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Yearly exam and adenocarcinoma cervical cancer Yearly exam and adenocarcinoma cervical cancer

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  #11  
Unread 10-25-2001, 03:59 AM
adenocarcinoma cervica cancer

Jackieh - you said that your surgeon/gynecologist does a pap test at your checkups, but the radiologist even do pap tests. What does that doctor do at your checkups? From what I understand, my gyno will do a scraping of the vaginal wall and cuff to look for more cells. What else do I have to prepare my self for mentally????

What kind of prognosis does your doctor give you, if I may ask? 4 cm is scary!
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  #12  
Unread 10-25-2001, 12:02 PM
adenocarcinoma

Beannie: It's great that they caught it so early with you. My prognosis is EXCELLANT! During my radical TAH I had 26 lymph nodes removed, and 2 were positive. The feeling is that all the cancer was removed, and the radiation "cleaned out" the area to prevent recurrence (the chemo was at the same time, and was used to make the radiation more effective, which is the standard recommendation now). The outcomes that my particular radiation oncologist has had are extremely good. So, my plan is that this episode is over. Healing and wellness are my focus. I have to say, actually, that I don't even like the word "prognosis". With cancer that is a lot of randomness, uncertainty, unexpectedness, beginning with the diagnosis, and continuing on. While the statistics are somewhat useful, I actually tend to ignore them and think about my own healing journey. But that said, the statistical outlook is very good for me.

The radiologist does a pelvic and a physical at each check-up. I get checked every 3 months, so the surgeon does the pap every 6 mos.

Hopefully you won't have to deal with this again. But if you do, my recommendation would be to see a radiation oncologist who specializes in gyn onc, so that they can map out very specific areas. Apparantly there are only about 11 in the entire US who are such specialists. I was extremely fortunate in that one of them is w/in 20 minutes of my home.

Be well.
  #13  
Unread 10-26-2001, 07:52 PM
Another voice in the chorus

I also had Adenocarcinoma-In-Situ (AIS)

I didn't have a pap for 10 years when I woman doctor literarlly forced me to take it. I was sent for a LEEP, at which point the AIS diagnosis was made.

When AIS is found, a cone biopsy is usuallly performed prior to making a final diagnosis and treatment decision. In my case, no more AIS was found in the biopsy.

I scanned PUBMED and found several studies showing that in 10-33% or women who have undergone a cone biopsy with "clean" surgical margins, there is still more AIS further up in the cervical canal. When the margins are not clean, the risk is even higher.

I did not take any chances and underwent a TAH. Which was lucky, because more abnormal cells were indeed found in my cervical canal.

Let's just say I have a horsehoe up my...
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  #14  
Unread 10-27-2001, 05:00 AM
adenocarcinoma cervical cancer

jackieh-thanx for the info. Sometimes I know that I worry too much, but until I get that first check-up under my belt, I think I'll be uneasy about all of this.

You recommended seeing a gynecological oncologist, and I have already looked into that. There are none locally, but in Madison, WI (about 100 miles from my home), the University Hospital has an outstanding staff of gynecological experts, including 2 oncologists. A friend who just beat ovarian cancer had her surgery and treatments there and said wonderful things about everyone there. She's very confident in their abilities.
What's a 100 mile drive when your life is at stake?
  #15  
Unread 10-27-2001, 08:54 AM
adenocarcinoma

Beannie, a 100 miles is nothing. Plus, while you're there you can hang in Madison (I love Madison, did my undergrad there). It's hard not to worry, but cervical cancer is a "nice" cancer, according to my gyn onc. because it generally stays local and doesn't tend to spread to other organs. Plus after 5 yrs. you're considered "just like everyone else"! Something to look forward to. Take care, and be well.
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