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Hysterectomy on Nov 4th Hysterectomy on Nov 4th

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  #1  
Unread 10-23-2011, 09:11 AM
Hysterectomy on Nov 4th

Hi. I am 28yrs old (29 next month) and have been battling endometreosis for over 6yrs. It has been a long, painful journey, that has included 2 laprascopies (that provided little relief). I have a hysterectomy scheduled for Nov 4th (less than 2 weeks away). I have been blessed with 3 beautiful children and now am ready to take care of myself and take action to finally free myself from the physical and emoitional pain of endometreosis. In addition, I have been battling high grade abnormal cerival cells for over 2 years. I have been getting biopsies on a regular basis to monitor the condition.

I am having a complete hysterectomy (including having my cervix and both ovaries removed). The doctor will be putting me on HRT including estrogen and testosterone (for my sex drive). I am nervous for the procedure itself, about the pain afterwards and most worried about menopause. I know it will all be worth it in the end though.

Just wanted to post and see if anyone would be willing to share their experiences with me. How there surgery went, their recovery (when did you start feeling better, etc) and most of all, for those that have had both ovaries removed, how this affected you both physically and emotionally (did you take HRT? Did you find it helped?)

Thank you in advance for taking the time to share your experiences with me and for those of you soon to have the procedure, I wish you the best of luck!
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  #2  
Unread 10-23-2011, 08:55 PM
Re: Hysterectomy on Nov 4th

Everyone is different, and heals differently.

I am 46 and had TAH BSO (total abdominal hysterectomy with removal of both ovaries) for a different reason than you are having yours. I had a large cyst on my left ovary, and also had uterine fibroids.

My surgery went well - there were no complications. Recovery has been long and slow. I had extreme fatigue for several weeks, and was on pain meds for four weeks. I had lifting restrictions (10 lbs for 6 weeks and 20 lbs for 8 weeks.) While I did go back to work after 3 weeks at a desk job it was tough! I ended up only working part time for about 4 weeks before I could go back full time. I needed help with chores and shopping for 8 - 12 weeks, and slowly took on more and more as my body permitted.

I am 5 months post op and still in recovery. If I push too hard or stand too long, I can tell because I start to get tired and sore. My understanding is that full recovery is 6 to 9 months post-op.

I am on HRT, because surgical menopause was too difficult for me. I am on estrogen only, and it has helped me quite a bit. Some women don't need anything. Everybody is different.

Good luck with your upcoming surgery.

(((Hugs)))
  #3  
Unread 10-23-2011, 10:29 PM
Re: Hysterectomy on Nov 4th

Hi. My attention was drawn to your post because I too am having a hysterectomy on the 4th (though not expecting to remove my ovaries). I am very anxious and nervous about the procedure. I know in the end it is for the best (unknown bleeding and very painful cramps are horrible) and I have 2 beautiful kids but it still feel awkward. Maybe we can go through this by supporting each other?
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  #4  
Unread 10-24-2011, 10:28 AM
Re: Hysterectomy on Nov 4th

First off, let me say that I'm so sorry you are going through this. I also had a total hysterectomy because of Endo and I would love to share my story with you.

I was diagnosed in March of this year with Stage IV endometriosis and was offered the drug Lupron to try to "kill" the disease....which I found out to be completely NOT TRUE!! I didn't take the medication because it had some horrid side effects that I just wasn't willing to deal with.

I was then offered the option for a total hysterectomy and excision of the endo, which is what I utimately decided to do.

I do not have children of my own, so this wasn't an easy decision to make, but I knew it was what I had to do if I wanted any chance to get my life back.

May 11,2011 was my surgery date. I had an abdominal hysterectomy with removal of both ovaries, tubes, as well as my cervix. I also had an appendectomy at the same time. The surgeoun also excised all of the endo out of my pelvic cavity....which I'm sure was no easy task!!

My recovery went well. A few minor set backs, but nothing major. I developed a "fluid pocket" behind my 5 inch bikini line incision, but it eventually went down on its own.

I was off work for 2 months, was restricted from intercurse for about the same amount of time. At about the beginning of the 3rd month, I started to feel more like my old self!! Now that I am almost 6 months post op, I can honestly say, I have never felt better in my life. I really was given my life back and I have absolutely no regrets!!

I am on estrogen replacement only. Some people feel that this isn't the best hormone therapy for someone with endo, but I for some reason cannot take progesterone. (my body just doesn't take it well). The estrogen works well for my menopause symptoms...In fact, once we got the dosage figured out, I have had NO symptoms at all!! I was put on a low dose antidepressant to help with my moods and it has worked well for me.

Now, having shared my story, can I ask you some questions....do you plan to have the endo exised at the time of surgery? I just want you to know that a hysterectomy is not a cure for endo. The only way to "get rid" of it is to have it skillfully excised by a surgeon who is qualified to identify endometriosis and the different appearances it can have inside our bodies. Most women prefer to use an endometriosis specialist. Others also seek the help of an GYN-oncologist. My hysterectomy was ultimately due to the damage that the endo had caused to my reproductive organs. It was the exicision that made the endo pain go away!

Also, have you spoken with your surgeon what method he/she plans on using to remove the endo? It is important that it is not burned (cauterized) or even lasered. This does not get rid of the entire implant and this leaves you with a higher chance of recurrance after surgery.

I wish you the best of luck in your journey. I know this is a lot to take in. This disease is so complicated and so is treating it correctly. I hope you have found a surgeon that you are comfortable with. Again, I have no regrets. If you ever have any questions, please feel free to ask...there is also an endometriosis support forum on here that can offer a wealth of information and support for you. Again, best of luck to you!!
  #5  
Unread 10-24-2011, 12:33 PM
Re: Hysterectomy on Nov 4th

Having TAH/BSO as well on the 4th. I appreciate this site daily as I get more and more questions written down for my doctor. I too was diagnosed back in May of this year with Stage 4 Endo and had an ablation done with removal of 3 chocolate cysts off of both of my ovaries. That is when my doc discovered the Endo.

I like you and scared and nervous and pray for no complications and getting a life back!!!
  #6  
Unread 10-25-2011, 09:18 AM
Re: Hysterectomy on Nov 4th

Thank you all for your replies. I cannot tell you how wonderful this website has been to find. It is a wealth of information and such support.
  #7  
Unread 10-25-2011, 09:21 AM
Re: Hysterectomy on Nov 4th

  Quote:
Originally Posted by marestail View Post
Everyone is different, and heals differently.

I am 46 and had TAH BSO (total abdominal hysterectomy with removal of both ovaries) for a different reason than you are having yours. I had a large cyst on my left ovary, and also had uterine fibroids.

My surgery went well - there were no complications. Recovery has been long and slow. I had extreme fatigue for several weeks, and was on pain meds for four weeks. I had lifting restrictions (10 lbs for 6 weeks and 20 lbs for 8 weeks.) While I did go back to work after 3 weeks at a desk job it was tough! I ended up only working part time for about 4 weeks before I could go back full time. I needed help with chores and shopping for 8 - 12 weeks, and slowly took on more and more as my body permitted.

I am 5 months post op and still in recovery. If I push too hard or stand too long, I can tell because I start to get tired and sore. My understanding is that full recovery is 6 to 9 months post-op.

I am on HRT, because surgical menopause was too difficult for me. I am on estrogen only, and it has helped me quite a bit. Some women don't need anything. Everybody is different.

Good luck with your upcoming surgery.

(((Hugs)))
Thank you very much for sharing your experience with me. I wish you the best of luck with your recovery! I am so happy to hear that the hormones have helped you out so much.
  #8  
Unread 10-25-2011, 09:22 AM
Re: Hysterectomy on Nov 4th

  Quote:
Originally Posted by luvmickym View Post
Having TAH/BSO as well on the 4th. I appreciate this site daily as I get more and more questions written down for my doctor. I too was diagnosed back in May of this year with Stage 4 Endo and had an ablation done with removal of 3 chocolate cysts off of both of my ovaries. That is when my doc discovered the Endo.

I like you and scared and nervous and pray for no complications and getting a life back!!!
I wish you the very best of luck on the 4th! I am sure everything will go well for both of us and it will be something we are very happy we did!
  #9  
Unread 10-25-2011, 09:25 AM
Re: Hysterectomy on Nov 4th

  Quote:
Originally Posted by Traeleigh View Post
First off, let me say that I'm so sorry you are going through this. I also had a total hysterectomy because of Endo and I would love to share my story with you.

I was diagnosed in March of this year with Stage IV endometriosis and was offered the drug Lupron to try to "kill" the disease....which I found out to be completely NOT TRUE!! I didn't take the medication because it had some horrid side effects that I just wasn't willing to deal with.

I was then offered the option for a total hysterectomy and excision of the endo, which is what I utimately decided to do.

I do not have children of my own, so this wasn't an easy decision to make, but I knew it was what I had to do if I wanted any chance to get my life back.

May 11,2011 was my surgery date. I had an abdominal hysterectomy with removal of both ovaries, tubes, as well as my cervix. I also had an appendectomy at the same time. The surgeoun also excised all of the endo out of my pelvic cavity....which I'm sure was no easy task!!

My recovery went well. A few minor set backs, but nothing major. I developed a "fluid pocket" behind my 5 inch bikini line incision, but it eventually went down on its own.

I was off work for 2 months, was restricted from intercurse for about the same amount of time. At about the beginning of the 3rd month, I started to feel more like my old self!! Now that I am almost 6 months post op, I can honestly say, I have never felt better in my life. I really was given my life back and I have absolutely no regrets!!

I am on estrogen replacement only. Some people feel that this isn't the best hormone therapy for someone with endo, but I for some reason cannot take progesterone. (my body just doesn't take it well). The estrogen works well for my menopause symptoms...In fact, once we got the dosage figured out, I have had NO symptoms at all!! I was put on a low dose antidepressant to help with my moods and it has worked well for me.

Now, having shared my story, can I ask you some questions....do you plan to have the endo exised at the time of surgery? I just want you to know that a hysterectomy is not a cure for endo. The only way to "get rid" of it is to have it skillfully excised by a surgeon who is qualified to identify endometriosis and the different appearances it can have inside our bodies. Most women prefer to use an endometriosis specialist. Others also seek the help of an GYN-oncologist. My hysterectomy was ultimately due to the damage that the endo had caused to my reproductive organs. It was the exicision that made the endo pain go away!

Also, have you spoken with your surgeon what method he/she plans on using to remove the endo? It is important that it is not burned (cauterized) or even lasered. This does not get rid of the entire implant and this leaves you with a higher chance of recurrance after surgery.

I wish you the best of luck in your journey. I know this is a lot to take in. This disease is so complicated and so is treating it correctly. I hope you have found a surgeon that you are comfortable with. Again, I have no regrets. If you ever have any questions, please feel free to ask...there is also an endometriosis support forum on here that can offer a wealth of information and support for you. Again, best of luck to you!!
Thank you so very much for your post! You have given me lots of questions to ask my doctor. I know that he is going to be cleaning out all the endometreosis during hte procedure but I am not sure of the method he intends on using. I will be sure to confirm that he is using the best means possible to remove the endometreosis, to lessen the chance of it coming back.

I am so happy to hear that this surgery worked wonders for you. It gives me even more confidence that I am making the right decesion and I will finally have my life back...pain free and feeling more like I use to!

Thank you so much again!
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