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Inguinal Lymph Nodes? Inguinal Lymph Nodes?

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Unread 11-05-2010, 01:16 PM
Inguinal Lymph Nodes?

Some questions, and Vent time! I have been expressing to whichever Doc/NP that ever since my Hysterectomy I have just not felt right. Lots of misc aches and pains (not just in abdomen) and feeling like a Raggedy Ann doll that was sewed back together all wrong!

I have complained about lymph edema, mostly in left leg, for 4 years and I was told everything from "there is no specialist at my facility," to "there is no such therapy for relief," to "his condition doesn't even exist" (arms yes, legs no)! My new resident finally ordered an ultrasound to check for blood clots, and luckily no clots, but it did reveal enlarged groin (inguinal) lymph nodes ...something I have complained about all these years since surgery!

I also complained about my upper abdomen starting with an egg sized lump and getting larger to where my belly button is now pushed off center by over an inch. I was told I have an incisional hernia, and adhesions, but it is not strangulating so we will leave it alone, even though I am uncomfortable. I was supposed to get an upper abdomen scan the other morning, after fasting and not drinking from the night before, and the staff was unable to get to me before my next appointment that morning, so I will attempt to have this done again before my Gyn-Onc follow up next friday.

I did get the pelvic/groin ultrasound and it too revealed enlarged inguinal lymph nodes. The doctor called me last night and told me to tell the gyn-onc next week to further check on this. (I am also still waiting for my mammogram results.)

I read that even though many different diseases and inflammations will cause the groin lymphs to swell very rarely does it mean that a cancer is present. Supposedly only 1.1% of the time will a secondary cancer be the issue. So my question is have any of the gals here had any inguinal lymph node issues since your hysterectomy, and if you care to share this, what might that have been? Thanx.
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Unread 11-05-2010, 06:57 PM
Re: Inguinal Lymph Nodes?

Hey, (((folky)))!!

I'm afraid I don't have any experience or info to share, but I know you've been dealing with these issues for a very loooong time. I really hope they get to the bottom of things, and that they're easily resolved.

Good luck, sweetie!!

Unread 11-05-2010, 08:17 PM
Re: Inguinal Lymph Nodes?

The inguinal nodes drain the legs, and so any abnormality in the leg will cause the inguinal nodes to be enlarged. I wonder if your lymphedema is causing this, OR whatever is causing your "lymphedema" could be causing the enlarged node (if that makes sense, tell me if it does not). The other thing I wanted to say is that 10 years ago I had 2 operations on my breasts, one to insert implants and the second to remove them, and the scar tissue, and replacing them. I have had enlarged lymph nodes in my axilla (armpits) ever since. They report on them on all my scans.
I sure hope you get some relief
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Unread 11-06-2010, 08:25 AM
Re: Inguinal Lymph Nodes?

WHen I was first dx with LE I was told I had an enlarged lymphnode. It was on the inner/front part of my leg, right where my leg meets my groin. The ultra sound picked it up and a person-in-training asked "what is that?". That's the only reason I know exactly where it was.

Anywho, I was told not to shave for 2 weeks because it could be due to an ingrown hair OR infection the body is trying to fight off. (which made sense because I had a slight cold at the time) I waited the 2 weeks for a PET scan, which came back clean. I don't know if the enlarged node had gone down or not, just that it wasn't cancer. That was when my doc told me about LE.

Make some calls to local physical therapy places to see if they have an LE specialist on staff. I had to call 4 or 5 places before I found one. THere ARE things you can do to help the LE, manual lymph drainage, compression socks, exercise, etc
Unread 11-07-2010, 08:36 AM
Re: Inguinal Lymph Nodes?

The ultrasound that was performed on me when the doctor was trying to determine why my leg was swollen showed enlarged inguinal lymph nodes. When I asked what could be causing the enlargement, I was told it could be a blood clot, lymphedema or cancer. Mine turned out to be lymphedema. Since you've had edema in your leg, I suspect that's the reason your node is enlarged.

Lymphedema is progressive, so if that's what you have, it's not good leave it untreated. Can you go to another facility or physical therapist?

I hope you find out some answers soon! Perhaps the new resident will be more aware of lymphedema.
Unread 11-07-2010, 11:16 AM
Re: Inguinal Lymph Nodes?

Thanks gals for your thoughts and suggestions! Much appreciated! Ann I wished I could go to another facility, but I really do not have much of an income at all. I am stuck with the county, or somebody willing to barter!!! (I moved here 10 years ago to take care of my dad and the work opportunities here were slow even before the economy turned down.) If I could just get a firm diagnosis of lymph edema from my place then maybe I could eligible to travel to a bigger city's teaching facility (like UCLA), and perhaps get some help, or participate in a clinical study.

Just the last day or so I notice all my lymph areas are acting up! This includes my jaw, neck, shoulders, chest, armpit area ...really everywhere that there are lymph nodes (those that are left ). I have a light sore/swollen throat and headache so maybe my body is still fighting off my sinus infection I had a couple of weeks ago. Maybe this could be why my groin nodes are also enlarged, as per my ultra sound this past Wednesday? (However, my ultrasound for clots was a couple months ago, and that is when we first noticed the enlarged lymph nodes.)

Thanks again for all the input.
Unread 11-09-2010, 04:38 PM
Re: Inguinal Lymph Nodes?

Geez - it just makes me so mad that you can't get a diagnosis. It's just not right. You might want to go out to the website Lymphnotes and ask the therapists what you can do to get a diagnosis. Someone on that site may be able to help you. I wish you well, Folky, and hope this new resident can help you out! Hugs!
Unread 11-25-2010, 12:54 AM
Re: Inguinal Lymph Nodes?

I recently had several enlarged abnormal inguinal nodes removed. They were thankfully not malignant, although after the surgery my hubby and I were told to brace ourselves for a lymphoma diagnosis due to the hardness and appearance. We were freaked and then relieved when we got the benign, however the pathologist suggested follow up to find out what was causing the nodes to swell. As yet we have been unsuccessful. I am going to physical therapy now because of the lymphedema. My leg is so much more swollen than before the surgery. If you can get the therapy I recommend it. We have a way to go but it has really helped.
Unread 11-25-2010, 01:59 AM
Re: Inguinal Lymph Nodes?

Jads. I am sorry to hear about how uncomfortable you must be. I hope it does ease up for you very soon! Being lopsided is so tiring!

I had my onc-gyno followup and they did not seem to think there was any cause for alarm. My two scheduled abdominal sonogram scans both got flubbed up (after two nights of fasting) so I never got them done, and the clinic docs didn't seem to think I needed them done anyway. So, I too do not know the cause of my swollen lymph nodes in my legs.

Instead, I was called back for a sonogram to recheck my breasts after my mammogram the same week as all these other appointments. A radiologist doc checked those immediately while I waited and said I was good, nothing to worry about.

I will have another primary doc appt relatively soon, as soon as I pick up the phone that is. I will again ask what's up with the inguinal nodes and see what she says this time.

Best to all of you ladies!
Unread 11-25-2010, 03:58 AM
Re: Inguinal Lymph Nodes?

I have had swollen lymph nodes right at the groin area also... Fortunately, after a few weeks they seem to go down... Now I am wondering if we have lymph glands behind the knee area... On the left side that area seems to swell a lot..but it is usually the right side groin area that swells. I have fairly good insurance and the gyn/onc doesnt seem too concerned... I am wondering if this is a secondary condition caused from the hyst. lymph node removal, although I don't think I had as many taken as you did.
I too just had a mammo on the 9th and got called back for a recheck.
They did several compression spot checks and then an ultrasound. I was afraid that the Premarin vag. cream had started a new set of problems, but like you I got the thumbs up.
Hope you have a great Thanksgiving and can find some answers.

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