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Cancer Diagnosis Cancer Diagnosis

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Unread 06-17-2010, 12:02 PM
Cancer Diagnosis

My story is just beginning. Had not had a period since early 2008, started on HRT in August of 2008 due to menopause symptoms that were a bit crippling.

In Dec 2009 started to have some spotting, like old brown blood. Did not think too much of this as I had heard that this can happen. Problem was is continued in Jan and Feb and then I had a full blown regular period the end of March.

Saw my doc and she scheduled a transvaginal us which was abnormal, then we proceeded onto a endo biopsy which came back positive for adenocarcinoma. At this point I was referred onto a gyn for hysterectomy. All along both of these docs did not believe I would really have the cancer.

Had my hyst on June 8, 2010 and received the path report yesterday. Unfortunately, did show cancer Stage 1b grade 2. Now the problem seems to be that the pathologists cannot decide whether they contaminated one of my fallopian tubes during their slide prep or if the cancer had actually spread there which would change the staging considerably if this is the case.

I am now being referred on to a gyn oncologist to deteremine if further follow up is going to be needed.

A little scared, A little sad about all of this. I have worked in the medical field for over 25 years and have seen some remarkable fights by patients with cancer but it does take its toll. Praying that God takes care of me and guides me through the next stages of treatment.
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Unread 06-17-2010, 12:42 PM
Re: Cancer Diagnosis

Hi. My story is similar - prior to surgery, the docs told me that my biopsies were abnormal, but not cancerous. I had my hysterectomy in late April, and the pathology showed that I had endometrial cancer. The surgeon referred me to a gyn oncologist who said that I didn't require radiation, due to the size of the tumor, and that it hadn't spread.

In my case, the surgeon and the gyn oncologist gave me the same opinion about radiation. I felt better after seeing the oncologist since it is her specialty more than the surgeon's.

Although I didn't need radiation, hearing that diagnosis is still a shock. Sometimes I can't quite believe that it really happened.

Good luck!
Unread 06-17-2010, 01:55 PM
Re: Cancer Diagnosis

Welcome to where none of us want to be, but all of us are blessed is here.

My journey was with Cervical Cancer, so I can't really offer any insight to your dx (I'm assuming its uterine?) but I know someone will be along that can.

When will you be meeting with your gyn/onco?
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Unread 06-17-2010, 02:16 PM
Re: Cancer Diagnosis

I am sorry that you need to be here, but there is a wealth of information that you can tap into. I am not sure what you mean by the fallopian tube being contaminated by the slide prep. Did they do a frozen section during surgery and possibly touch the area? Perhaps if you can get another opinion on the slides you will have a better idea of what to do, and how to proceed.
Unread 06-17-2010, 10:44 PM
Re: Cancer Diagnosis

Welcome to our little club. I'm new here myself but I feel lucky to have found this place.

My story is similar too. I had a hysterectomy for heavy bleeding. Prior to that, my endometrial biopsy came back clean - no hint of cancer.

After the hyster, the path report showed cancer in both the uterus and ovary with glandular, pre-cancerous cells in the cervix. At that point they weren't sure if they had cross-contaminated samples. My gyn thought there might not actually be cancer in the ovary.

She referred me to a gyn-oncologist. He had another pathologist review my slides and determined there was endometrioid adenocarcinoma in both uterus and ovary. Because I had my original hyster laparoscopically, the organs were chopped up and pulverized, so they'll never be able to determine for sure where it started.

I then had cancer staging surgery and they found more cancer in the fatty cells below the uterus. My gyn-onc believes it started in the uterus, so my diagnosis is uterine cancer, Stage IIIA, grade 1. If it started in the ovary, it would be ovarian cancer Stage II. He said he would recommend the same treatment either way so it doesn't really matter what we call it.

I'm starting chemo next week and will probably have radiation later. He says he wants to treat it aggressively and he thinks I'll have a full recovery.

When I was where you are - after hyster, seeing gyn-onc for the first time - he said we could choose to do nothing and just keep following up with frequent paps and other tests. But he recommended staging surgery to be sure. I'm glad I followed his advice since they did find my cancer had spread more than they expected.

Whatever your gyn-onc recommends - more surgery or just follow up with frequent checkups - remember you have the right to get a second opinion before you decide. I did a lot of research online and felt comfortable following my gyn-onc's advice.

Good luck with your appointment. Let us know what you find out.
Unread 06-17-2010, 11:52 PM
Re: Cancer Diagnosis

God bless you all for telling me your stories. I don't feel so alone and appreciate hearing what choices you made for yourselfs. It gives me a clearer vision on what to ask and how to go forward for myself.

I can say that tears have come kinda frequently today, looking at my grandson and kids and wondering what the next years will hold.

I don't like waiting for another appointment, want to get going with this but am the mercy of the system. I have good medical insurance but sometimes those consult appointments take awhile to coordinate.

I will probably post again after I see gyn onc.

Really, my heartfelt thanks to everyone that is responding. It helps me very very much.
Unread 06-18-2010, 08:37 AM
Re: Cancer Diagnosis

Yes, welcome to the club nobody wants to be in, but we're glad you found us! There are lots of wonderful ladies here who'll be glad to help you through your journey.

You'll know more after seeing the gyn/onc and getting your battle plan together. Try not to let your emotions get the best of you. Remember, worrying never changed anything.

Pleae keep us posted. We're here 24/7!!

Unread 06-18-2010, 08:37 AM
Re: Cancer Diagnosis

Hi there
Been in a similar boat as you and seem to be sailing a lot better now.
I have also been in the medical field for 35 years and certainly know how it feels now to be on the other side.
I have a similar cancer to yours, mine was found in the lymph nodes AND the pelvic wash.
That was almost a year and a half ago and I am doing pretty well now.
No signs of cancer at this point.

Cancer can be beaten, even in the fallopian tubes, its just unfortunately that you may need further treatment, if that is the case.
Not as bad as it sounds, and many of us here have been through chemo/ and or Radiation.
Though it sounds terrible at first, it is doable and once over, you can just get on with life.

Unread 06-18-2010, 06:04 PM
Re: Cancer Diagnosis

It's really tough to wrap your head around the "cancer" diagnosis. No matter what stage or grade, it's still the "C" word.
The gals in "this club" are great. Not necessarily a club I wanted to be part of, but here we are together!!
I went through LAVH/BSO on June 4th. Went into surgery knowing that the cells were not good and the GYN was very honest about what he might find in the surgery. He was assisted by a GYN/Oncologist. They came out of surgery feeling that it was a case of hyperplasia with severe atypia. WELL........the pathology report came back with Stage1A, Grade 1 adenocarcinoma. After conversing with friends that are alot futher into this "club", I agreed to go for a 2nd opinion with a very well know GYN/Oncologist in Salt Lake City. I just want to make sure the "boys" are all together on the treatment, etc. So far the drs. that did the surgery say a visit and checkup every 6 months for 5 years will be the course of action.
Anyway, I think we all are in a position of having to trust our health care providers and go for as many opinions as we need for our own peace of mind. A friend put it quite simply...."It's our disease and our body". We are in charge!! The rest is up to God!

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