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I feel so 'wooly' I feel so 'wooly'

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  #1  
Unread 07-29-2010, 07:53 AM
Unhappy - I feel so 'wooly' I feel so 'wooly'

I'm now 7 months post op (reason was endometrosis) my ovaries were left in but I was experiencing menopausal symptoms and pain and after tests my Dr has started me on HRT. I'm 1 month into a course of 2mg per day 'Climival' (oestrogen) and 1 week into a course of 300micrograms/24hours testosterone patches.

My consultant feels that the pain I am experiencing may be a result of either the endometrosis returning or scar tissue build up; either way I'm now on the waiting list to have my ovaries removed and have any necessary scarring/endometrosis lasered away.

My problem until I have this done and until I find the right levels of HRT is that I just feel so 'wrong'

1/ I'm emotional one minute and then emotionless the next
2/ I feel like my brain, mind and nerve endings have been stuffed with novocane soaked cotton wool.
3/ I really cannot be bothered to do anything....my get up and go has got up and gone!

my question is.......is it really necessary to go through more surgery to remove my ovaries? - my consultant said that they are better being removed as it is a cancer risk to leave them in.
and; how long before I start to feel the benefits of the HRT I'm taking? I really am at the end of my tether now and am starting to wish I'd just put up with the pain and horrible periods rather than had the hysterectomy in the first place
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  #2  
Unread 08-04-2010, 12:42 AM
Re: I feel so 'wooly'

Hi

It takes many women up to a year to find the right HRT to help them feel their best. It also takes about 6 weeks to get the full affect of any hormone change or addition. Did your Dr test your free and total testosterone levels before prescribing the testosterone?

Since you aren't convinced that removing your ovaries is the best choice for you, have you considered getting opinions from other Doctors? I would want to know all of my options before making that decision. There are women on this site who have endometriosis and have been able to keep their ovaries.

For your endometriosis concerns, you might want to check out this link to the Endometriosis Support Forum. You will find other women there who will be able to share their experiences with endometriosis after a hysterectomy.


Kay
  #3  
Unread 08-04-2010, 07:31 AM
Re: I feel so 'wooly'

Thanks for the reply

to be honest I'm really not sure what they tested for; I just know that my blood was sent off and I was called back when the results were in.

about going in for more surgery; My Gynaecologist consultant is also an Oncology consultant and he's told me that leaving redundant ovaries in is a cancer risk - Obviously I would like to eliminate any such risk to my future health (more so as ovarian cancer is notoriously difficult to detect) but how much faith should we put in the Dr's decisions?
I have a specialist in both gynaecological and cancer medicine giving me advice on something that I know almost nothing about........am I being stupid to question?

I'm prepared to give the HRT a little longer and see if the cotton wool disappears from my brain, I think perhaps 3 months and then if I'm the same try another type
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  #4  
Unread 08-04-2010, 08:41 AM
Re: I feel so 'wooly'

Are you high risk for ovarian cancer? If not, you might want to take a little time to learn as much as you can, and give your body time to heal and adjust before making your decision.


kay
  #5  
Unread 08-04-2010, 01:39 PM
Re: I feel so 'wooly'



From the perspective of endometriosis, removing healthy ovaries is not necessary. However, if a surgeon is unable to remove all the endometriosis found, then functioning ovaries will provide any remaining endometriosis with plenty of estrogen to thrive.

It sounds like your ovaries ceased to work following your hysterectomy. This can occur because their blood supply is interrupted and sometimes the ovaries are unable to re-establish a new one. However, one thing that can occur in a situation like this is that the ovaries aren't completely "dead" but are spitting and sputtering and thus creating issues with finding a hormonal balance with HRT.

If you are experiencing pain that is believed to be endometriosis, any estrogen replacement you are using can be fueling that endometriosis. Many women with an endometriosis diagnosis who are using HRT use some type of progesterone or progestin along with any estrogen to try to help keep any endometriosis at bay. Have any of your doctors suggested progesterone or progestin?

It can take a lot of patients, time, and trial and error to find the right hormone balance. Each woman will need something a little bit different and things like stress and illness can affect the amount of hormones your body needs.

I would recommend finding a doctor who is specifically knowledgeable regarding endometriosis and see what s/he suggests for you. There may be options besides surgery you can consider or having surgery to excise any endometriosis (with/without an oophorectomy) may be the right option for you. If there are no endometriosis specialists in your area, you might try looking for a reproductive endocrinologist as they often treat women with endometriosis. You may also want to see if you can find a doctor who specifically works with women who are having hormonal issues who may have an understanding of endometriosis.

If you have any doubts, definitely don't head into OR and have a surgery you may later regret!

Wishing you all the best! s
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