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adenocarcenoma in situ adenocarcenoma in situ

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  #1  
Unread 09-04-2010, 10:27 AM
adenocarcenoma in situ

I have had a cone biopsy for adenocarcenoma in situ. I am 53, Every doctor has said, " Hysterectomy" Does anyone else have experience with this? I had a wide cone with negative margins but doctors say it can still return and in worse form? I am having a lapro. Anyone else have this experience? Amila
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  #2  
Unread 09-04-2010, 11:06 AM
Re: adenocarcenoma in situ

Originally my diagnosis was in situ as well and hysterectomy was recommended because yes, the cells can keep mutating and pre-cancer will become cancer if left to its own devices. Then my cone biopsy came back as cancer stage 1b1 and a hysterectomy was inevitable.

I'd talk more with your doc and ask about the effectiveness of repeated cone biopsies as a possible course of treatment. I was told that this staves off the big H for a while, but may not for long. I was also told that eventually there isn't enough cervix to work with and that uterine cells would become involved and that's the end of that. When I was looking at this option before my cancer diagnosis, I was still scared of cancer rooting and festering up into the uterus and then into the tubes and ovaries. Even though it wasn't terribly likely, I still worried.

I'm sorry if I just made you more scared. I'd still talk to the doc about the effectiveness of cone biopsies as treatment and for how long. It might be better to get a hysterectomy over and done with.
  #3  
Unread 09-04-2010, 11:33 AM
Re: adenocarcenoma in situ

Yes, you are probably correct. I don't think I have much cervix left right now to be honest. I just want to make sure I'm not part of the "h" epidemic. And I am so scared. I'm not a surgery kind of person. Thanks for your reply. A
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  #4  
Unread 09-04-2010, 12:05 PM
Re: adenocarcenoma in situ

Ask them to test you for HPV if they haven't already. I am positive as is my oldest friend, but so far she is symptom-free and we're almost precisely the same age.

And I don't think anyone goes into this lightly, so don't feel like you're doing too much research.
  #5  
Unread 09-04-2010, 12:09 PM
Re: adenocarcenoma in situ

I have had high risk HPV on the last two Papp smears (last one in March). Does this make it more likely I would get the Andocarcenoma? I have already been to four drs. including one oncologist and they all recommend "h". Repeated cones are no good when you get older because the ando cells can "hide" as your body changes. That is waht I have been told. I know I need the "hH-just scared! Thanks again. Amila
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