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Agressive endometriosis--is this decision rational? Need help! Agressive endometriosis--is this decision rational? Need help!

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Unread 11-17-2010, 08:23 AM
Agressive endometriosis--is this decision rational? Need help!

Alright sisters, I need some help here....I'll try the short version.

On 5/5/10 I had my TAH, but kept my ovaries. Since the hyster, my endo has been even more aggressive about returning, & I've had to have 2 additional surgeries to strip out the endo - one in August (8/4) & one 2 weeks ago (11/1)... (almost exactly 3 months apart, is my endo on a growing schedule? lol)

So after my last surgery, my dr told me the endo was far worse than he thought it would/could be in a 3 month period, & he wants to either suppress my estrogen production with drugs, or do one more surgery to remove my ovaries. Now, my logic is telling me to just have the surgery b/c either way I go, I'm ending up in menopause...whether its drug-induced or surgical, so why put it off any longer? My husband thinks another surgery is a risk & that I shouldn't do it. But I feel like I'm screwed either way, & what if the drug suppression doesn't work & I end up having the surgery eventually anyway? I just wanna cut out these intermediary BS treatments, I did that before having my hyster & I don't have the time or patience for it anymore. Why delay the inevitable?

I'm so over all of this & want my life back already! Do you all think my logic is rational, or am I being hasty?
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Unread 11-17-2010, 10:14 AM
Re: Agressive endometriosis--is this decision rational? Need help!

As I shared with you before, you really need to make sure your doctor is an endo specialist before going any surgical routes.

Also, you can consider an aromatase inhibitor which is a newer endometriosis treatment. We have a few members on the site using it including a very recent member--she is trying Anastrozole/Arimidex and others have tried Femara/Letrozole. Not all doctors are aware of this treatment option so they don't suggest it.

There is no perfect answer at all. Any endometriosis that is left in your body can continue to grow and spread whether or not you have your ovaries, whether or not you use HRT, simply because there are other ways to introduce estrogen to you system including the endometriosis creating its own supply of estrogen, fat cells producing and storing estrogen, and dietary means. Unfortunately, it sounds like either your body is pretty good at supplying endometriosis with estrogen, your doctor isn't removing as much endometriosis as s/he thinks, or your endometriosis is especially aggressive with multiple estrogen receptors.

Keep in mind, surgical menopause is forever and it is not always pleasant nor can all women find an HRT that helps them feel right. Also, if your body can produce/store/use any of the above means of estrogen and you try to use HRT once your ovaries are removed, it can get really complex because you are not dealing with 0 estrogen and the amount your body creates can fluctuate meaning a steady dose of HRT won't work for you. We have a current thread on the site where a woman wants her ovaries back because of the difficulties of no ovaries. On the other hand, pseudo-menopause is reversible if you can't tolerate the symptoms. And no, pseudo and surgical are not always the same. We have had mixed results posted here on the site--some found pseudo worse, others found surgical worse.

None of us can tell you what is right for you. For one, no matter how logical our suggestion, that doesn't mean your body is going to cooperate. It hasn't so far!

in there and do consider seeing one of the top doctors in the US before making your final decision. Many of them will review your medical records for free or a small fee before you need to travel. Some will even do an initial free phone consultation. Have the most endometriosis knowledgeable doctors help you with your decision.

Unread 11-18-2010, 07:36 AM
Re: Agressive endometriosis--is this decision rational? Need help!

I second what Weiser said.
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Unread 11-21-2010, 01:19 PM
Re: Agressive endometriosis--is this decision rational? Need help!

Well I just saw my GYN Friday, he said the ovaries gotta come out or I can expect the rest of my life to look like the past 4-5 months. I'm going back Tues to get an ultrasound cuz my pain is returning already, not sure if its post-op or what.

I also scheduled an appt w/my family dr 2 hrs before my appt on Tues. I really want his opinion cuz he WILL give it to me straight. I guess we'll see what happens... wish me luck!

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