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Should I refuse HRT (Endometriosis) Should I refuse HRT (Endometriosis)

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Unread 03-08-2010, 11:19 PM
Should I refuse HRT (Endometriosis)

I would rather take HRT's because your body needs estrogen but if they are bad for endometriosis why would my Gyn give them to me? He believes he got all of my endo last year so doesn't think it would be a problem ,what if he is wrong?. So now I am not sure what to do. Will talk to my GP and see what he thinks. Anybody out there have endo and did go on hormone replacement, I would like your feed back. Thanks
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Unread 03-11-2010, 02:49 PM
Re: Should I refuse HRT (Endometriosis)

I have the same question as well. Just had my 2 week post op yesterday and they gave me two samples of estrogen cream... haven't tried it yet. Worried about flare ups. Any information would be very helpful.
Unread 03-11-2010, 06:24 PM
Re: Should I refuse HRT (Endometriosis)

Sevyjane, if you end up finding more info on this please post!
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Unread 03-12-2010, 09:28 AM
Re: Should I refuse HRT (Endometriosis)

My dr told me to hold off on the estrogen patch she'd already prescribed because my endo was so bad! I want the estrogen if my body needs it-but don't know where to go from here!
Unread 03-12-2010, 04:59 PM
Re: Should I refuse HRT (Endometriosis)

I lasted a little over 10 weeks without ERT. I have now been using the Climara patch for 2 years. So far no big problems. My mom also had endo and a TAH/BSO and used estrogen only for 15 years without any problems. It really depends on the person etc.

Good luck to all of you!
Unread 03-12-2010, 05:29 PM
Re: Should I refuse HRT (Endometriosis)


Very good question! And guess what? You could end up with 101 different answers! Even from medical professionals!

So, here is my opinion based on my own research, situation, and doctors.

First, you should know that no two of us will have the exact same set of circumstances so we won't make the same decision. Even if we do make the same decision with the exact same set of circumstances, we likely would not end up with the same outcome.

Second, avoiding ERT may not prevent future endometriosis issues. There are women who have no ovaries and do not use any form of ERT who still continue to have issues with endometriosis. For one, there are a variety of ways for estrogen to be introduced to the body. Fat cells can produce some estrogen and some women's bodies are going to be better at this that others. Our bodies can also continue to make estrogen by converting dietary cholesterol to progesterone, then to testosterone and then on to estrogen. Some women will have issues with plant estrogens such as what is found in soy and yams or black cohosh. If there is any endometriosis remaining, any estrogen could be an issue. Oh, and guess what? Endometriosis itself has been known to create its own supply of estrogen, no ERT or ovaries needed!

When making the decision about hormones, my GYN and I decided that at my age, keeping my ovaries was best for me. The benefit of my own hormones was better than the risks of future endometriosis issues--and we made this decision knowing endometriosis was going to be left on my bowel walls. Several years after my hysterectomy, I did finally travel to an endo specialist to take care of that endo. Again, it was determined that keeping my ovaries and thus my own hormones was better for me than either a BSO with HRT or a BSO without HRT. We made the decision based on my age, over all health, family health history, and more.

Of course, this is not the right decision for everyone. For you specifically, keeping the ovaries was determined to not be the right choice. But any HRT you use will provide you with far less estrogen than what my own ovaries are producing!

I would encourage you to talk to your GP as you plan to do. I did talk mine and she agrees with the decisions that have been made regarding my ovaries. I would also encourage you to talk to a doctor who is knowledgeable regarding hormones and endometriosis.

For those of us with endometriosis, estrogen definitely has a negative connotation many don't deal with! However, estrogen can still be important for our overall health. Thus, we have to carefully weigh our pros and cons to determine if the benefits of estrogen will outweigh the risks of endometriosis. Each woman also has to consider the surgical menopause symptoms she is experiencing. While some women find they experience little or no surgical menopause issues, others have horrible ones that affect their every day lives.

One thing to keep in mind if you do choose to use HRT. Using some type of progesterone along with any estrogen could be the right choice. The progesterone could hopefully keep any endo at bay while still allowing you to use the ERT.

I wish you all the best as you determine what is right for you! I don't know your overall health situation or your family health history so I can't tell you what is right for you. But I can share that as long as possible, I plan to keep my ovaries, even with stage IV endometriosis. If and when I have to have a BSO, the chances are higher that I will use HRT than not! I hope this helps!

Unread 03-13-2010, 05:13 AM
Re: Should I refuse HRT (Endometriosis)

I lasted 2 months after my full hysterecthmy feb 9th 2009 coundnt sleep because the sweats were so bad, and i was flying to florida in may thought might drown on plane lol so went on briil have put bit of weight on now so wondering when to come offf but scared those bad sweats will come back but dont want to put to much weight on ? devil or deep blue sea?
Unread 03-25-2010, 08:33 PM
Re: Should I refuse HRT (Endometriosis)

I have severe endo that required reconstructive surgery of the abdominal wall and bowel when I had my uterus removed. Three weeks ago I had to have my ovaries removed because the endo and cysts adhered the right ovary to the abdominal wall. I talked to my doctor extensively about HRT. She recommended a really low dose Estradiol pill. She said it would help keep the menopause symptoms at bay and give my body what it needed for my bones. I filled the script but was hesitant. I didn't have any hot flashes, but noticed myself getting "********. I talked to my doc and she said I could take the HRT every other day just to help with mood. I'm still not sure how this is going to effect the endo. I am going to go see an endocrinologist because my ovaries showed signs of PCOS. I am hoping they can help me get things in balance. Keep an open dialog with your doctor. If you do HRT just make sure it's a very low dose. Like the lady above says, we usually have an excess of estrogen in our bodies. Try what feels right. Adjust things as you go. Good luck! I do know what you are going through.
Unread 03-27-2010, 09:09 PM
Re: Should I refuse HRT (Endometriosis)

thanks guys. i'm a bit nervous to go for my surgery on tuesday but I think it's just because he's finally taking my last bit out and not knowing what reactions I will have after.
Unread 04-06-2010, 12:40 PM
Re: Should I refuse HRT (Endometriosis)

I am right there with everyone...The decision stinks....
I don't seem to respond well to hormones anyways ie when I was on lupron my endo got worse instead of better. I waited 3 months w/out hormones but was convinced that my body needs them bc I am only 37. I feel terrible being on them. I have lyme disease and my symptoms were doing ok but now introducing the hormones my whole body seems to be falling apart. I am also having a lot of lower pain which concerns me that the endo is growing back on the bowel, intestines bladder etc. I have been on the hormones about 6-8 weeks and am giving it one more month...frankly right now I am feeling this is NOT worth it but I don't know what the long term affects will be....any ideas?? thoughts??

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