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Huge fibroids Huge fibroids

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Unread 03-24-2010, 03:20 PM
Huge fibroids

Hi everyone,
I am so glad I found this site, you have no idea!! I am 47 years old, no kids (but that is ok, I never really wanted them). About 4 years ago my OB/GYN told me that I had an extremely enlarged uterus, due to fibroids. He strongly suggested a hyst. I was TERRIFIED, I had NEVER had surgery before!! I had never had excessive bleeding, and really had not noticed anything other than lower back pain and a feeling of fullness all the time. Over time my fibroids grew, and I also developed an umbillical hernia. My stomach juts out to the point that I appear to be 7 months pregnant, I have acid reflux issues, lower back pain, and I get gas pains that are sometimes so bad that I can't function for an hour at a time, and are only relieved by drinking a carbonated beverage.....and there is almost always a feeling of I have to get up to pee at least once or twice a night because my uterus is on my bladder...

I saw my ob/gyn in October, and my answer was the same...NO to a hyst~!! I was fully prepared to live this way forever, hoping that menopause would help shrink it even just a little....

Well, I have finally found the courage to make an appointment and talk to him about this. My appointment is on April 26. I fully intend to get a second opinion. My husband and I own a small business, and it is just the 2 of us, so the only months that I can have the surgery and take the time out of work will be December/January. I want to be as prepared as possible! I am thinking of getting the hernia fixed at the same time.

This will be my last summer of having a beachball belly at the beach. This will be the last summer that I feel crappy 1/3 or more of the time. This is the last summer I will be laying in bed wondering if it is "safe" to get up...or will I need a soda and a rest before being able to function.....

The one time he told me about the surgery, he told me he would want to take my ovaries. One of my first questions to him would be why.

I am expecting that due to the size of my uterus I will need an abdominal hyst.....what are the chances I can get away with something less invasive?

Has anyone out there had symptoms like mine? And if so, what kind of surgery did you have? What was the recovery like? How much did it hurt? I am still scared but not terrified like I was before (thank you soooo much sisters!!). I think I will actually feel much better when this is all over!
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Unread 03-24-2010, 03:41 PM
Re: Huge fibroids

I am glad you found this site as you will find this site to be a source of wonderful support and encouragement as you go thru your hysterectomy journey.

My situation is similiar in some ways to yours but not exactly the same. I too have a huge fibroid along with multiple smaller ones along with an enlarged uterus which makes me look like I am 4 or 5 months pregnant. I too have to get up every nite at least once if not several times to go pee due to the fibroid pushing on my bladder...I have a big belly, feel back pain at times....I also suffered major excessive bleeding which caused me to be anemic.

Due to the size of my uterus and huge fibroid, I will be having an invasive total abdominal hysterectomy (TAH) of which the plan is to leave my ovaries in but I may lose one due to the fact the fibroid is covering over one of my ovaries.

I never had major surgery or any surgery other than having my wisdom teeth taken I know how scared you are feeling cuz I am feeling the same. However, at the same time after months of suffering and waiting, I am now looking forward to getting it done and over with so that I can move on with my life. My OB GYN has told me that I will feel like a brand new woman without this tumor in me.. I can't wait.

Take advantage of this site and ask will get the support you need.
Unread 03-24-2010, 06:32 PM
Re: Huge fibroids

Hi there. I have at least two very large fibroids - uterus is 4-5 months in size. My doctor told me abdominal is the only way to go due to the size. I've had abdominal surgery 20 years ago (gallbladder) so I do know it will be very slow going the first week or two. Especially being 20 years older!! You'll do fine and from what everyone says here, you'll feel so much better than you do now!
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Unread 03-24-2010, 10:54 PM
Re: Huge fibroids

Welcome, glad you found this site. I just had my TAH last week. I had 2 fibroids, enlarged uterus the size of 2 month pregnancy and adenomyosis which is very painful. I had a previous c-section so I did have some frame of reference on what to expect. I'm still recovering as its been only been 5 days so far, but my quality of life is so much better. I have the pain from the surgery itself, not the pain of what the fibroids/adenomyosis was doing to me. I was losing 6 days a month of work, had to go on FMLA to make sure I could keep my job. I did keep my ovaries because they looked ok, but was ok with losing them if it was needed. With all your issues, you will probably feel much better once you have surgery. I was expecting the recovery to be horrendous, which it isn't. In fact, its easier on me now at 44 than when I was 26 having a c-section. I'm very happy I had my surgery. Please check out this site and ask lots of questions. These ladies here are terrific and I'm so glad I found this site. Good luck to you.
Unread 03-25-2010, 06:37 AM
Re: Huge fibroids

I too thought being an old woman with belly full of tumours was silly, eventually. I hoped for shrinkage after menopause but they kept growing.

Ask your doc about gnrh jabs. I had those and they shrank enough for a LAVH, just. Also the big one degenerated - soooo painful I needed 6 Weeks off work to get through it. I took more pain meds then than after the op!

I'm now 2 weeks post op, having the sweats bit like menopause, but maybe more like after having given birth. Hope my hair isn't going to come out in clumps!

I am focussing on a smaller belly, no pain, no heavy tum, no bleeding and getting rid of the Lady Gagas (she had beige big granny pants on at Glastonbury last summer!)

The post op threads for your surgery week are the best, helps you realise we all go through similar stages and not to be too alarmed. It's a big op.

Take care
Unread 03-25-2010, 06:47 AM
Re: Huge fibroids

I've suffered for 2 years with undiagnosed iron deficiency anemia due to multiple large fibroids. I just had my hysterectomy 15 days ago and I feel great! My uterus was the size of a 4 - 5 month pregnancy. I was up every two hours in the night to pee, acid reflux all the time and very heavy periods. My surgery was done laparoscopic but it should have been abdominal. I was up and walking 6 hours after surgery, and was never on any pain medication aside from 3 doses of toradol (motrin) in the hosptial. I now wake up ONCE in the night to pee and it's finally worth the trip ... not just a tinkle LOL I've got some tugging here and there on the inside but otherwise ... I feel great. I do get tired easily but I've found that going to bed an hour or two earlier than normal solves my problem.

After suffering for 2 years with my bleeding and undiagnosed anemia, I CAN say I feel like a new woman and I'm not even back to my normal routine yet. It's just so nice to not live in the bathroom and to eat what I want without fear of what will happen later.

I can't imagine living the rest of my life with the symptoms I had. =( I'd highly recommend that you do something to make your life more enjoyable!
Unread 03-25-2010, 01:44 PM
Re: Huge fibroids

I was diagnosed with a large fibroid about 5-6 years ago and I kept putting off any treatment hoping I could make it to menopause. For a while, my fibroid was ok but the last year and a half has been hell. My fibroid continued to grow and caused me to be severely anemic. I ended up with a heart murmur because of the anemia! Luckily my heart is fine and all was taken care of but I just can't believe how much I suffered due to my fibroid.

Finally the decision just couldn't be put off anymore and I decided to have a hysterectomy. I was very emotional and it was difficult but now that I'm 3 weeks post-op I know it was the right decision.

I had an enlarged uterus, about the size of a 5 month pregnancy and my doctor said for me an abdominal hysterectomy was really the best choice.

In my case, I really haven't dealt with a lot of pain from the surgery. I took the heavy duty pain pills for the first 5 days and I was only taking one pill a day plus one motrin. I've read a lot of posts about swelly belly and such and yes I am swollen but my stomach is no bigger (it's actually smaller!!) than before surgery. That really was a big fibroid.

I am feeling a better every day and I'm looking forward to being 100% and not having to deal with the issues of the huge fibroid.

I wish all of you who are waiting surgery all the best. I'm sure your quality of life will be much better. Just try to stay positive!
Unread 03-25-2010, 01:47 PM
Re: Huge fibroids

Thank you so much ladies!! It is so good to know I'm not alone. Right now my lower back is KILLING me, I had to get some potting soil for starting tomatos and squash, and I moved wrong. I think getting that weight out of my belly will do a world of good in that regard!

I'm really scared of the stupid stuff. The thought of the iv literally gives me nightmares, so I think I will ask for a novacaine jab so I don't feel it as much....

The bedroom is upstairs so I am wondering how and where to set up a bed downstairs...

I have no kids and my husband is fairly self sufficient, he already does the shopping and the laundry, so in that way I am really really lucky, but I worry about my animals.

I worry about not being able to move around without pain during recovery.....

Just dumb stuff really!!!

Thank you SO MUCH for all the helpful posts and information!!
Unread 03-25-2010, 03:22 PM
Re: Huge fibroids

Originally Posted by craftychica View Post
I had an enlarged uterus, about the size of a 5 month pregnancy and my doctor said for me an abdominal hysterectomy was really the best choice.

II've read a lot of posts about swelly belly and such and yes I am swollen but my stomach is no bigger (it's actually smaller!!) than before surgery. That really was a big fibroid.

I am feeling a better every day and I'm looking forward to being 100% and not having to deal with the issues of the huge fibroid.

I wish all of you who are waiting surgery all the best. I'm sure your quality of life will be much better. Just try to stay positive!
Thanks for sharing your experience as your ex-fibroid situation sounds like my fibroid situation currently and so I was encouraged to read your successful experience.
Unread 03-25-2010, 04:01 PM
Re: Huge fibroids

I second that! Thank you, craftychica. Very encouraging post for us all!

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