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Unread 06-24-2010, 11:56 AM

Hi there - I'm trying to get some perspective on a decision I need to make in the next 4 months. A large cyst was found probably on my left ovary (they can't tell for sure, but can't find that ovary, so I'm assuming it's on it). They say that it looks like there are some solids in it (I have endometriosis, so the assumption was it was from the endo and there was blood in the cyst). I was also having increasingly heavy periods with pain. I assumed that the endometriosis was back and that that was the cause of the cyst. We decided to monitor things and I went on the pill to control my period. Periods are fine now, but the cyst hasn't shrunk - hasn't grown either (it's been about a year) - but it hasn't shrunk, which means my gynae is talking about going in and removing it - which means possible removal of one ovary, possibly both, possibly full hyster if she doesn't like the way things look in there. Since going on the pill, I've been symptom-free, so to me, the idea of having major surgery and cutting things out seems kind of crazy. On the other hand, I have two small children, and if the cyst is a cancerous tumour, am I being irresponsible by hoping for the best and continuing to put off surgery? I'm going to see my naturopath and get her perspective, but wanted to talk to women with experience as well.
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Unread 06-25-2010, 11:47 AM
Re: cyst

Since you have endometriosis, it could be at the root of everything. The cyst could be an endometrioma. On the other hand, it is wise to be careful!

I would suggest seeking a second opinion from an endometriosis specialist. A specialist might have a better idea as to what the problem is and if in fact it is endometriosis before you head into OR. Regardless, if you do need a surgery, a endo specialist should be better able to excise any endometriosis and keep the surgery as less invasive as possible.

Another option could be a gynecologist oncologist. This type of doctor may also have an idea of what might be going on prior to OR and should have exceptional surgical skills for removing whatever the cyst is. There have been several women who were not able to see an endo specialist who have had a successful surgery with a gynecological oncologist.

Either of those doctors may also have some treatment ideas besides surgery depending on what the they feel the cyst might be.

I think you are wise to be asking questions and not rushing into any decision or surgery!

Unread 06-25-2010, 02:16 PM
Re: cyst

I had several cyst removed off both my ovaries in Dec 2008. About 6 -7 months later the pain was back. My cyst grew back. I opted to have them removed when I had my hyst. My doctor told me this group of cysts was different from my last group. But thankfully all path report came back clean.
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Unread 07-01-2010, 11:37 PM
Re: cyst

Ten years ago I had a very large cyst removed. Initially the surgeon felt it could be taken out laproscopically but once they began the surgery they found the cyst was larger than it appeared in pelvic ultrasound. They did abdominal surgery and removed both the cyst and the right ovary. I won't lie it was a tough road for awhile and caused more trama then I'd like to admit, but it was necessary. One big difference I had was the birth controlled appeared to be 'feeding' the cyst and causing it to increase in size very quickly.

I would seek a second opinion.

Best of luck on your journey!
Unread 07-02-2010, 05:25 PM
Re: cyst

I had a cyst removed 2 years ago on my right ovary and an ablation at the same time. The pathology came back endometriosis. The cyst came back again this May even bigger than before and my periods were still very painful. My doctor and I decided to remove the right ovary since I don't want to be doing this every 2 years and I had a TAH also. My pathology just came back today that the uterus had fibroids and adenomyosis. The ovary cyst pathology came back and they needed to send it out to a pathology lab that deals strictly in gynecology. They say it was borderline and need more detail. So I am very glad I had it removed now and did not wait! So good luck on whatever decision you make!!!

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