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Was not adenocarcenoma in situ was adenocarcenoma.  I'M scared! Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

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  #1  
Unread 11-26-2001, 06:11 PM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

Hi,
I had a TVH on 11/16 for what was thought to be adenocarcenoma in situ. I got back my pathology and found out that it was Stage 1A adenocarcenoma. I'm planning to go to an oncologist for follow up but I'm scared. My regular gyn did not think that I would need any further treatment. Has anyone ever had radiation or chemo for this.

What terrifies me more is that I have gone regularly for pap smears and never had an abnormal result. This all developed within a year. From everything I've read these things are supposed to develop slowly. Does anyone know if I'm at anymore risk because this was so aggressive?

Thank You to anyone who has any advice.

-Denise
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  #2  
Unread 11-26-2001, 07:16 PM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

Hi Denise ,
I had this also, endometrial. I did not have to have any further treatment after my surgery. I don't know how quickly mine spread but I was told it was a slow developing cancer. I had regular paps also, but it was not found that way. I hope your Dr can give you some good news when you go and you won't need any further treatment. He should be able to answer most of your questions about the risk in the future. Best wishes~
  #3  
Unread 11-26-2001, 08:12 PM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

Hi Denise!

I know it's upsetting to find out it was further along than you were expecting, but stage 1A is a good stage to be at, if there is such a thing. You may or may not need further treatment. From my own experience, if I had had stage 1A (I had 1B) I would not have needed anything more than my surgery. But, since it was 1B, I am now undergoing radiation. So there might be a good chance that you're done and over it. Of course, your team of doctors may recommend further treatment.

My advice here is just to make sure that you are comfortable with the doctor you see. If you're not, don't hesitate to get a second opinion. And remember that ultimately, it's your decision, just make sure that you understand any reasons that your doctor may have either for or against further treatment. When you understand what is happening, it's a lot less scary.

Please don't feel that you or anyone else did anything "wrong" because you have always had normal Paps until now. They did catch it in a very early stage, even though they originaly thought it was in an even earlier stage. Again, there's no "good" kind of cancer to get, but stage 1A means that your chances are ideal for total recovery. No matter what happens next, you have a total support team right here.

Steph
At treatment #8 and doing great!
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  #4  
Unread 11-27-2001, 05:29 AM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

I'm sure that you are scared, and we can all relate to that. Please know that even though I have not gone through chemo or radiation, that I am here if you need to vent. We are all here for support! Be open and honest with your doctor and if you are not comfy with him, then by all means get a second opinion!
  #5  
Unread 11-27-2001, 02:56 PM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

{{{Denise}}}

I'm so sorry that your results weren't quite what you were hoping for. It's so very normal to be scared at this point. There are several women here who have had radiation for cervical cancer, and I'm sure you will be hearing from them soon.

The thing to remember about PAPs is that it IS very important to have them yearly (I'm so glad you've been going all this time)BECAUSE they are only a screening tool. When a PAP smear comes back normal, all that means is that you are at low risk to develop cervical cancer within the next 5 years. That's all it means. And the smear is very dependent on what cells are sampled. So if you are growing cancerous or precancerous cells on an area that is not sampled, it isn't going to show up on the report. That's why we need to go yearly. That way if they miss a bad spot this year, maybe they'll catch it next year. It's kind of unnerving when you think about it, but thank goodness most of the cervical cancers are slow growing so there's lots of opportunity to catch it.

Fortunately, your cancer is microscopic at this point. Things go so much better when caught in the earliest stages. Stay in good contact with your docs, and make sure you are totally comfortable with them. Ask all the questions you can think of and then make sure you can call anytime you have more questions.

Good luck, Denise!
  #6  
Unread 11-30-2001, 07:00 PM
Was not adenocarcenoma in situ was adenocarcenoma. I'M scared!

So sorry to hear that the news wasn't what you expected but it is still in an early stage like you have heard from all the other ladies. Mine was stage 2A and I had radiation but mine is completely gone now. Adenocarcinoma can seem like it develops quickly because it grows inside the cervix where as other cervical cancer grows on the surface of the cervix and is more easily seen. With adenocarcinoma it can be growing inside the cervix and get missed on a pap smear and be growing for a year until it grows big enough to be seen outside the cervix and then it is finally picked up by the pap smear. I wrote a letter to the lab where my paps were sent because I thought they had missed the cancer in a pap in March and then I was diagnosed with stage 2A in November and I was angry . The head of the lab sent me a letter explaining how the cancer of this type could be missed and I took the letter to my doctor and he explained that the lab was correct in their explanation. Most people who end up with invasive cervical cancer and have regular paps end up having this type of cervical cancer because it can be so evasive. Yours is caught early and you should have an excellent chance of a full recovery. Keep your chin up, consider all your options and get the treatment that you need to get. Good luck and hang in there.
  #7  
Unread 12-01-2001, 03:38 PM
Thank YOu

Thank You to everyone who responded. Your advice and encouragement has been very helpful!

-Denise
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