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Unread 02-10-2011, 02:13 PM

I had a hysterectomy almost four years ago and they left one ovary. Last October my remaining ovary grew a very large cyst on it and they removed it via laparoscopy. In doing so they ran into a lot of scar tissue and had a hard time removing my ovary. I am on HRT and Progesterone cream and doing great! Libido is back and I had been feeling great. Two weeks ago I ended up on the ER with kidney stone like symptoms. It wasn't a stone, it was a cyst growing and pressing upon my ureter. The doctors think the cyst is forming off of a very tiny piece of ovarian tissue left over from October procedure. Instead of doing surgery my new doctor drained the cyst through the vaginal canal and then told me to go on Lupron to stop any more cysts from forming. I am 37 years old and he wants me on Lupron for 10 to 15 YEARS. I have been reading about this drug and I am very very nervous. My guts tells me to take my chances with another cyst and not do Lupron. Does anyone have any experience with lots of years on Lupron or any advice for me? I am very overwhelmed and scared.
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Unread 02-11-2011, 09:03 AM
Re: Lupron

I do not have years of experience on Lupron, however, I was on it for 3 months and it horrible. This was when I had ovaries and a uterus of course. =) Every time I got the shot, within hours I would "dry out" and need lube just to walk around comfortably and would cramp up. I have no idea what it would be like without a uterus, nor would I want to experience it. Personally, I would take the chance with another cyst.
Unread 02-13-2011, 07:38 PM
Re: Lupron

I, too, took a 3-month dose of Lupron, and that was more than enough for me! I was given it one month prior to my hysterectomy and it did what it was supposed to do, but there is no way I would want to take it for 10 years. At the same time, who would want to go through the pain of a kidney-stone-like event, either.

Isn't there a way that some skilled surgeon could go in and remove that final bit of ovarian tissue? I don't know anything about this, but I would try to research this out and see if you can get a 2nd opinion.

Hugs to you!!!

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Unread 02-19-2011, 07:39 AM
Re: Lupron

I was on Lupron before my LVAH/BSO. I felt *so* much better on it, more than I had in years! Now, I realize that I was one of the few lucky ones that didn't get debilitating side effects, but I just wanted to throw out another view. I am 40 yrs old, if that makes any difference

However, this was just a few months. The length of time that your dr. is suggesting would give me pause. I've heard that 6 months at a time is the maximum treatment length, and then a lengthy break. I second getting another opinion....

Good luck - I hope that you are living pain-free soon!!
Unread 02-26-2011, 07:34 AM
Re: Lupron

I agree they should go in and get the rest of the ovary. Lupron is only from like 6 months at a time, not ten years. Best of luck to you.
Unread 02-26-2011, 08:17 AM
Re: Lupron

Ladies, I soooo much appreciate all of your honesty!!! I have a second opinion appointment scheduled with another doctor in a week. I went and talked to a pharmacist about being on Lupron for 10 years! I wish you could have seen the look on her face! It was obvious she did not agree with the doctors plan! Did I also mention the doctor wanting me to do the Lupron shot isn't even 100% sure it's ovarian tissue!!!! The more I research and learn the more I get frustrated with him! Personally I am hoping that they will agree to another surgery (not that I want to have surgery!) to get the tissue out and just be done with it! In all of my reading I cannot find any woman that has been on this drug for over 2 years and I am NOT going to be anyone's guinea pig!! If there is anyone else out there who has some advice...please let me know! Thanks so much!
Unread 02-27-2011, 08:34 AM
Re: Lupron

I am glad that you are seeing another doctor. They will probably be blown away at this as well! Let us know how it goes
Unread 02-27-2011, 08:50 AM
Re: Lupron

well if you're going to do it.... i have my last injection here you are welcome to have - free of charge IN OTHER WORDS.... I WOULDN'T RECOMMEND IT myself! I was only to take 6 doses and stopped after 3. My regular doctor was out and i had to get my blood pressure checked. my sister in law was out of town and she usually gave me my lupron shot. i took it to the other doctor during my visit.... he's an old school doctor and basically asked me what the h&ll i was doing putting that stuff into me when there is no guarantee it will work! he laid everything on the table that no one else wanted to say (age, child bearing, etc) and asked if the h&ll it was putting me through physically and emotionally was worth it?! i stopped right then and there. i had my surgery on tuesday
Unread 02-27-2011, 08:58 AM
Re: Lupron

I know every case of lupron is different.

However, I had THREE doctors tell me to take lupron as if it was as easy as popping a tylenol. I tried to explain that I have migraines, arrhythmia, etc. and react differently to medicines, and yet- LUPRON was the only logical next solution in their minds. I even made a visit to the MAYO clinic and they casually said, LUPRON.

Here's the thing: READ up on that drug, the side effects and the "Do not take this drug if...."

My current surgeon, upon telling him my side effects to things, said that not a doctor out there should have tried to give me that drug. So, thank God for small favors.

I know multiple people who have taken it for different reasons like prostate cancer, ovarian cancer, etc. And, their reasons for needing it out-weighed the reasons for not taking it.

Personally, I would never take it. But, again- each situation is different.

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