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Ovarian Cysts Ovarian Cysts

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Unread 11-24-2001, 12:45 PM
Ovarian Cysts

I had a LVH 2 years ago. My doctor singed the ureter to my right kidney during the surgery, it was not discovered until 3 months after my hysterectomy. I had to have a ureteral implant which was a year and a half ago. Back in May, I started feeling extremely fatigued. I went to my primary Dr. who did tests. My calcium levels were slightly elevated other than that the blood tests were normal. In June I started retaining water and within a weeks time I went from 112#s to 124#s. All my primary Dr. did was take me off salt and put me on Diazide (diuretic) for the water retention and told me it was female related and not to worry about it. Needless to say I have changed Dr.'s. Now I was sent for an ultra sound which they said I have a cyst on my left ovary and were not able to find the right one. I also have a fluid collection 2.4x4.8cm in my lower abdominal wall. I was sent for a transvaginal probe sonogram. During this one, the tech tells me that I have 2 cysts on my left ovary. In the meantime, I have had headaches, swollen lymph node under my left arm and stomach disturbances (nausea, heartburn, gas and colicky pains). I am concerned about ovarian cancer and these Dr.'s are just loitering around with this trying to find out what's wrong with me. I have non pitting edema. Has anyone ever had anything like this after a vaginal hysterectomy??? The doctor tested all 3 of my hormones and tells me I am not in menopause. Should I be insisting on the CA125 test to rule out ovarian cancer? I don't want to find out too late.
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Unread 11-24-2001, 04:42 PM
Ovarian Cysts

Hi Maggie!

Well you have been through alot since your LVH. I know you said you switched doctors, but if you are not pleased with this one perhaps you should seek another opinion.

I don't know much about the CA125 as its not used as a marker for me, but it is for some of the other ladies here, but I do know that even if it was elevated it can be so for other reasons than cancer.

Have you asked your doctor if he thinks there is a chance that these cysts are cancerous? If so, and you are not pleased with his answer, then I would definitely seek another opinon.

Sorry I can't be of more help Maggie, but I am sure there will be others along shortly. Best of luck to you.
Keeping you in my thoughts and prayers,
Unread 11-25-2001, 05:49 PM
Ovarian Cysts

Hi Maggie!

I'm sorry to hear you've been having so many problems since your surgery. I can certainly understand why you are frustrated.

I would also seek another opinion if you aren't comfortable with the information you are getting at this point.

As far as the CA125 test, its really not considered a diagnostic test, as it can give back false negatives and positives. Its really meant to be used as a tracking or tumor marker test for an established cancer.

This test measures a protein that can elevate with some ovarian cancers, the problem is that this protein does not elevate with all types of ovarian cancer. In addition, it can also elevate with other conditions, such as endometriosis.

I would urge you to consult a Gyn Oncologist if this is something you are concerned with. As this is their specialty, they would be able to shed some light on what your risks might truly be and might also be able to ease your mind.

I wish you the best in your search for answers, and hope you'll be able to get to the bottom on this soon. Please keep us posted on how you're doing when you can.


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Unread 11-26-2001, 02:16 AM
Hi Maggie

Hi -
I recently had a tah/bso due to ovarian tumors. They turned out to be bordeline ovarian tumors. The cancer has not spread, though I am still waiting on the secondary paths to confirm that. I am three weeks post.

I had sonograms, followed up by a CA125. I had seen my gyn every year. She never did any tests on me, when I told her about problems I was having. I moved towns. Went for my annual with a new dr. They did the sonograms and CA125 tests. Thank God! My levels were elevated above those that can indicate a "false" positive. I was scheduled for surgery 4 days after my results.

If you feel that you need a second opinion get one. Do not fool around with your health. Hopefully all is well and you will not have anymore to worry about.

Take Care- RobinS
Unread 11-26-2001, 02:18 AM

The order of tests were :
vaginal sonogram, uterine biopsy (turned out neg. for cancer), vaginal sonogram, CA 125 & cat scan.
Unread 11-26-2001, 04:17 AM
Ovarian Cysts

I'm so sorry that you are facing this!! I would consider a second opinion, and I also would be very honest with my doctor. Tell him what your worries are and see where he would advise you to go from there. I really hope that everything goes okay for you. Keep us posted and I will keep you in my thoughts and prayers.

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