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Is it possible that this wont go away, ever? Is it possible that this wont go away, ever?

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  #1  
Unread 06-14-2011, 05:28 PM
Is it possible that this wont go away, ever?

Good grief, I am 7.5 weeks post-op everything gone, ovaries, uterus, cervix. Was told by gyn. i had a lot of endo(which was suspected from the awful rectal spasms). I still can't have a bowel movement without miralax and the stomach and bowel pain is horrific. Doc said they are sluggish and i should wait til summer is over and give things a chance to heal. Is it possible that this wont go away, ever?
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  #2  
Unread 06-15-2011, 10:13 AM
Re: Still having endo problems after having a full hyst. over a year ago

Sukis,

I feel your pain when it comes to bowel movements! I have stage 4 endo and have dealt with bowel pain for years. I am 6 days post op from an oophorectomy and exp lap for excision of endo and also ended up with an appendectomy because the endo had infiltrated my appendix. My doc said my right ovary was literally stuck to my colon. I have only had 1 bowel movement since the surgery....it was ok. I have been eating stool softners everyday and eating dried plums. I'm not sure if we will ever to have a "normal" bowel movement again.
  #3  
Unread 06-15-2011, 10:54 AM
Re: Still having endo problems after having a full hyst. over a year ago

Yes I suffer from bowel issues - pain during and wicked back pain after - ummmm I can't say that the Lyrica helps with that. I just started it last Thursday and increased the dosage to twice per day starting Sunday and that's when I noticed a difference with the cramping, however, today I'm noticing alot of the pain back but I think I can still increase the dosage from here so I will see. It is also making me very tired but if it can at least get rid of that low pelvic dull achy cramp then I'll keep at it with the Lyrica. I'll let you know how it goes in the next week.

What I would like to know is what kind of pain are you feeling with your bowel issues?
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  #4  
Unread 06-15-2011, 11:01 AM
Re: Still having endo problems after having a full hyst. over a year ago

My bowel pain feels like my bowels have no elasticity and as "it" is making it's way down the colon...it can be a very sharp pain. The endometriosis acts like a glue on your bowels and thats exactly what it feels like...does that make sense? I battle constipation and I am bloated most of the time because of this. It's a deep sharp pain with lots of cramping as well. Once i go the sharp pain subsides...but the ache remains.
  #5  
Unread 06-15-2011, 12:01 PM
Re: Still having endo problems after having a full hyst. over a year ago

  Quote:
Originally Posted by steffie32 View Post
Sukis,

I feel your pain when it comes to bowel movements! I have stage 4 endo and have dealt with bowel pain for years. I am 6 days post op from an oophorectomy and exp lap for excision of endo and also ended up with an appendectomy because the endo had infiltrated my appendix. My doc said my right ovary was literally stuck to my colon. I have only had 1 bowel movement since the surgery....it was ok. I have been eating stool softners everyday and eating dried plums. I'm not sure if we will ever to have a "normal" bowel movement again.
Steffie...we have very similar endo issues. My rectum was pinched between my uterus and the endometrioma on the right ovary...they even did a sigmoidoscopy to make sure there were no perforations. Appendix came out too...endo there as well. I've always had bowel issues but I just thought it was "me". I'm lucky that I don't have pain with my endo...didn't even know I had it until I was 36 and it was stage 4 then.

I'm keeping track of issues so I can discuss them at my next post-op appointment. Hopefully the surgery "slowness" will ease up by then and I'll be back to normal.

Thanks for sharing your experiences. It really helps to know that I'm not alone and not crazy. :-)

Diana
  #6  
Unread 06-23-2011, 10:23 PM
Re: Still having endo problems after having a full hyst. over a year ago

steffie32 - YES YES!!!! That's what the bowel pain feels like and after I go it's crampy and achy for hours. I have major constipation yet I can't take fiber because then I get clogged up. I can't really eat much past 3pm because that is when I start to get major bloating. All the docs insist there is no Endo on the bowels although I don't know how they know that when no one as ever looked. I know it hasn't perforated the bowel because I had a colonoscopy in 2009. Anyway - it's nice to know that it's not all in my head and that others experience similar issues. 6 more weeks until surgery...!! And by the way I went off the LYRICA!!! It was awful - made my ankles swell and I must have gained about 6 lbs in 2 days.
  #7  
Unread 06-24-2011, 03:41 PM
Re: Still having endo problems after having a full hyst. over a year ago

Kamloops- I had major bloating as well...to the point where people would ask me if I was prego! I'm glad you went off the Lyrica...I took that before and I didn't like it either! I wasn't diagnosed with Endo until about 3 years ago...but for YEARS I went to doctor after doctor because of the pain and bleeding issues and I was always told I was fine! This is my message to all women who have these issues we are battling....Find a DR who listens to you and if you don't think they are listening to you and doing what is best for you...FIND another DR! Please! Your DR can't tell you the Endo isn't on your bowel if they don't go in and look! Okay, my rant is over I'm so glad we have each other to talk these things over! LOL
  #8  
Unread 07-06-2011, 01:15 PM
Re: Is it possible that this wont go away, ever?

(((sukis)))

Try not to panic! You very well could still be dealing with recovery issues. The more meticulous the surgeon when it comes to cleaning up the endometriosis, the more pain and symptoms we can experience during recovery. It was actually closer to three months after my last lap before I could tell I was getting well.

With time and more healing, you may find that your bowels are able to function more properly. Keep in mind, even those without IBS can experience IBS type symptoms for a time as the bowel recovers from surgery.

Stay in touch with your doctor and try not to worry! Worrying won't solve anything, but it can add to your stress and bowel issues!

in there!
  #9  
Unread 10-08-2011, 03:24 PM
Re: Is it possible that this wont go away, ever?

I thought the same thing that this won't go away however I am happy to let you know that after my last appointment with the Endo specialist six weeks post op she thought that I was realign with residual nerve pain which was making the IBS worse. She put me on Nortryptoline (sp) which is actually an anti depressant but works for nerve pain and it has worked! I started out on 10mgs then five days later went to 20mg then five days later went to 30mgs and boom! I have no pain at all! I am following the Endo diet very carefully as well so maybe that in combo with the meds is what helped. I'm not sure how long I have to stay on the meds but will find out next week. Basically my body had forgotten how not to hurt and wow it feels great to not be in pain. I hope this helps and it might be worth trying....good luck!
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