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  #1  
Unread 09-02-2011, 10:19 AM
Lupron

Hi, My name is Lucy and i currently on Lupron to shrink my uterus/fibroids so that i can hopefully have a LAVH instead of a TAH. My uterus is the size of a 20 week pregnancy with 5 fibroids the 3 largest 2 8cmm and 1 is a 9 cmm. I have read horror stories about Lupron, but i have been on it for a short time now 2 weeks with no problems at all and will be having one more injection that will last 3 months prior to surgery. I would love any feedback on Lupron How long before you start to see results, shrinkage. I am petrified it wont work and i will have to have the abdominal hysterectomy Any feedback would be greatly appreciated. Thanks!!! and good luck to everybody.
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  #2  
Unread 09-02-2011, 01:28 PM
Re: Lupron

lucy1109,

Lupron did a great job of shrinking my big fibroids
, I'd say to 1/3 the original size. I was able to have a LSH.

The size of your uterus shouldn't be the only factor in determining the type of hyster you can have. If it's very important to you to have a minimally invasive procedure, you may want to seek out a second opinion. Some doctors are much more skilled and can do procedures other doctors won't. You have time to research while the Lupron does it's thing.

I actually didn't feel to bad on Lupron, I was lucky. If you start having menopause symptoms, talk to your doctor.

Good luck with the Lupron!

  #3  
Unread 09-02-2011, 08:24 PM
Re: Lupron

I took Lupron for 4 months starting March. 2010 in order to try to reduce the size of my fibroids prior to my endometrial ablation in May 2010. Fibroids were not significantly reduced but I experienced joint pains daily from March 2010 until Fall 2010 until Lupron finally exited my system. Even though I took the 3 month injection, it took 6 months for Lupron to leave my body. I was also referred to a rheumatoid specialist too. I had to start taking 800 mg Ibuprofen 2-3 x per day to help with joint pains because I was having a hard time climbing stairs and getting out of my car when getting home after work. So, I regretted taking Lupron because it caused more problems than benefits.

That was my personal experience and not everyone has the same response to Lupron. Best of luck !
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  #4  
Unread 09-06-2011, 12:40 PM
Re: Lupron

Wow, thank you so much for both of your responces, I am on day 19 of my first injection and so far just a few hot flashes. 1/3 of the size is awesome, i am sorry to hear Soniabean, that you did not have any luck with Lupron, i am reading a lot of that., I would just hate to have to go thru an abdominal surgery if the lupron does not do its job ;( thank you both for your reply's,
  #5  
Unread 09-06-2011, 08:33 PM
Re: Lupron

  Quote:
Originally Posted by soniabean View Post
I took Lupron for 4 months starting March. 2010 in order to try to reduce the size of my fibroids prior to my endometrial ablation in May 2010. Fibroids were not significantly reduced but I experienced joint pains daily from March 2010 until Fall 2010 until Lupron finally exited my system. Even though I took the 3 month injection, it took 6 months for Lupron to leave my body. I was also referred to a rheumatoid specialist too. I had to start taking 800 mg Ibuprofen 2-3 x per day to help with joint pains because I was having a hard time climbing stairs and getting out of my car when getting home after work. So, I regretted taking Lupron because it caused more problems than benefits.

That was my personal experience and not everyone has the same response to Lupron. Best of luck !

I've had a single dose about 3 weeks ago and now I know why I'm having pain on one finger and its swollen right on the joint....
  #6  
Unread 09-07-2011, 12:14 AM
Re: Lupron

I had a shot of Lupron in June and I think it magnified my problems by 100%! Worst thing I ever did. The first two weeks were fine, then all hell broke loose. The joint pain is unbearable. My knees and shoulders, OMG, I feel like I'm 90 years old! It was supposed to shut down my ovaries so I wouldn't have all the pain I'm having. Well, I feel worse in those areas than I did before the shot. I also started having hot flashes all the time. They come up behind my right ear and then I'm sweating. I sweat ALL the time. I did get Norethindrone, which my ob said is supposed to go along with the shot, but the dr. that ordered the shot for me did not give it to me. Idk. I hope you have better results with it than I did. I'm due for the 2nd shot this month and I WILL NOT be getting it!
  #7  
Unread 09-10-2011, 04:08 PM
Re: Lupron

Hi Julzav-
Sorry to hear you are having joint pains as well! It is very similar to what I experienced with Lupron. Everything was fine with the first / one month injection and then, all hell broke loose shortly after taking the 3 month injection. Joint pains occurred daily usually in late afternoon and evenings. I would have difficulty walking up the stairs, getting out of my car, etc. I felt like a grandma! It lasted from early March until mid Sept 2010 and didn't even reduce my fibroids by much. By the end of August (6 months of daily joint pains), I was asking all of my 3 doctors (OBGYN, rheumatoid specialist and my regular family medicine MD) to find out when I could expect the joint pains to stop. No one knew! Then, I got scared and wondered if this would continue even tough, the doctor told me that we had to wait until the Lupron would exit my system. Then, sometimes, last September, the joint pains suddenly worsened for a few days and then, stopped completely on the next day. By then, I didn't want to continue taking 800 mg Ibuprofen 2 to 3 x per day because I was afraid I might develop another health issue. Just wanted to share with you so, you might
have a better idea of what might happen for you instead of going through the whole thing like I did- in the dark! My OBGYN (who is very good) told me I was the only patient he had seen in his career having this reaction to Lupron! Well, it sucked but it turned out okay!

Take care
  #8  
Unread 09-10-2011, 05:14 PM
Re: Lupron

Hi Lucy,
I just had my LAVH on September 2nd. I had a 20 week uterus and large fibroids, one at 12 cm. I took lupron, one shot each month for 3 months before my surgery. I didn't have any side effects until after the first month then I had hot flashes and insomnia and the last shot 2 weeks before my surgery made me a little emotional but it did shrink my fibroids about a month before my surgery so I was able to have the LAVH without any problems.

I am so glad I had seeked out a 2nd opinion and did this. My first doctor would only consider a TAH. To me, it was worth it!! Good luck on the Lupron.
  #9  
Unread 09-10-2011, 08:16 PM
Re: Lupron

I had three rounds of Lupron to shrink my fibroids. My fibroids were so large that the dr. said he would have to do a vertical cut, but because the Lupron shrunk the fibroids I was able to have a horizontal cut. The only side effects I had with the Lupron were hot flashes, memory loss, and a I was a little emotional. Now that I am reading this I can attribute the joint pain in my fingers. I was already diagnosed with RA but it wasn't really bothering me until I started taking the Lupron. But I can honestly say none of the side effects would have changed my mind about taking the Lupron. I have heard horror stories about Lupron but I am happy to say my side effects were mild.

Good Luck and I wish you all the best with the Lupron and your surgery!!!
  #10  
Unread 09-11-2011, 06:11 AM
Re: Lupron

I was on Lupron many years ago to help deal with the pain of endometriosis. I was one of the lucky ones, I had no symptoms that gave me problems. I was very happy not to have to deal with the pain of periods, and although I did gain some weight, it wasn't unmanageable.

I do hope everything goes well for you, and that the meds can help!

Take care
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