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Started Bleeding w/ severe pain, how much longer can this wait go on? Started Bleeding w/ severe pain, how much longer can this wait go on?

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  #1  
Unread 01-02-2010, 08:18 AM
Started Bleeding w/ severe pain, how much longer can this wait go on?

I am still in the holding pattern so to speak. Although I have not canceled my surgery date for the 20th, just in case. I have to wait until wednesday the 6th to consult with another specialist. To my disbelief when I got up this morning to use the bathroom I discovered I am bleeding now, and I have never bled since my ablation in August!! It's very red and it's heavy. I have horrendous cramping, and of course crazy constipation from the percocet, and I'm now bleeding rectally also. (Sorry TMI) I am praying that this doctor on the 6th has a HUGE heart and gets me in quickly. If it comes down to waiting for da vinci again I am probably gonna pass on that and get the open abdominal. I cannot tolerate the pain any longer, and that is ON percocet 10. I pray this bleeding gets worse because I feel I never should've had Novasure, my doctor never told me it could get worse with adenomyosis I learned that talking to lots of women on this site and reading on the internet. I told him that if I had still been bleeding they would've done my surgery earlier, they were recommending it in August, before they talked me into the Novasure. My regular OB has not called me back after I spoke to him and he told me he would before xmas, and after they were in the office working and I left him a message and got no returned phone calls!! That to me says whether I have been with his practice for 17 yrs or not, time to leave. I feel totally abandoned by my doctor. My cramping was so severe yesterday I was doubled over most of the day. Chances are I have ruptured another cyst and have fluid in my belly again. It's the same pain as when I went to ER on 12/4. My hubby wanted me to to to the ER, but I wouldn't go since I feel like I have no doctor right now. If you're bleeding they seem to react more than when you're in excruciating pain that requires morphine! I am sorry for complaining so much!
Please pray for me that wednesday this new guy DOES something soon! I am suffering
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  #2  
Unread 01-02-2010, 08:48 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

luvee24,

I have been thinking about you. So, so sorry you are in so much pain. Maybe place a call to new doctor, even now and explain your situation. Tell him you are very scared of this bleeding, all he can do is tell you you will just have to wait for the appointment on Wednesday or advise you what to do otherwise. I really think this is what I would do. Be sure to mention your recommendation from your Pain Management Doctor. This bleeding rectally does not sound good to me. He might take you in on Monday. This does sound like an emergency situation. I just feel in my heart that he will be the one for you, especially since your Pain Specialist and his wife are happy with him. That says a lot for another Doctor to recommend his wife's doctor that they trusted. I have to agreed with you still, I would not be happy with your regular gyn. I would not cancel the other appointment either, and I would not look back when and if I did cancel it. I would be absolutely scared to death in your situation right now. I will be praying for you luvee24.

  #3  
Unread 01-02-2010, 09:06 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

ILoveKitties,
Thank you for responding. I didn't want to post because I thought, these women are gonna be so sick and tired of listening to me now! I did call his office yesterday and they named another doctor that was on call, and I said never mind to the service and told her I'll call on Monday. I have never met him, so not only do I feel like I have NO doctor, but how do you go calling a referral you haven't seen? Especially if the other people in the group may have never heard my name. I am scared too, but that's something I try not to think about. Hubby really wanted me in the ER yesterday, I think he got scared. I have internal hemorrhoids so that could be the rectal bleeding, but it's very red blood, and blood loss is blood loss. I just can't stand this pain. My low back, pain radiates up my back to my right kidney area too, down my thighs front and back (sciatica), and my belly is huge with fluid I imagine. I read about how an ablation on someone with adenomyosis can really make it much worse. I read the uterus just keeps on contracting to expel blood, but cannot because now it is all burned and scarred. I am so mad I was never told this. I was told hysterectomy was the only cure, never told ablation could make it worse!! Maybe I will call and see who's on call, but what if it's a doctor I don't know, which is everyone? What would you do? I feel like calling my regular OB office and leaving messages on service for my doctor just to be annoying since I am so angry that he has totally blown me off!! Thank you for praying for me! You are so sweet!!
alicia
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  #4  
Unread 01-02-2010, 09:07 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

luvee24

  Quote:
Please pray for me that wednesday this new guy DOES something soon!
Yes, I will pray for this.
Please call this new doc on Monday to see if he will see you sooner or have some advice for you.
Have faith that things will happen as they are supposed to and you will soon be recovering and then pain free and able to live your life again!!!
Hugs,
Suzanne
  #5  
Unread 01-02-2010, 09:42 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

  Quote:
Originally Posted by luvee24 View Post
ILoveKitties,
What would you do? I feel like calling my regular OB office and leaving messages on service for my doctor just to be annoying since I am so angry that he has totally blown me off!!
alicia
luvee,

If it were me, and I was in the pain and bleeding like you are, I think I would call and talk to the doctor on call and totally explain everything. You are scared and in pain and make sure to tell them who you have a referral to for Wednesday and who referred you. I would ask if it is possible to talk to this Doctor that you have the referral with on Wednesday. They will tell you something I would think. You are on heavy pain meds now and if they are not working???? Luvee, I live on the theory they can only tell you no, if you know what I mean. You might get told to just wait until Wednesday. I would let my feeling be known that you intend to see this referral doctor. I don't think that I would bother the original gyn myself. That is just my opinion. You decide what you want to do. I will still be thinking about you and praying for you. This will be over for you soon.

  #6  
Unread 01-02-2010, 11:32 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

Sending hugs and positive thoughts.
  #7  
Unread 01-02-2010, 11:32 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

Well the bleeding has now stopped. I am shocked to have even had the amount I did! Ablation took care of that, and not in a good way. My husband has had to bump up my medication now to every three hours. I cannot wait the four hours. I have not called the new referral's office. I just can't do it. I have had so many bad experiences that the last thing I want to do is risk annoying or making these new doctor's who have never even met me mad. I don't know what was done to get me in so quickly, they may have squeezed me in, I can only guess. My doctor had the appointment for me within 5 minutes of our conversation. I know from waiting for everyone else that I am probably very lucky to be going there on Wednesday. I don't want to bite the hand that feeds me so to speak. I feel like I am at the mercy of these people. I am terrified of screwing this up. I can't afford to do that. I appreciate your help and advice, and your prayers too! I don't think I even feel comfortable calling on Monday. After the last referral I am really gun shy. I hope this isn't a repeat, but she walked in the room after I waited an hour, and said "sorry for the wait, but since YOU were squeezed in (lucky to be there?) we are NOT taking complaints today! Funny thing is, I never complained one bit, and thanked her repeatedly for seeing me!! I know, everyone isn't like that, but when you have NO control and they have ALL the control I feel like I need to be on my best behavior and shut up and take what I get........It is what it is....
alicia
  #8  
Unread 01-02-2010, 12:19 PM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

Hugs and Prayers!!!
  #9  
Unread 01-03-2010, 05:25 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

Alicia

  Quote:
but when you have NO control and they have ALL the control I feel like I need to be on my best behavior and shut up and take what I get........It is what it is..
Believe me, I do understand how you feel. I feel the same way. After all the waiting I have been doing for testing, etc. it seems when I get in to see the surgeon that he spends a minute telling me he wants another test and will see me after the results of that, etc. It is very difficult to get in with a specialist in the area I live and my current doc is the second opinion, but it took months and months to even see him for the first time. I do feel that if I stand up and say enough is enough, he will say find someone else. He is a wonderful doc, but each test, etc requires months of waiting.
I am sending up prayers for you to be able to make it until Wednesday and that everything will fall into place for you then.
Until then, please feel free to vent here and we will do what we can to help you through this. You are not alone.
Don't worry about repeating yourself, we will listen again and again because it may help you relieve some of the stress.
Hugs,
Suzanne
  #10  
Unread 01-03-2010, 07:58 AM
Re: Started Bleeding w/ severe pain, how much longer can this wait go on?

Thank you all.
Suzanne,
I think of you often and how much harder you have it with all this waiting you have to go through. I am sorry for you too, it's just wrong not to take care of people who need help. People here say they want our healthcare system to be like Canada, but I don't think they realize what that system is really all about. If they knew about the months of waiting they would not say they wanted it. Thank you for comforting me. No more bleeding today just these nasty cramps and back pain. Hubby has been great and goes back to work for 24 tomorrow . Wednesday cannot come soon enough. I can feel myself getting my hopes up. I do it everytime, because I think I truly believe in treating people the way you want to be treated and I expect so much more. I hope he is "the one". He may end up being my regular doctor even though he much further away than my past OB, I think I've given up on him now. He really let me down.
Thanks for the prayers Shydiva!!
I appreciate all of you so much!
Alicia
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