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2 Weeks Since Surgery, BHRT Question (Endometriosis) 2 Weeks Since Surgery, BHRT Question (Endometriosis)

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Unread 12-14-2010, 08:34 PM
2 Weeks Since Surgery, BHRT Question (Endometriosis)

I survived my surgery! As a Stage IV Endo'er with endometriomas the size of my cat, the concept that my ovaries are gone, that I don't have to think about them again, is....weird.

Ten days before my surgery my hormone doc had me begin taking Bi-Est 50:50 .3/30gm twice a day. I gotta tell you, as someone who had freaky low estrogen (my ovaries were failing because of their hitchhikers) it felt good - and also really scary since estrogen had always been the 'enemy'.

On day 4 of my recovery I had my first heat flash - not really hot, just REALLY warm. On day 5 I had a succession of them, one right after the other. It sucked and it made me feel old (I'm 42). Then came the cloud, I can't even describe it...a haze, an inability to form a thought, memory shot, not able to concentrate. It got worse over the following days, to the point I was afraid to drive or leave my house for that matter.

I called my hormone doc and tried to get in - no luck (I feel very lucky to have found her, I also hate she's so busy). So I took matters into my own hands, doubled my dose slowly, .6/30gm twice a day. The difference is astonishing. I feel so good. Not just the fog lifting and the heat disappearing, but also energy! Headaches gone! I'm not eating the contents of my refrigerator!

The thing is, after reading all of these posts I'm a bit scared now. I've been taking progesterone for about 6 years now (I swear it's the only thing that has abled me to keep my ovaries for as long as I did) so my body is accustomed to absorbing hormones. I also realize there is an 'accumulation' period for all hormones - but I'm sort of panicking that what's making me feel good is also waaaaaaaaaay tooooooooo much.

Right now, it's clearly what my body needs. As someone who's had to take my health and treatments into my own hands on more than one occasion (Endo, it's not for wussies) I've become very, very in-tune with my body - and it want's estrogen. I don't want to sit around feeling like dog poo because I can't get an appointment with her (I have one in 3 weeks - saliva testing next week - FUN!).

But that three month thing.....really? I have to feel old and tired for 3 months to see if a specific dosage works? Anyone else taken matters into their own hands during interim periods? Please tell me yes?!

Also, man this is long.....sorry about that!
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Unread 12-16-2010, 05:35 AM
Re: 2 Weeks Since Surgery, BHRT Question (Endometriosis)


I'm glad you're on the recovery side of your oophorectomy and hope you're healing well.

You really shouldn't make changes in your hormone therapy without consulting with your doctor. With your ovaries gone, you'll likely go through a period of hormone imbalance as your body depletes the hormones your ovaries made. Changing doses frequently to try to control symptoms can actually make finding balance more difficult.

I can't share from experience since I didn't have endometriosis but one thing your doctor should have discussed is that having an oophorectomy isn't a cure for endometriosis. Unless every bit of it was removed at the time of surgery, there's a chance it can continue to grow. Since it's fed by estrogen, you'll need to be more careful than most to keep your levels low enough to help with menopause symptoms but not aggravate the endometriosis. Some doctors prescribe progesterone along with estrogen for patients with endometriosis as the progesterone can help counteract the effects that estrogen has on endometriosis. You might want to call your doctor and ask about adding progesterone.

Best wishes for your recovery!


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