Adenomyosis , fibroids, pain and frustration! | HysterSisters
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Adenomyosis , fibroids, pain and frustration! Adenomyosis , fibroids, pain and frustration!

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  #1  
Unread 10-21-2011, 07:19 PM
Adenomyosis , fibroids, pain and frustration!

So glad that I found this site... Ive found tons of information and support ( even though I've been lurking)
My surgery is scheduled for 10/28.. Having the davinci with uterus and cervix removed... After 2 years of going back and forth between my Gyn, MD and GI doctors, finally got a diagnosis about two months ago. Through and MRI. I knew that I had a fibroid ( now there's 2) but theyre pretty small.. Also knew I had a cyst on my ovary but was told it was not serious and comes and goes on its own( is that possible?)
So now I find out that I have adenomyosis .. Im in pain even when I'm not on my cycle.. I feel like I'm having Braxton hicks/ contractions all the time.. I had a few days of relief but the pain is back with a vengeance.. I've been prescribed every pain killer under the sun but I'm tired of taking pills. They disrupt my every day functioning ( but so does the pain, can't win huh). My doctor thinks I have a kidney infection and I def have a uti.. Abt. 2 weeks ago , I started having this sharp pain on my left side, in addition to pain in my abdomen and pelvis... I'm just so miserable and I want this over with......
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  #2  
Unread 10-21-2011, 07:59 PM
Re: Adenomyosis , fibroids, pain and frustration!

Sorry to hear of all your complications. As if just having one issue wasn't enough right . I also had pain, like yours and all they ever find is a cyst that comes and goes on its own. I've always accepted that they can but like you say , can they really . Instead of dealing with pain and meds that barely work if that I also am going with a hyster . Good luck to you & hang In there you are not alone!
  #3  
Unread 10-21-2011, 09:33 PM
Re: Adenomyosis , fibroids, pain and frustration!

I have andenomyosis and the pain does get really bad. Nothing seemed to help. I guess the best was 800 mg motrin but that did not do much either.

I am so sorry you are going thru this. I can tell you that I am only 3 days post op and feel better than I have in months. Hardly taking pain pills now... Hang in there... you will feel better soon...
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  #4  
Unread 10-22-2011, 10:44 AM
Re: Adenomyosis , fibroids, pain and frustration!

Sounds like me! Im having lots of pain also. For many months. Im having a Vag. Hysterctomy Nov 30th. My Fibroid tumor is the size of a golfball, don't know if thats considered large or small? But I recently gave in and started taking pain meds. It's helping. So sorry to hear they didn't work for you. But I really understand how you feel about the pain. Thats first time I have heard another woman explain the way their pain feels like Braxton Hicks! It's a comfort to me because I thought I was crazy when I kept telling my husband and Dr my pain felt like I was in labor! And I know how that REALLY feels because I had natural childbirth twice. Thank goodness you don't have to wait too much longer for your surgery. I hope after you heal you will be PAIN FREE.
  #5  
Unread 10-22-2011, 10:53 AM
Re: Adenomyosis , fibroids, pain and frustration!

I was wondering if any of you with adeno suffered from bleeding after intercourse ?
  #6  
Unread 10-22-2011, 11:03 AM
Re: Adenomyosis , fibroids, pain and frustration!

yes... I had bleeding after sex. I also could have one or 2 periods a month. extreme bleeding with lots of clots...
  #7  
Unread 10-22-2011, 11:31 AM
Re: Adenomyosis , fibroids, pain and frustration!

  Quote:
Originally Posted by fullof??? View Post
I was wondering if any of you with adeno suffered from bleeding after intercourse ?
Im not sure what adneo is, but i have a fibroid and I have lots of pain with sex.
  #8  
Unread 10-22-2011, 11:34 AM
Re: Adenomyosis , fibroids, pain and frustration!

I feel your pain, and I am sorry. I too have adenomyosis and endo and the pain these days is unbearable. I have the sharp pains on the sides as well, I know I have endo and adhesions there and my ovary looks like it is glues again to the fundus and ligament and I also have a cyst. I am scheduled for my hyster on 12/13... so far away. I am also getting a little sling for my bladder and getting checked for IC. I too pray for relief, I am so over this and ready to live again and hopefully be pain free. Good luck with your surgery and I hope you get relief!
  #9  
Unread 10-22-2011, 11:38 AM
Re: Adenomyosis , fibroids, pain and frustration!

Thank you for the replies my dr isnt sure what is wrong with me. In april I had a lap to look around but they couldnt really see anything of concern even though I was in pain. Since then things have gotten worse so now im just going to have a hyster. Totally my.choice and even if I have.alot of questions im totally fine with having it.done .
  #10  
Unread 10-22-2011, 03:31 PM
Re: Adenomyosis , fibroids, pain and frustration!

Thanx for the responses ladies... Although this situation sucks, I'm glad to have found ppl that understand how I feel.. I was beginning to think that I was going crazy until I was diagnosed with Adenomyosis ( although I never heard of it before then) I'm trying to stay positive but I have a strong feeling that my Dr is going to find something else going on in there during the surgery... This pain is just too much.. Best of luck to u ladies.. I'm 6 days and counting...
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