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After reading ome of these posts (new here) there is way more to this than I thought! After reading ome of these posts (new here) there is way more to this than I thought!

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  #1  
Unread 08-24-2011, 10:46 PM
After reading ome of these posts (new here) there is way more to this than I thought!

For over 2 years I have had painful periods that come every 10-14 days, the rest of the month I spend with cramps and am very lucky if I have a few days of NO gyn issues. After I was dx'd with cervical dysplasia and lesions I was facing making the decision to wait out the dysplasia in hopes it would "clear up by the next pap 6 months later or go ahead and have the cervix "scraped and cleaed" so to speak. But that would not fix the adenomyosis that was causing my 2x month periods so I told the doc I wanted a hyst which is scheduled for Sept 14. I am soooo looking forward to it but I have been reading these posts and see there is more t it that just popping in to the hosp for a few hours then taking a 6 weeks "vacation" from work. I guess I was looking at it through rose colored glasses and seeing only the benefits and positives of surgery. I go to my pre-op Sept 9 and will be able to ask my questions then. Hopefuly it will be vaginal laproscopy (3 incisions??). I was under the impression I would be coming home that evening (again rose colored glasses) but I don't know......and I read a post about a belly belt?? painful intercourse even after I am healed?? days in the hospital?? hmmmmm......
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  #2  
Unread 08-24-2011, 11:28 PM
Re: After reading ome of these posts (new here) there is way more to this than I thou

I too was just diagnosed with Adenomysis; my Gyno told me I'm a candiate for the Robotic surgery, 2 days in hospital, 1 wk before I can drive; 4 wks before returning to work full-time and 6 wks before exercise and sexual intercourse. I thought all that sounded reasonable...but now reading some of this I too am wondering if I should tough it out and deal w/the pain, blood clots and heavy periods. I have not scheduled the surgery, have alot more to research.

SimKal
  #3  
Unread 08-24-2011, 11:48 PM
Re: After reading ome of these posts (new here) there is way more to this than I thou

Don't let other people's surgery scare you from being healthy and pain free. Everyone has different experiences when it comes to surgery. The best thing to do is ask your doc about any fears or questions you have. Also everyone's story is not all bad. Try not to look at all the bad things that could go wrong. My surgery went very well. My only major complaint was an UTI after surgery. You will be tired, very tired. Follow your docs orders and take it easy. Good luck and take care.
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  #4  
Unread 08-25-2011, 02:28 AM
Re: After reading ome of these posts (new here) there is way more to this than I thou

Stephiede made a good suggestion in talking to your dr about the fears or concerns you may have. Keep pen and paper with you now until your pre-op so you can jot down questions as you think of them. (if I dont do that, I forget most of everything I wanted to ask!)

I am currently 4 weeks post-op and I do still have pain and get tired several times a day, but this is normal. I recently stopped taking my pain meds and I am only on ibuprofen now which helps a lot. Many people talk about being pretty swollen for a long time, but My swelling really isnt that bad now I think compared to what some people say, so everyone truly is different.

I did have some complications that required an additional surgery a few days later, but what I went through seems to be pretty uncommon.

I would suggest completing your research and taking note of any possible complications that you may be at risk for and discuss those with your doctor as well. I guess I need to do some research of my own and find out what the robotic surgery is, so I cant comment on that method. Also, make sure you are aware that your doctor can have full intention to do your procedure one way, and once he gets in there, he may need to do it differently to better benefit you. They only do it differently if they truly feel it is necessary; if you had something else going on in there, such as endometriosis, he may need to do it abdominally. That may seem scary, but you would benefit from having everything taken care of at once rather than him leaving something behind that would require additional surgery. One time deal...

Research all methods of the procedure as well as any concerning complications to discuss with your doctor. You may also want to get a better idea of what to expect post-op from ladies on here who have had the procedure you are considering. Doctors do not always tell you everything that can happen or every possible side effect, and partly beause they do not want to scare you; many of the complications are listed b/c they have to be lawfully, you may not have any complications at all and have a speedy recovery!!

A there any other treatment options for this to try before having the surgery? That may be something to look in to as well! I had endo really bad and while I was researching, I read that they believe endometriosis happens earlier in life for women, but can lead to adenomysis sine that happens generally beyong 30.
Best of luck to you and big hugs! Im glad you are doing your research to better educate yourself! ...Just dont believe everything you read or get scared by the ones who did encounter a rare
  #5  
Unread 08-25-2011, 03:38 AM
Re: After reading ome of these posts (new here) there is way more to this than I thou

I agree with Love*Peace*Pink and stephiede - information and research are key. Each one of us is different and will have a different experience - only you and your doctor(s) can work out if the benefits outweigh the risks.

Go to your doctor having done as much homework as you can and write down all your questions in advance so you don't forget any.

Also, please remember that while the internet is an extremely useful tool for your research it doesn't really give you any idea of the statistical probability of you having the same complications or difficulties that you may read about here or on other Women's Health sites.

It is my experience that people are far more likely to need to talk about and share the challenges they have faced than share what felt comfortable or easy. In other words you may read a disproportionately high number of accounts where there were surgical or post-op complications. That's one thing I love about this site - the team encourage the membership to share ALL their stories, good and bad.

If you read something that scares you then please do take note of it and ask your doctor, but be sure to listen to her/his answers - specifically those about percentages of patients who actually experience what ever it is.

Speaking for myself, I am having a much less challenging recovery than I expected - I'm having to work quite hard at taking it easy because part of me wants to get back to normal. Though a bigger part of me loves all this lounging about
  #6  
Unread 08-25-2011, 04:34 AM
Re: After reading ome of these posts (new here) there is way more to this than I thou

Yup, all of the above. I had TVH 3 weeks ago today. I really scared myself by reading too much. One thing that I wish I would have had before surgery (mine didn't arrive until a week after) was the booklet from HS that helped explain mostly what to expect after surgery. I signed to get it in the mail when I registered on HS. Very informative in a concise manner-would highly reccommend it before surgery (it was free).
  #7  
Unread 08-25-2011, 09:58 AM
Re: After reading ome of these posts (new here) there is way more to this than I thou

I had a LAVH. My recovery has been great! I was taken into the OR at 8am and was back home at 5pm. It was great to be resting in my own house...my own bed! My hubby went back to work the day after my surgery...so I was home with our 5 kids and many animals

After just a few days, I was back to cooking, driving and doing light housework. It's been just over 2 weeks and I feel great! Aside from sex, I am back to doing normal activities.

There's no way of knowing how each person will recover, but you could very well get what you picture
  #8  
Unread 08-25-2011, 11:39 AM
Re: After reading ome of these posts (new here) there is way more to this than I thou

I want to thank all those folks who replied. It is helpful for those of us who are really scared.
  #9  
Unread 08-25-2011, 12:08 PM
Re: After reading ome of these posts (new here) there is way more to this than I thou

It scared the crap out of me when I first started reading posts.

I too, thought I'd just pop in the hospital and be on a "vacation" from work to heal. Its not that easy and I'm so glad I found this site to find out EVERYTHING before hand.

As I've said before, it was worth it for me.

Its still a good idea to KNOW what you will be facing and not be surprised AFTER surgery.

Being prepared is the best thing you can do.

Good luck to you !
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