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question about LSH & adenomyosis question about LSH & adenomyosis

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Unread 09-12-2011, 05:49 AM
question about LSH & adenomyosis

Hi, I've finally scheduled my laparascopic supracervical hysterectomy (LSH) for November, after over a year of procrastinating. My supposed adenomyosis is making me bloated and feel very uncomfortable and I believe it's time.

I've read about people having very enlarged uterus removed, and was curious whether this is a problem with laparascopic surgery. Can any size uterus be removed with this method?

Also, I wanted to hear from ladies who thought they might have adenomyosis, only to find out at surgery there were other problems?

thanks so much! Carol
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Unread 09-12-2011, 06:27 AM
Re: question about LSH & adenomyosis

Hi npi, I had surgery due to suspected adenomyosis. My uterus was enlarge (along with a lot of other symptoms). It was about the size of a 12-13 week pregnancy. I had the Davinci method. After the surgery was over and I got my pathology report back I did indeed have the adenomyosis confirmed. Not sure if this helps. Good luck.
Unread 09-12-2011, 07:31 AM
Re: question about LSH & adenomyosis

Hi there . . . I don't have adeno, but I am having an LSH this week. My GYN explained to me that they cut the uterus into pieces to get it out through the small incisions (I was wondering the same thing -- even at normal size, how does a 2- to 3-inch-sized organ fit through a 1/2-inch opening?!)

Best of luck to you!
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Unread 09-12-2011, 07:36 AM
Re: question about LSH & adenomyosis

Hi Carol,
I'm having BSO/LSH on Monday the 19th of September. I do not have adeno, however I do have enometriosis, ovarian cysts and cystic structures in my uterus. I was wondering if there is something pathological, then would cutting the uterus spread the cells into the abdominal cavity? I guess I'll have to ask my doc that question this week when I go for pre-op.
Unread 09-12-2011, 07:42 AM
Re: question about LSH & adenomyosis

What I was told, in MY case, Da Vinci method, was that they do indeed cut it in strips, but I would have to have my cervix removed in order to do this as it is such a small "work area." I could not keep my cervix which bothered me a lot (I am not sure why). As of this time I am not sure I miss it. Only that I feel better and I guess that's all that matters for me.
Unread 09-12-2011, 09:37 AM
Re: question about LSH & adenomyosis

Thanks ellagal, glad to hear you are feeling better. I hope for the same. I'm wondering how "pregnant" I am, as I've never felt so bloated in my life. Pants don't fit me and I feel pressure all over. Were these your symptoms? That's why I'm curious if something else is going on. My dr has said he will leave the cervix for support.
Unread 09-12-2011, 09:52 AM
Re: question about LSH & adenomyosis

Hi npi, I had the bloating and tons of pressure! I kept looking sidewards in the mirror and I thought I was huge. My husband told me after surgery that he thought I had gotten very big but said nothing so I wouldn't be upset more. I too could not button my pants and kept leaving the top button open. I lived like that for a very long time. I started to have trouble peeing and then I started to bleed real heavy every day. Then of course got anemic and so on. Now I still feel a little bloated or swelly belly off and on but I always can button my pants. Thank heavens I didn't get rid of all my pants like I wanted to before surgery. I kept thinking I was gaining weight. My weight would jump up as much as 8lbs and then it would go down. So I think I know exactly what you are feeling.
Unread 09-12-2011, 11:21 AM
Re: question about LSH & adenomyosis

Ellagal, thanks for the confirmation. About 4 months ago, I decided I really was just getting too overweight, and started working out more to slim up. I've toned up in muscle but that belly just protrudes out there. I can't even take a 1/2 inch off my waistline, and some days pants just don't fit at all. On top of that, I've had several urinary tract infections, and have to pee all the time. (Funny no doctor will make that association but I'm convinced it's part of my problem.) Lately my back has start hurting and I find myself grunting when I bend over.

For a while, I was convinced all this was due to my age (47) and physical condition, but the pressure feeling just keeps getting worse. Finally put two and two together, read HysterSisters and scheduled my surgery.

Tell your husband he was very kind, as my partner has been, to put up with all this swelling, moaning & groaning!

I won't throw away those jeans yet.
Unread 09-12-2011, 12:10 PM
Re: question about LSH & adenomyosis

Definitely hang on to those jeans. I too was working out. I am 5'7" and always weighed about 128. Despite my working out and being very active my belly continued to look big. I gained weight only there. I started eating even less figuring my metabolism was changing. Then I got a kidney stone last year. Unusual for me to get something like that after 50+ years of never having a problem. The Uro guy said drink more water and change the diet. Well my diet didn't look like the offender because I was eating less and very healthy. So I was drinking tons of water. Then this past year I was having trouble trying to pee. Uro guy couldn't see anything and just said drink more water. I was floating away!! I had pain in my right side. My back was always bothering me..... kind of like sciatica. Enough to see an orthopedic guy. I was sent to PT. Didn't really help much. This all went on for over a year. Finally I demanded an MRI from Ortho guy. He said I might need surgery or shots. WHAT?? So I took my films to a neuro surgeon who said she could understand why I was having pain on my left side--BUT MY PAIN WAS ON THE RIGHT SIDE-- About a month later I started uncontrolled clotty bleeding. The rest is history. I never want to go back. The only person I am seeing right now is a new primary (fired the last one). My Gyno (she is the best) and my chiropractor who is straightening me out after over 1+ years of putting my body out of alignment due from making my body sit,stand and walk off balance from the pain.
Seems to me this adenomyosis only gets worse, at least it did for me. I am not sure if it's true in every case but it is a bad thing.
npl, you were very smart to do research on this. I didn't know my problems could have had anything to do with my female organs but I do feel one of these brilliant doctors I went to should have picked up on this.
Unread 09-13-2011, 02:29 AM
Re: question about LSH & adenomyosis

Ellagal, wow, sounds like you went through alot. Did you ever have a pelvic ultrasound done before your surgery? I must admit my Gyno warned me over a year ago -- an ultrasound done then showed "Asymmetric adenomyosis" and my uterus measured 10.1x5.9x6 cm. He said a hysterectomy was the only way, but I chose to ignore him and the diagnosis for several months. I only put it all together when this weight problem began in earnest and I started exercising with no luck. That's when I got online and realized it could all be connected.

If you did have an ultrasound, what did your uterus measure? I'm trying to get an idea if mine is that oversized. Of course I could ask my Dr all these things but I won't see him until shortly before surgery as I currently am overseas.

I am curious what other women have to report on ultrasound diagnoses. This has all been extremely useful for me, thanks.

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