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Advanced Endometrial Hyperplasia Advanced Endometrial Hyperplasia

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Unread 03-21-2010, 05:54 PM
Advanced Endometrial Hyperplasia

So, my doctor did my D&C back in February due to me bleeding since December 2009.

I have had 4 abnormal pap smears, two cryosurgeries and a LEEP procedure over the years. I hadn't had a pap in nearly 10 at that point.

She did a radical TAH/BSO on Wednesday.

She said that the ovaries didn't look suspicious on exam, but that she wants to wait until the path report comes back to be sure. She said that the cervix looked "crappy". No pap was done. She wants to see what the cervix path looks like too.

She said that this form of hyperplasia is the highest grade that she's ever seen and that the pathologist suggested that the cells were subject to change inevitably.

I'm scared. I've got the worst case scenario disease at the moment and feel like I'm on an island alone. Nobody understands. Nobody wants to talk about it. My family just looks at me like I'm crazy for talking about it.

My husband didn't take off work for my surgery/post op and so I sit here alone, in pain, tired and scared thinking about this.

Does anyone know what the significance of these things together are? Does a bad pap from years ago/cryo/LEEP go hand in hand with this type of dysplasia? Is there a correlation to the ovaries that maybe we don't see yet?

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Unread 03-22-2010, 02:41 AM
Re: Advanced Endometrial Hyperplasia

I am so sorry that you are facing this. I don't have any insight into your situation, but others will be along soon that have dealt with cervical issues.
I just wanted you to know that it is sometimes common that people will not want to talk about this. I have found that the word Cancer scares people. They don't know what to say, so they say nothing. Even my own mother (who had two bouts with breast cancer) hardly talks to me about my issues with the disease. However, you may have caught yours early enough that the surgery will take care of things. You will still have to be vigilant in your check ups.
I hope you get some support at home. This is your time to recuperate and relax.
Unread 03-22-2010, 05:08 PM
Re: Advanced Endometrial Hyperplasia

It's my understanding that abnormal paps are usually unrelated to endo cancer. I had one abnormal pap ten years ago that was treated with cryotherapy but was fine until my endo biopsy came back as complex hyperplasia with atypia.

It's important to remember that hyperplasia is NOT cancer. It *can* turn into cancer but it doesn't always. If your final path comes back as hyperplasia, then you may not need any further treatment for it unless your cervical path comes back with something else. Even if it doesn't, at low stages of endo cancer, hysterectomy is usually all the treatment that is recommended. This is my situation - my biopsy came back with hyperplasia, the D&C one week later came back as cancer, after surgery less than a month later my path came back as Stage 1A, and I do not need any further treatment unless it comes back, so I have checkups every six months with my gyn or my gyn-onc. I only had a total hysterectomy/BSO as opposed to a radical, too.

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