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Genetic Counseling Genetic Counseling

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  #1  
Unread 11-03-2010, 02:09 PM
Genetic Counseling

I asked for a referral to the genetic counselor to find out if we have HNPCC/Lynch Syndrome in my family. Did a little checking this week and found quite a bit of uterine, colon & endometrial cancer. My Dad's sister provided a lot of information. Out of her 5 daughters, 4 have had cancer (2 were terminal). I was reading in another post and found out that there was such a syndrome. Thank you again for the all the advice & support.
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  #2  
Unread 11-05-2010, 07:04 PM
Re: Genetic Counseling

It's always interesting what we find out about our families once we start investigating. Good luck and please keep us posted.


monami
  #3  
Unread 11-19-2010, 07:00 PM
Re: Genetic Counseling

I am 47 and had a hysterectomy and ovaries removed on 10/27/10 due to having Lynch Syndrome.

It is very important to talk about your family history. I have a cousin diagnosed in her 20's with colon cancer and a brother who had it at 44.

I saw a genetic doctor and they did a good job explaining what you need to do in the future to manage the syndrome. IE a yearly colonoscopy and yearly or bi yearly endoscopy (for the stomach and you can have both done at the same time). Also need to have yearly bladder screening.

If you have Lynch syndrome then it likely came from a parent. So any siblings have a 50% chance of having it and your children have a 50 % chance of having it.

They recommend kids get tested after age 18 when they are ready to deal with it. In the meantime, you can encourage healthy eating with lots of fiber and exercise.
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  #4  
Unread 11-19-2010, 08:01 PM
Re: Genetic Counseling

I recently had genetic counselling for this. My concern was discrimination based on testing so I almost didn't do it. But they referred me to legislatio-------GINA-----forbidding insurance and employment discrimination. (They referred me to a website with genetic testing info including about GINA). So if that worries you and you're afraid like I was, you do have rights and since i have friends not getting tested for that reason I know I'm not the only worrier out there.
  #5  
Unread 11-20-2010, 08:06 AM
Re: Genetic Counseling

  Quote:
Originally Posted by greyown View Post
I recently had genetic counselling for this. My concern was discrimination based on testing so I almost didn't do it. But they referred me to legislatio-------GINA-----forbidding insurance and employment discrimination. (They referred me to a website with genetic testing info including about GINA). So if that worries you and you're afraid like I was, you do have rights and since i have friends not getting tested for that reason I know I'm not the only worrier out there.
Good point. I was also told about the legislation regarding discrimination. My sisters are all increasing their life insurance before getting tested. But they both advised no where in the application did it ask anything about cancer genes.
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