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2 more weeks...and fighting an ED in addition... 2 more weeks...and fighting an ED in addition...

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Unread 08-20-2011, 07:27 PM
2 more weeks...and fighting an ED in addition...

Hi, sisters! I learned 2 weeks ago that I need a hysterectomy and have been on here since then. So, now, my story...
I have had endometriosis for the past 20 yrs (since age 16). I have had 3 laps and 2 d&c's and have been on various medications to help with the pain. I have one son who is 5 yrs old and I was blessed with him using IVF. I don't wish to have more children.
A year ago, my periods, though always painful, became more painful and more sporadic. I would go months without a period and the have it for 2 weeks. Recently, I went 2 months without a period and then had it for 10 weeks straight before going to the doctor. Having had 2 irregular paps and the endometriosis and now, swelling and other probs, the dr suggested a TAH. He said he can't do it laproscopically because of scar tissue. I am dreading this. I have had FOUR opinions and they all agree...so...i am going under the knife on the 7th.
i am not so much worried about the surgery, as I am about the recovery. I have 2 issues. 1. I am a single mom with little support. 2. (And the big one for me)...and this is hard to admit...I am a recovering bulimic. This makes it very hard for me because of the "swelly belly" and constipation. Any support is welcome. I appreciate any feedback at all- Right now, i feel very alone in this. Thanks!
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Unread 08-21-2011, 04:44 PM
Re: Very nervous

I had my SAH on 8/10. I was really nervous before surgery, too -- and, like you said, more about the recovery than the surgery itself. I'll be honest, the first few days were rough. For me the worst thing was nausea brought on by pain meds. Vomiting/dry heaves when you have a brand new abdominal incision is really painful. Fortunately the worst of that only lasted for about 48 hours. If I'd had the sense to ask for a different painkiller, I might have gotten through it faster.

My first day or two at home I still felt all-over crappy, but since then it's been getting steadily better and I'm up and around and able to take care of myself just fine.

What are you planning to do with your son while you're in the hospital? If he's staying with family, you might want to think about asking them to keep him an extra day after you get home. Or is there someone who can come stay with you for a few days after your surgery? I live alone, so I had my mom come stay with me for the first week. I don't know what I'd have done without her... and I don't have any kids to take care of, just me and my cat.

I haven't had much issue with the "swelly belly" yet, just the first few days. Hoping it stays that way! In the hospital they gave me stool softeners, and those did the job to prevent constipation. I haven't taken any since I've been home and I haven't needed them.

Best of luck with your surgery and recovery!
Unread 08-21-2011, 04:48 PM
Re: Very nervous

Thanks for the info. My mom and dad will be up here for the first 2 weeks- they will watch my son while I am in the hospital. After I get out, he will stay with his dad for one week- I am hopeful that my second week after surgery I will be more able to take care of him.
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Unread 08-21-2011, 08:01 PM
Re: Very nervous

I've also had bulimia issues for years -- but due to a brain tumor. But it works out the same. If that issue is re-triggered, then God and I will just re-conquer it. Again. Positive thinking helps me tremendously ... especially talking myself out of getting sick for as long as possible, then trying to fall asleep. Good luck!
Unread 08-21-2011, 08:07 PM
Re: Very nervous

Thanks, Gloriame!
Unread 08-21-2011, 10:37 PM
Re: Very nervous

I sounds as though you have done a good job with planning. Basic recovery from a TAH does take several weeks, so whenever you get an offer for help, accept it! Full recovery from any major surgery takes months; you're going to get tired more easily than usual. Take good care of yourself!
Unread 08-21-2011, 10:51 PM
Re: Very nervous

You're very welcome, fsugirl. WE. CAN. DO. THIS. Sending you hugs!!
Unread 08-22-2011, 12:07 AM
Re: Very nervous

Originally Posted by fsugrl1175 View Post
Thanks for the info. My mom and dad will be up here for the first 2 weeks- they will watch my son while I am in the hospital. After I get out, he will stay with his dad for one week- I am hopeful that my second week after surgery I will be more able to take care of him.
Oh, excellent. That's good planning. By the second week you should be up and about, but be VERY careful about no lifting (nothing over 10 lbs. even through the fourth week) and give yourself lots of chances to rest.
Unread 08-23-2011, 11:35 PM
Re: 2 more weeks...and fighting an ED in addition...

I just wanted to drop by and share that we do have an Endometriosis Support forum where you are welcome to post any of your endometriosis questions! Since a hysterectomy is not a cure for endometriosis, you will find pre and post hysterectomized ladies posting there!

Are you having surgery with an endometriosis specialist who can excise the endometriosis?

Unread 08-24-2011, 04:12 PM
Re: 2 more weeks...and fighting an ED in addition...

I can totally relate!!! I had my TAH in May due to Stage IV Endometriosis. It is not a cure, but if you have a surgeon who is skilled enough to remove all of it, you should have great success!!!! Weiser has some awesome information she can share with you. I would also suggest looking at the Endometriosis Support forum. Maybe you could find a specialist that could ensure the best results.

As far as the bulimia and swelly belly....I can only say this, I am a recovered anorexic and the swelly belly was hard for me. I have issues with my self image and it was very hard for me to look down and see my belly all swollen. I did learn that if you follow your restrictions (no bending, twisting, lifting, pushing, pulling) then the swelly belly doesn't seem to be as bad. The more you do, the more you swell. Take any help that is offered to you during your recovery.

Also, know that the swelly belly is just that.....swelling. It isn't fat on your body and it isn't anything that can be controlled with food.

I know how hard it is to deal with both the endometriosis and an eating disorder. It is a lot for one person to have on their plate...and then add that to being a single mother! Just put your faith in God and lean on your sisters here, we are here to help. If you ever need to talk, please feel free to post!!

Keeping you in my thoughts and prayers and wishing you the absolute best in your journey to better health!!!

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