Endometrial Cancer: low grade endometrial stromal tumor | HysterSisters
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low grade endometrial stromal tumor low grade endometrial stromal tumor

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Unread 04-10-2010, 03:19 PM
low grade endometrial stromal tumor

WOW! I was feeling fine. no symptoms, then had a prolonged period with HUGE clots. Saw my ob/gyn had bx which questioned low grade endometrial stromal tumor. Was referred to Oncology, and within 3 weeks had a TAHBSO, mestenteric and aortic lymphnodectomies, omentecomy, exp lap. As of today 7 days post op feeling good but still waiting for final path report. It seems the "nipple sized" tumor burst during surgery and microscopic cells dispursed throughout my utuerus. I've got a good feeling about my prognosis and this site helps to build my faith and support dailt. thank you ladies.
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Unread 04-10-2010, 08:53 PM
Re: low grade endometrial stromal tumor

praying for you that all is well.
Unread 04-10-2010, 11:37 PM
Re: low grade endometrial stromal tumor

You should be hearing soon
I wish you the very best results..... at least the most benign.
Too bad you had so much surgery, but you seem to have done very well

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Unread 04-11-2010, 08:25 AM
Re: low grade endometrial stromal tumor

(((Mocush))) Looks like you've gone through a lot. I hope your healing goes very well. Keep that positive attitude as it can help too.
Pls keep us updated as you're feeling up to it.
Unread 07-16-2010, 11:31 PM
Re: low grade endometrial stromal tumor

i have just been diagnosed with the same thing. I had a radical hysterectomy 2 weeks ago, and looking for support. what happened after? do they think it will grow back? this is my biggest concern/worry right now. I have to go in every 3 months for 3 years to get checked out. kind of nerve racking for me. I am still post-op, and my hormones are all out of whack. but you are the only person on this website that seems to have the same thing. I would love to chat some more/ get more info from you if you dont mind? Thanks!

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