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Re: Complex hyperplasia w/atypia  - New here Re: Complex hyperplasia w/atypia - New here

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  #1  
Unread 10-20-2010, 07:51 PM
Re: Complex hyperplasia w/atypia - New here

Today is my first visit to HysterSisters. So glad I found you all. I am encouraged by the support you all give each other. After a D&C in May (pathology "noncancerous") and removal of ovarian cysts, my periods returned to flood gates from Hell two months after that D &C. I consulted another gynecologist in hopes for an ablation, and he opted for a same-day D&C, and the resulting pathology was "complex hyperplasia with atypia" and the gynecologist explained he was referring me on to a gyne/oncologist. I felt it particularly hopeful that a well-seasoned gynecologist such as he thought it most prudent to refer me to a gyne/oncologist. My consultation with them is on Nov. 10. My fears are there, but I am ever blessed to have caught whatever this is early. I don't know why May's pathology was noncancerous and October's pathology was precancerous - perhaps its like the layers of an onion and second D&C just got closer to the source?

I wish you all the best. I'll keep you all posted on what transpires after Nov. 10.

Groovette
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  #2  
Unread 10-21-2010, 12:42 PM
Re: Complex hyperplasia w/atypia - New here

Groovette,

I'm so sorry you're facing all of this but am very glad you found us!

Kudos to your gyn for referring you to a gyn/onc. They are the experts, and you definitely want the best for your health.

And, kudos to you as well for being proactive with your care. Early detection is our best defense, and it does sound like you've caught things fairly when they are most treatable.

Please keep us posted. Remember, we're here 24/7!


monami
  #3  
Unread 10-21-2010, 02:21 PM
Re: Complex hyperplasia w/atypia - New here

Hi Groovette,
I'm sorry you've had to join us but so glad you found us. You've got a very wise gynocolgist as he referred you to a specialist. As you note, you've caught this very early which bodes very well for a quick and complete cure.
Whenever pre-cancer or possible cancer are mentioned it is very scary and its good your consultation is coming up fast so you'll soon have definite plans to move toward good health again. I'm hoping you have super rapport with the gyn/onc as trust in ones doctors can be so important.
FYI, there seems to be someone around here almost 24/7 so never hesitate to drop in and ask any question, vent or whatever may help you through this. There are many who've gone before you very willing to help anyway they can.
Pls keep us updated.
s
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  #4  
Unread 10-21-2010, 02:31 PM
Re: Complex hyperplasia w/atypia - New here

Thank you very much for the positive reinforcement. I have been reading many of the posts over the last two days and have found lots of comfort as well as very good points to ponder as well as good questions to ask the gyn/onc. This site provides a wealth of information. And I've been "glued." I was telling a woman at work about it, and compared it to the first time I signed into eBay searching for Beatles memoribilia and scanned but a small sampling of thousands of items that kept me up until 2 a.m.!

My hats off to the originators of this website and blog. Thank you for being here for all of us. It is my hope that as I become more educated and experienced, I will be able to share more and help those who join behind me. Gotta pay it forward.

Blessings........

Groovette
  #5  
Unread 10-21-2010, 03:30 PM
Re: Complex hyperplasia w/atypia - New here

Dear Grovette: I understand very well what you are going through. At the end of sept. i went to my gynecologist because i had a pain on my lower right side, when he examined me he send me immediately for a vaginal ultrasound. After the ultrasound was done the nurse told me that I should go to my Dr.'s off. right away. I was worried... When I arrived at the Dr.'s , he was waiting for me with the ultrasound results.He told me he had set an appointment with an oncologist,and I should be there in an hour. I went, and he told me the sonogram showed an abnormal mass and 2 tumors.Then he asked me if I had time for a biopsy ,I said YES, what ever you need to do...The biopsy was very painful. 4 days later he gave me the results, and they were negative. I was so happy. He said I need to do a D&C, a Hysterescopy, to remove the tumors. I had my first surgery on SEPT.8. After my surgery, 4days later he called me and told me that the Pathological report showed that I had cancer of the endometrium, and that I needed a radical hysterectomy. I almost passed out!!!!! I had my surgery on SEPT 22 ,it has been 4 weeks ...I went for my post-op yesterday, he said I am healing well. I had vaginal hysterectomy(removevaries, tubes, uterus, cervix). I have been through a lot this past 2 months. I feel lucky it was stage I, and did not need any chemotherapy or radiation, he removed all the cancer, and it did not spread...For hot flashes, night sweats, he prescribe ESTRADIOL0.5MG, I started today, will see how it goes. It has been difficult, emotionally and physical, but God helped me along the way.....i know i will be OK. Remember to ask for a copy of the pathological report and surgery reports.Good Luck, remember you are not alone.....let me know how are you doing ..HUGS, ANALU
  #6  
Unread 10-21-2010, 07:03 PM
Re: Complex hyperplasia w/atypia - New here

Analu
Thank you for sharing your story with me. I hope you are feeling better with each day. Our stories sound similar in their beginnings. I've seen PCP, gynecologists over the years for the excessive bleeding but none ever seemed to want to do anything for it. In 1988 I had a dermoid cyst and lost an ovary, in 2004 the menorraghia started. I've seen several different doctors, and was still surprised after the pain and and ovarian cysts in May that the gyne didn't want to perform a hyterectomy given years of suffering and my resulting anemia.

I will heed your advice and ask to see pathology reports. I was startled that the gyn in May did not even bother to read my pathology report to me at my follow up. It took the very kindly gyn I just saw in October to read that pathology and then explain my most recent pathology.

I am a bit scared but I am hopeful that we've caught this early enough. I am hoping for the best but prepared for the eventuality that I do indeed have cancer. I'm so happy to have found this site to learn so much and gain such strength and support.

Let me know how the treatment with the hormone goes.
Feel better soon.

Groovette
  #7  
Unread 10-22-2010, 01:52 AM
Re: Complex hyperplasia w/atypia - New here

Hi Groovette! I have the same history and diagnosis as yourself. I also had the hypeplasia/atypia diagnosis, noncancerous. Post D&C I was told my uterus was in a precancerous state, was referred to a gynecological oncologist for a second opinion/consultation. Post examination he presented me with different options and his opinion, which was to have my uterus and cervix removed. This was also my ob/gyn's recommendation and I agreed. Cancer is on both sides of my family so I didn't waste time. One week later I was in the OR and I ended up with a LAVH/BSO because they found a 7mm endometrioid (endometrial adenocarcinoma) in my uterus. This type of cancer is "fed" by an excess of estrogen, so the ovaries, fallopian tubes and lymph nodes had to go as well. My cancer was stage 1A, grade 2. I am only 6 weeks post-op but I've experienced a lot of ups and downs. I won't lie, it's not easy but I feel like I may have just saved my own life by not getting bogged down in the details of whether to have the operation or not. I was most upset by the removal of my ovaries because I didn't want to be thrown into menopause, but it's better than the alternative. My prognosis is good, as the cancer only has a 2-3% chance of returning in the next 5 years. No chemo, no mets, just internals every 6 months over the next 5 years. It's all still fresh for me and I'm going the motions, there are so many ups and downs...but I'm still here and that's what is most important.

Afterthought: I just read your previous post about not seeing your pathology report. When my results came in I was given a copy to go home with. Please be assertive and ask all the questions you can think of. If you are uncomfortable with the answers and think you need a 2nd opinion please get it. Remember that it's your body and you know it better than anyone!

Good luck and keep us posted!
  #8  
Unread 10-22-2010, 12:58 PM
Re: Complex hyperplasia w/atypia - New here

Dear Silent Acidity
Thank you for sharing your story with me. I hope that you are mending well from your surgery last month.
I am learning so much here from the experience of others. I have never even heard of most of the terminology prior to last month. I am grateful to you and others who have shared their stories.

How have you been feeling and has your body gone into menopausal symptoms? And if so which are the hardest to tolerate and how are you coping with them?

I thank you for the advice to be assertive and I will surely keep you all posted after my gyn/oncologist consult. Three weeks is a lot of time to wait and think and think and think. I believe the office I am going to is the only gyn/ocology professionals in Maine, so no doubt there is a long line to see these specialists.

Take care and keep in touch.

Groovette
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