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Unread 05-15-2010, 11:22 AM

I am not new on here but it has been several months since my last visit here. To sum things up last year I was diagnosed with Adenomyosis thru laproscopy. no endometriosis found. I have been taken birth control pills to stop cycle to relieve symptoms, all of which have only temporarily relieved my symptoms. So I am wondering if anyone else has had only adenomyosis and had hysterecomy but kept ovaries and cervix. If so were there regrets or signs of adeno coming back or endo starting to form?
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Unread 05-15-2010, 12:10 PM
Re: Adenomyosis

That was exactly what I had. Adenomyosis with no endometriosis. I tried Yaz for a few months but it didn't really do anything. My periods were still really heavy and my uterus was still growing. I also had really bad cramps that were not going away. Finally after waiting for 1.5yrs for it to get better I'd had enough. I'm 38 so the Dr. opted to keep my ovaries but we did remove both the uterus and cervix. I've had abnormal paps in the past and figured it would just leave me one less thing to worry about. It was my understanding that the only way to get rid of adenomyosis for good was a hysterectomy or menopause. Menopause was way to far out for me to deal with it anymore. I had a LAVH on April 21st which has been great. No issues and as of yesterday I'm back on the treadmill able to walki 1 mile. Good luck with whatever you decide.
Unread 05-15-2010, 12:32 PM
Re: Adenomyosis

Thank you for your reply! It is also my understanding that the only "cure" for adenomyosis is hyst or menopause. I am 28 years old and do not want to be in pain that long and I am done having children. I do want to keep my cervix though since it is my main source of pleasure but I also know that is part of the uterus and I dont know if it is affected by adeno. If this is to personal of a question than no need to answer but have you had sex yet and noticed difference in pleasure?
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Unread 05-15-2010, 12:41 PM
Re: Adenomyosis

No worries. The whole point of this website is to get answers on questions so you can make a very educated decision. No I have not had sex yet but I'm only at 3 weeks post op. I wont get cleared for that until 6 to 8 weeks. I am a little worried about that but to be honest after talking to many people on this subject that have had the same parts removed their sex lives haven't really changed. You will read posts that say it sucks but remember we all have different experiences and you have youth on your side. Even at 38 I believe that the reason I've had very little complications is that I wasn't an extreme case as you are not and my body is healing well. If you don't have a history of bad paps you don't have to take the cervix. It's totally up to you.
Unread 05-15-2010, 01:49 PM
Re: Adenomyosis

sorry to ask but what is Adenomyosis
Unread 05-15-2010, 02:02 PM
Re: Adenomyosis

The abnormally located endometrial tissue, like the normal endometrium, tends to bleed with the menses. The blood and debris may accumulate in these misplaced glands creating small fluid collections inside the uterine wall. This penetrating and functioning endometrial tissue may lead to swelling; the uterus may become larger and globular.
Unread 05-15-2010, 02:22 PM
Re: Adenomyosis

Hi Kels

Marsss is right....adeno is bascically endometreosis that stays with the uterine walls and causes the same symptoms as endo...unfortunately I dont come across many posts on this site about adeno but I have learned about a lot of things on this site!! I have a appt next week with doc to discuss when i will have hyster and which hyster is best..i am hoping to keep cervix but not sure if i will get to being that the cervix is the lower part of uterus.

If any1 reads this that has had cervix removed whether cuz of adeno or not please tell me if they lost sexual pleasure afterwards. I am very worried about not having the big "O" after hysterectomy with removal of cervix...i am opting to keep ovaries so i think i should still have desire...not really sure though???
Unread 05-15-2010, 04:45 PM
Re: Adenomyosis

hey there,,, i had edeno..also large uterus and friboilds.. and yes i had my cervex removed also...its only been 8 weeks sence my sugery and we were ok'd for sex at 6.5 weeks..
the big "O" is still reached,, its just differnt,,,sex after hyst with crevex for me is ok.. im still dont get that deep muscular contarctions but you still get the "O"..... my thing is i am trying not to over think it...
oh yeah,,, i also still have my overies.
Unread 05-16-2010, 10:39 AM
Re: Adenomyosis

Thank You All for your posts! My appt with doc is Friday...I will keep you all posted on which hyst we decide and the date.
Unread 05-16-2010, 11:19 AM
Re: Adenomyosis

8 months post op- for TAH and 4 days post op for incisional hernia that developed. Sex IS NOT THE Same. Yes I "o's" but the great "O"'s are gone and I feel a huge part of me has been lost. I would tell any woman to think long and hard and avoid at all costs a hysterectomy. It is a terrible ordeal. If you HAVE to do it do it laproscopically.

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