Endometrial Cancer: ? Re: follow up | HysterSisters
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? Re: follow up ? Re: follow up

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Unread 01-03-2010, 09:29 PM
? Re: follow up

Hi Guys
I would like to know how often in the first year you get CT scans, or what exactly your follow up consists of?

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Unread 01-03-2010, 09:52 PM
Re: ? Re: follow up

You will probably have a pelvic exam and maybe a PAP. But as far as scans, I have learned from other sisters that this varies from doctor to doctor and what their protocols are. Do you have a follow up soon?

My local dr. doesn't do the scans as often unless absolutely necessary, in my case it was necessary. But my dr. in Cleveland does them 3 months after treatment and then every 6 months. I guess that is a good example of how doctors do things differently.
Unread 01-04-2010, 12:42 AM
Re: ? Re: follow up

Well I guess my question was because I have read where some have a CT every 6 months and others just an exam. Some have expressed concern about all the CT scans.
I have read a wide smattering of approaches in the studies as well.
So I guess I was wondering what the reality is.
I have had abdominal pain since Dec 22, and am hoping to get into my chem/onc this week, having failed at getting in with rad/onc, or gyne/onc.
The pain started rather suddenly and is worse sometimes than others, but is really worrying me. I have read where the main side effects of recurrence of endometrial cancer are vaginal bleeding, pelvic pain, abdominal pain, unexplained weight loss, or cough.
A phone call to my gyne/oncs partner suggested immodium, which constipates, and I took it and it constipated. I never really had diarrhea to begin with, just the pain. I guess I am getting quite afraid that I might have a recurrence, and so am trying to figure out if he will do a CT scan.
It has been 4 months since the last ct scan, so was just kind of curious how often they are done generally.
I had malignant cells in the abdominal wash so know I am at higher risk of abdominal metastasis, so I figured that that would present as abdominal pain.
Anyways, just another sista freaking out.....
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Unread 01-04-2010, 03:02 AM
Re: ? Re: follow up

My gyn/onc does them every 4-6 months. I have not questioned him on it until recently... All have been clear since surgery and the cost is quite prohibitive ( I pay on avg. approx 12-1500 each time). I had heard each one is equivalent to 3 yrs of sunshine, so I joked with him that he was getting in the radiation whether i had taken it or not. I think my doctor is doing them more often since I have not had any treatment other than surgery and I also had the cells in the wash.
The only other thing I would add is if you would feel more comfortable getting one, it never hurts to ask. The pain should not be ignored. I would definitely get checked out.. Something else could be going on totally unrelated to cancer or possibly a bowel obstruction from the radiation.
Unread 01-04-2010, 04:35 AM
Re: ? Re: follow up

The gyn/onc told me that I don't get a CT-scan at all, unless there are reasons to do them. She also tells me each time that if I am worried, or if there are symptoms that may point in a certain direction, she will do other tests than the regular pap and HPV test. Goal for the both of us is that I am reassured when I leave her office, or at least know what is going on.

Seems to me that you need some reassurance. Hope you get it, soon, too!
Unread 01-04-2010, 09:16 AM
Re: ? Re: follow up

I have them annually unless I have symptoms~~~ as I recently did. THEN they will do additional scans. I was on a clinical trial drug so they make me have a scan annually so they can configure the numbers etc...which my Drs prescribe. This latest MRI was for them AND because I had hip pain. Two birds with one stone~~~~
I agree~~~ It seem to depend on one's DR and how advanced their cancer was before treatments.
Unread 01-04-2010, 04:51 PM
Re: ? Re: follow up

After surgery, I was seen once every 3 months. The dr did a pap smear, pelvic exam and a rectal exam. I had a CT scan before surgery and didn't have another until the reoccurence 2 years later.

I'm waiting to see what the schedule is going to be now.

Unread 01-04-2010, 08:44 PM
Re: ? Re: follow up

Hi Janet!

I, too have suffered from abdominal pain, but I'm attributing mine to an umbilical hernia which has grown. I guess I did too much too quickly after surgery. It occurs frequently and I even get chills and run a low grade fever.

I'm going to have a surgical repair so I hope that helps the situation.

My doctor schedules a chest, pelvic, and abdominal CT with contrast every three months. I, too am worried about all of the radiation and am wondering who I can ask about the amount the machine produces.
She said that I can drop out of the study and just get them every 6 months to a year. I'm seriously considering that.

If your last CT scan came back ok, and you are a grade one, it doesn't seem that a recurrance could have happened that quickly. It probably wouldn't hurt to get it checked out, though.

Take care and keep us posted.

Unread 01-04-2010, 09:29 PM
Re: ? Re: follow up

Hi Jan
Looks like we are the same Stage/grade, seems like on this forum it is always good to see someone in a similar situation.
Not sure why that is....

What was your chemo, radiation treatment?

I am seeing my doc tomorrow, but I figure I have sorted out what is wrong.
I have radiation enteritis, at least from all the reading I have done is what it sounds like.
Sounds like I need to stop eating to make this pain go away. Its like Crohns disease, or ulcerative colitis.

I sure wish my rad/onc had told me about the full bladder thing before I had been on radiation for 2 weeks.

I WILL keep you posted
Unread 01-04-2010, 09:34 PM
Re: ? Re: follow up

Hi Lyn
If you don't mind me asking, how did your recurrence get found?
You and I did radiation at the same time.


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