting somewhere ! It certainly takes alot of stress off you .

Danielle... you asked about the specifics and (whats same/whats different). Please remember that you and Terri are different women with different cases with different Drs. Sometimes it is so easy to compare our cancers with everyones else but it must be remembered that every cancer is different and behaves in a different way. And the waiting is indeed :hair: and as you said to get support from someone going through similar things at the same time as you makes it a little easier. I know I wouldnt have made it without all the support I received here .

Both of you , please dont forget we are all here for you. Much love and to you both x x
  #6  
Unread 09-21-2001, 03:23 PM
Hello

In answer to your question Danielle, I am sure that the electricity can kill surrounding "Aliens" but I have been through many tests and the outcome keeps getting worse, Atypical pap, CIN I to CIN II to CIN III to CIS in a small area, this is what has them concerned. I have been going through this since May, with the CIS in the Endocervical area (canal), it is a much better idea to do the cold cone to be sure, then have another pap. I really think that it depends on the severity. Like Robyn said they are all different, not 1 that is the same. But we are floating in the same boat! Lucky us huh.
I do feel like I am getting somewhere, I have been more relaxed the last two days. Heck I may meet dh to be at the door when he comes home from work naked This is something I havent been able to do over the last few weeks, he has been ok about it, but his frustation is mounting. I am looking forward to my appointment with the Oncologist and I am not very nervous about this one as I was the first! Go Me!!! Thats all for now. Big with a double squeeze.
  #7  
Unread 09-21-2001, 06:31 PM
DH should be happy...

Thanks for replying. You got a good chuckle out of me with your possible plans for the evening.
Have fun!
  #8  
Unread 09-22-2001, 04:08 AM
Glad I asked....

Oh Terri, I sure hope that dh isn't the kind of guy who brings the boss home for dinner, unexpected!
Glad to see that you are more relaxed!!
  #9  
Unread 09-22-2001, 05:21 AM
Saturday Morning Update

Well plans didnt work out. DS went to bed when he was suppose too, DD went skating but decided to stay longer and brought a girlfriend home to stay the night. Ok, so there is always tonight! I glad I made you chuckle Danielle, cant stay long faced forever so I gotta laugh at times, they do say that laughter is the best medicine. Thankfully Cyd, he never brings anyone home from work. Phew, would have been my luck if things panned out! I just got done eating a healthy breakfast and taking my vitamins, so it is now time to really start my day! Have a terrific day everyone. and a double squeeze!
  #10  
Unread 09-22-2001, 01:29 PM
Glad I asked....

to you Terri, you know that sense of humour is going to help you get through all of this. . I am so happy that you are feeling so great ! ! Much love always to you x x
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