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Oct 22 Surgery Oct 22 Surgery

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Unread 10-16-2001, 08:24 PM
Oct 22 Surgery

I'm so glad I found this site...I've already learned so much from the ladies here...but this is my first post. I'm scheduled for surgery (TAH, hoping to leave ovaries in, if possible) on Monday (Oct 22) and figured I'd be brave...somehow it's not quite working out as well as I'd hoped though! I've been bugging military dr's for almost a year and a half about really painful heavy w/alot of clotting, irregular cycles that last anywhere from 10-15 days with a pain around right ovary that goes around to my back, fatigue, frequent urination (especially at night, waking me up alot), constipation, bloating, more and more lately I start feeling nauseous / and abdomen gets really hard after eating, even if I'm only having a glass of water.

I never seem to get the same dr. more than one time and the last time I had an ultrasound done (about 2 months ago), it literally hurt and the tech said it was probably because of a full bladder, but she didn't find anything abnormal...though I've had them before and this was the first time it hurt. I had a dr. that recently decided to have a CT Scan done...the results came back as being highly suspicious for malignancy, but a biopsy came back negative. The Ob/Gyn said that my uterus was extremely enlarged-(sits midway between belly button and breasts) and feels it's either adenomyosis or still may be malignant. I'm a little worried because I know several people who had biopsies done at this lab which came back negative and later found out it was cancer. (I don't have any uterine/ovarian cancer in family, but have alot of breast/colon) What does the CT show that would suggest malignancy? How accurate are CT Scans? Also...had been given Megestrol 40 mg (in case of malignancy) and period was really late, but it started about 2 weeks ago and now doesn't seem to want to stop!! Has anyone here had to have surgery during their cycle? I really appreciate all the help you ladies have been and am really thankful this site exists. Thanks for everything.
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Unread 10-16-2001, 10:36 PM
Oct 22 Surgery

Hello Megan, I don't know anything about uterine cancer or malignancy but there are a couple of girls who do and I am sure they will be along soon to help. I just wanted to welcome you and I am so glad that you found us . Please dont ever forget we have all been through some kind of cancer and are here to help you with your fears. Take good care and love always to you x x
Unread 10-17-2001, 12:49 AM
Oct 22 Surgery


Thanks for getting back to me so fast and for the words of encouragement. It really means alot. I forgot to mention earlier that the dr. is concerned it could also be ovarian cancer and mentioned the right ovary wasn't showing up on the CT scan (?) (which is the side I've been having pain on). I also found out when talking to the tech about the pre-op appt, they decided to have a gyn-onc attend. I think it was just a shock to me that they think it could still be cancer after the biopsy was normal. I haven't had any info from the hospital about the hysterectomy...other than it'll definitely be abdominal, which is another reason it was so great to find this site. Thanks again for the support.
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Unread 10-17-2001, 05:04 AM
Oct 22 Surgery

I didn't have uterine cancer, but I did have the fears! I think that having surgery would be good for you, even though the biopsy came back negative, but if you are not comfortable with that, then you could get a second opinion. A lot of women do that and most of them are pleased that they did. Two heads are better than one! Please try to put your fears to the side and focus on getting yourself well. It's amazing how strong we can be when faced with something like this. We are all here for you, so please know that you have lots of support!
Pertaining to surgery during your cycle; no biggie. The doc says that there is just a lot more blood but it won't put surgery off. Some women could never schedule surgery if they had to wait to stop bleeding.
Take care!!
Unread 10-17-2001, 07:11 AM
Oct 22 Surgery

Hi Megan!

Welcome to Hystersisters! I'm so glad you found this site! It's wonderful isn't it? I didn't find it until I was way post op but while I was going through my treatments. I'm so happy I did, the ladies here saved my sanity more than once.

I'm very glad your Dr is opting to have a Gyn Oncologist present, they may not be needed and I hope they won't be but I'm very glad to hear they will be.

Its so understandable to be scared when you hear Cancer mentioned. Please take it one step at a time though, battle each hurdle once it presents itself. Cancer can and IS beat all the time!

I had my surgery for Ovarian cancer and while I did have to undergo chemotherapy treatments, I am now (as of today) 18 months post op and doing wonderfully!

Hang in there, if there is anything we can help you with, answer any questions you may have, please feel free to post, PM or email. Let us know how everything turns out and we'll all be saying an extra prayer that everything turns out okay with nothing to worry about.


Unread 10-17-2001, 08:29 AM
Oct 22 Surgery

Hi Megan,
Just wanted to add my thoughts and prayers for your surgery Monday!!

Its very hard not to let our minds go crazy with thinking the worst, but hang in there until all the results are in and you know for sure what you are dealing with! I agree that I think its really great that you will have an onc. attending your surgery. They are the specialists, and when there is even the slightest chance of cancer, thats who you want there for sure.

My incision was abdominal as well, and was a vertical cut, and although the work inside is the same, the healing of the incision was not nearly as bad as I though it would be. Hang there and
as the other ladies have said, we will be here for ya!
Unread 10-17-2001, 10:48 AM
Oct 22 Surgery

Hi Megan Just wanted to say I read your post and my thoughts and
prayers will be with you on Monday. I was glad to hear a gyn onc would be
standing by. That's a good idea whenever cancer is suspected. Waiting is
the pits. This weekend relax as best you can. The women on this board are
just the best. And will be here for you whenever you need them. Let us
know how it goes. oxoxoxokarenann ovcaIII (hopefully just finished
with chemo)

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