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Hormones, migraines and endo Hormones, migraines and endo

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  #1  
Unread 09-28-2011, 07:07 PM
Hormones, migraines and endo

I get hormonal migraines that cluster around my periods and ovulation. When I take bcp I end up with a migraine every day or every other day.

The problem for me is that I have endo. In 2008 they removed endo lesions and I felt great for about 2yrs before my body went haywire. Yesterday I had SIS and they found polyps in my uterus. The dr suspects they are causing my bleeding problems while the endo is causing my pain. He scheduled me for hysteroscopic polypectomy and lap to remove the endo and polyps.

So I know that the endo will come back if I don't do something to prevent it. For those who suffer from migraines and endo, how do you balance it all?

Currently I take 300mg of Lyrica daily for migraine prevention and I keep abortive meds with me at all times for when I feel something come on. I am under care of a neurologist who tells me I should avoid hormones if at all possible. What's a girl to do?
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  #2  
Unread 09-28-2011, 08:00 PM
Re: Hormones, migraines and endo

I get migraines too, with auras, so I am not allowed to take estrogen, but progesterone was an option for me until my pelvis separated. (Progesterone causes a loosening of the ligaments and tendons in your body, I took it after my body healed and it caused a re-separation....NEVER AGAIN!) Is progesterone an option for you?

I am seeing a couple of endometriosis specialists in the next couple of weeks, but from my "first opinion" doctor, it sounds as though my best option is to have a hysterectomy and get the endometriosis excised. We'll see what the specialists say, but this is what I'm guessing I'm going to need. I can share more once I talk to my specialists!
  #3  
Unread 09-28-2011, 08:27 PM
Re: Hormones, migraines and endo

Good luck.....progesterone isn't an option either. I've tried low hormone pills, single hormone pills and every pill in between. My neuro says that my headaches would likely get worse if I had a hysterectomy so I'm trying to avoid that if possible.
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  #4  
Unread 09-28-2011, 08:39 PM
Re: Hormones, migraines and endo

Did he say why the hysterectomy would cause the headaches to increase? That's interesting.
  #5  
Unread 09-28-2011, 09:04 PM
Re: Hormones, migraines and endo



Even with migraines (hormonal and otherwise) and endometriosis, I have kept both of my ovaries. My neurologist doesn't recommend an oophorectomy for migraines as the success rate is pretty low. Also, if one can't use HRT, then an oophorectomy opens the door to a multitude of other health concerns.

For my migraines I used Keppra (an anti-seizure med) and abortive and pain meds when necessary. For the endometriosis, I initially had a hysterectomy as my uterus was covered with the implants, and then I had excision surgery with an endometriosis specialist.

I would recommend looking for a doctor who specializes in treating endometriosis. Having the endometriosis excised by a skilled surgeon could alleviate that part of the picture regardless of the migraines and even if a hysterectomy were necessary. (As an FYI, a hysterectomy is not a cure for endometriosis and it has no impact on migraines.)

I know it is all so very frustrating and my goes out to you!

  #6  
Unread 09-28-2011, 09:12 PM
Re: Hormones, migraines and endo

Thanks Weiser for that response! I was curious how others dealt with it....I'm still very much in the "gathering" stage before I see the endo specialists in a couple of weeks and all these posts are helping me with my list of questions for each of them. SO HELPFUL!
  #7  
Unread 09-29-2011, 04:18 AM
Re: Hormones, migraines and endo

I agree with what Weiser said and it's basically what my neuro said as well. If I can't take bcp b/c of headaches then I can't take hrt either. I only have 1 ovary left as my other was removed due to a very large cyst 6yrs ago. So my neuro basically said that losing my ovary would open a whole other can of worms.

Weiser.....so you still have your ovaries but then how do you prevent the endo from coming back? That's my biggest concern. I've had endo removed in the past and now 3 yrs later I'm looking at another lap surgery to remove it again. I don't want to find myself in this position in another 3 yrs.
  #8  
Unread 09-29-2011, 07:02 AM
Re: Hormones, migraines and endo

I can give you a bit of an idea of why the endo won't come back if you keep your ovaries. It will ONLY come back with the removal of the uterus if they do not excise all of the endometriosis at the same time. Since endometriosis is the lining of the uterus outside of the uterine wall, if it is all removed it will not recur and new endometriosis cannot form.

This is why everyone recommends seeing an endometriosis specialist, because these doctors are knowledgable about endometriosis, complex cases and the complete removal of it.

I'm sure others can give more detailed answers. Hope it helps some!
  #9  
Unread 09-29-2011, 09:07 AM
Re: Hormones, migraines and endo

You should check out Weiser's story in the Endo/Adeno stories section! There are lots of stories of women who have endo pain after hysterectomy, even with both ovaries removed which is very frustrating, and they are told their endo "grew back". Probably it was never actually removed in the first place, or it was lasered or burned and not fully cut out. Endo can respond to very low levels of estrogen, and can actually store/make it's own estrogen (sometimes it sounds like a horror movie where the monster just keeps coming back!).

This was crazy news to me, a year ago I didn't even know what endo was! I suggest seeing an endo specialist. I don't have a lot of pain most of the time, so I had several MDs tell me it couldn't be endo- fortunately I am stubborn and know how to read!! I too get headaches with my cycle, but I find stress is a huge factor so I try to keep a close eye on the calendar. Some folks (endo or not) have good results from diet changes for migraines, maybe there some things out there left to try. Don't give up, there are a lot of resources out there!!
  #10  
Unread 09-29-2011, 04:14 PM
Re: Hormones, migraines and endo

Hi,
I have migraines related to hormone fluxuation- ie period, or ovulation, or bcp, etc. I just wanted to say that since my hysterctomy my hormones are definitely fluxuating and I have had 3 of the worst migraines ever, EVER!!! I had to get an IV injection of torodol for the first one to go away. I plan on talking to my doctor about going back on a preventative medication asap. In the meantime my doctor gave me fioricet, which seemed to do the trick for the other two migraines. It probably would have worked on the first one too if I had been able to take right away. Luckily I was in the hospital for unrelated issue when the 1st migrain got really bad so they were able to help me with the torodol. Moral of the story- removing ovaries isnt a treatment for migraines- may be the opposite in fact. Also, to the original post author, have you seen a neurologist for your migraines? They are the best people to help out with this problem. there are preventative meds you can take daily that can help stop you from getting migraines.
Merr
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