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Adhesions - stuck in more ways than one. Adhesions - stuck in more ways than one.

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  #1  
Unread 11-16-2010, 03:03 PM
Adhesions - stuck in more ways than one.

It's now been a year since I've seen my local doctor and since he referred me elsewhere for some answers. I got my answers as to what was causing the pain, but didn't like their solution and ultimately walked away and decided just to live with it. In some ways, just knowing what I was dealing with, essentially the same old same old, provided some comfort and relief and not liking their answer gave me a renewed interest in fighting on. And I have been coping with the constant daily pain until now. Now it's taken a turn for the worse again, and the last few days I've been seriously wondering if this is finally going to be the time I have to break down and go to the ER. The adhesions and stuck ovary are really making me miserable. But I don't know what to do. If I go back to my local doctor, I'm not sure he would be any more willing to fix it than he was last year. And I don't want to go back to where he referred me since we weren't on the same page at any point in the process (made the mistake of having surgery with a surgeon I was in complete disagreement with once and Never again!). I basically feel stuck with no one I trust to fix the problems. Sigh...anyone else? So glad for the ladies here because I know many are going through the same things and want to help.
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  #2  
Unread 11-16-2010, 04:40 PM
Re: Adhesions - stuck in more ways than one.

Mich,
Sorry to hear you are still in pain. If you feel it necessary and the pain is that bad, do head to the ER. If it is tolerable, but you feel you do need a doctor's help, than seek out a doctor. It doesn't necessarily have to be one that you have seen already. Maybe it is time for a fresh opinion. I've learned the hard way that one must keep looking if they are not satisfied with their current treatment.

  #3  
Unread 11-17-2010, 07:47 AM
Re: Adhesions - stuck in more ways than one.

Hi Mich,
Sorry that you're going through this again. I totally agree with Kim, if you're not comfortable find another dr. don't give up. Trust me I know how frustrating this can be. I myself am back to seeing my gyn. and possible surgery in the near future. Thankfully my gyn is really being caring and wanting to solve my problem right away. I hope you find a dr. that will help you with your pain. Good luck!!!!!
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  #4  
Unread 11-17-2010, 08:55 PM
Re: Adhesions - stuck in more ways than one.

Mich,
I am so sorry that you are still having to deal with this pain and all the "pains" that come along with it. I too am in the process, again, of seeing my doctor for pain. I have a small hernia and I believe that adhesions are also back. I agree with others that it sounds like time for a new doctor. Maybe if you go through the ER they can refer you to someone who specializes in adhesions. Best of luck to you!! I hope that you are able to get someone to listen and understand what you are going through soon.
  #5  
Unread 11-18-2010, 02:06 AM
Re: Adhesions - stuck in more ways than one.

Mich:

I am sorry to hear you are dealing with this again and no resolutions have happened. I was hoping your concerns would have been addressed by now.

We are all here to support you.
  #6  
Unread 12-02-2010, 07:28 PM
Re: Adhesions - stuck in more ways than one.

Well, just got back from my appointment with my local GYN. It was a complete waste of time. What makes good doctors suddenly go bad? I really liked this doctor when I started with him nearly 4 years ago. He was caring and compassionate and really trying to help me. Then a few months after the 4th surgery failed, it all seemed to change. He sent me from specialist to specialist for the first year, hoping that someone would find something other than gynecologic pain. When they didn't, he referred me down to UCLA and essentially washed his hands of me. I did go to UCLA, they told me it was ALL Gyn-related pain (essentially the same old same old - endometriosis, adhesions, stuck left ovary- the reasons for at least 2 of the previous surgeries), and told me my only real option was a BSO. I didn't want that but couldn't seem to convince them to take out just the left stuck ovary. So I walked away and spent the last year just coping on my own. A week ago, I got the bright idea to call my local Gyn for an appointment, I guess part of me was hoping a year's break from me would have changed things between us or that maybe whatever had made him so uncaring would have changed (as others posted online reviews to the same effect, he wasn't caring or interested in solving their problems this last year). Nope! I told him what I had been told at UCLA, and he tells me I was right not to do the BSO and concurs that I should want to keep my right ovary as long as it's healthy, basically says don't do it. So I'm waiting for him to pipe in with what I should do since the left ovary is stuck (going on nearly 2 years now) and I shouldn't do the BSO. Nothing!!! All he wants to talk about is the annual exam stuff and get that taken care of this appointment. I flat out had to ask him if it was dangerous to live with this stuck ovary. No, it's fine. What! The first time the ovary was stuck and he did surgery, he told me he didn't know how I could live with the pain of a stuck ovary. The second time the ovary was stuck to the colon, he told my husband immediately after surgery how much I needed the surgery. Now it's stuck for a third time, and it's perfectly okay to live with the pain and problems it's causing. Huh? He didn't even offer me pain medication. I had to ask for it as the only thing I have is the same Darvocet he gave me a year ago and that's been taken off the market. He says, Vicodin or Tylenol with codeine. I can't take Vicodin which I've told him on numerous occasions(it's on my allergy list, although that's more because it makes me violently ill and he's the one who told me not to take it again) so I said Tylenol (Get home, the Rx slip says he's prescribed Vicodin. Nice!) Then it's, "see you next year". I wanted to say, not likely. How can you tell a patient not to do something, but offer them no other means of dealing with something so obviously painful. My life has been on hold for 2 years now, I'm ready to move on, not continue living not knowing from one day to the next how I'm going to feel.
  #7  
Unread 12-02-2010, 10:01 PM
Re: Adhesions - stuck in more ways than one.

Awww Mich I am so sorry that your doc didn't give you any answers or try to help you at all! Do you have a PCP? I have found much better luck dealing with a PCP and a general surgeon that has specialized in adhesions. That is who removed my last ovary. My ob (who I at one time thought was great) told me to leave my right ovary even if it was causing me pain. The general surgeon said that if it was his mother or sister he would want it out, so I let him take it out. When he took it out it had over 20 cysts and had to be drained, cut up, and bagged to get out (to keep from making a hudge incision). You might call the local hospital's and see if they have anyone who specializes in adhesions. Best of luck to you sweetie, don't give up! There is someone out there who will listen to you!! No one should have to "deal" with pain.
  #8  
Unread 12-06-2010, 03:14 PM
Re: Adhesions - stuck in more ways than one.

Thanks for all of the support ladies. I don't know what I would do without you.
  #9  
Unread 12-06-2010, 04:08 PM
Re: Adhesions - stuck in more ways than one.

Mich, sorry you are not only living in pain but having the stress of trying to seek help and not getting any. Have you looked into adhesion specialists? I assume they exist. I never looked for one myself. I had adhesions removed a couple of months ago and pray, cross my fingers and knock on wood that they do not come back although I can already tell that one area is effected. Just wanted to let you know that I feel your pain and unless noone else has experienced this they cannot possibly have a clue as to how miserable you are. I certainly empathize with you and hope with all of my heart that you find some answers/relief soon!
  #10  
Unread 12-06-2010, 06:52 PM
Re: Adhesions - stuck in more ways than one.

CAmich,

I'm sorry you are having so much trouble with this. I totally understantd as I am in the same boat. I am currently waiting for more apt's with surgeons who may not want to help me with my adhesions. Seems like when they hear adhesions they run the other way. No one in my town will help me so waiting for someone in Vancouver. I hope you can find someone to help you, jut wanted you to know that you are not alone out here. Good Luck

take care
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