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Mirena Coil.. experiences? opinions? Mirena Coil.. experiences? opinions?

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  #1  
Unread 10-31-2011, 10:36 AM
Mirena Coil.. experiences? opinions?

Newbie here.. This was NOT supposed to go into my introduction.. doh!

I'm new and slightly confused.. I was ready to go to my doctor and beg for a hystectomy to relieve the daily pains I experience due to endometriosis.. but, reading up on it, I realised it's not always such a good option.. So, she has given me some options.. 1. Toradol for pain.. sure that *might* get me through the rough days, but I've never taken it and I'm not sure I want to start.. 2. Lupron - Not sure if I want to experience menopause just yet.. 3. Mirena Coil..

I have some options there, and I think I'm leaning towards the Mirena Coil, but I'd like some opinions from others who have been through a situation like mine..

I wonder if I shouldn't ask about the removal of what is already there before taking on anything at all, firstly..

Anyone have any experience or opinions.. Much appreciated!

Thanks,
Shar
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  #2  
Unread 10-31-2011, 08:04 PM
Re: Mirena Coil.. experiences? opinions?

I have not had the Mirena coil but it was recommended for heavy bleeding, but not sure how effective it is for pain. Have you already seen or considered seeing an endo specialist? I found that to be a good choice for me but I know everyone is different. Get as much info as you can to make the best decision possible!
  #3  
Unread 10-31-2011, 11:19 PM
Re: Mirena Coil.. experiences? opinions?



The key for treating endometriosis is the skillful removal of the endometriosis implants. Hence, I would recommend looking for a specialist who would be able to remove the endometriosis.

Did your doctor suggest Toradol or Tramadol? Toradol can only be used for a maximum of 5 days. Tramadol is a non-narcotic pain medication that can be effective as a base pain management medication.

Some women do find Lupron or the Mirena Coil effective but neither are cures. However, one or the other could buy you some time while you research, locate a specialist, and determine a more long term solution.

I wish you all the best for whatever you decide is right for you! Don't hesitate to post any of your questions and concerns, and take some time to look through the information stickied to the top of this forum.

Take care!

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  #4  
Unread 11-01-2011, 08:57 PM
Re: Mirena Coil.. experiences? opinions?

Hi sharshar,
I just had a mirena inserted one week ago. I have a submucosal fibroid causing my heavy periods and severe cramping. After a few discussions I opted to try mirena to bring the bleeding under control as oral bc pills never accomplished much in the way of bleeding management for me. Though my periods have always been irregular, the last 8 months have been reliably heavy and painful with plenty of flooding, large clots and even more pain. My dr's are amazed that I'm not yet anemic and joke that I must really like spinach.

It was explained to me like this: the fibroid causes more surface area in the uterus for endo growth which then means more endo tissue to shed. As the uterus contracts to try to shed the endo, the fibroids mean that portion has trouble contracting and less effective. Complicating my case is stenosis of the uterine cervix, making what can contract effectively work harder to push the sheding endo and large clots through a too small opening. The hope is that the mirena will be effective in thinning the endo layer I have to shed and limit my endo cancer risk. Less to bleed about should mean less pain for me. Maybe no bleeding down the road.

Next on my plate is to unravel what role my cyctic ovaries play in all of this.

I hope this gives you a couple answers or at least some ideas for questions for a dialogue with your dr. about what may or may not assist you with your issues. A hyst. won't cure your endo troubles, they have to get all of it every where it lurks to really nip it in the bud. As one of the other ladies suggested, at least mirena and pain management would buy you time to search for other options as it takes a few months for mirena to find it's stride, then you'd at least know if it works or what other options are for you. Worse case it doesn't work and you have it removed, at least it's reversible, which a hyst (major surgery) is not. I've had Tramadol before post knee surgery when I was tired of tolerating vicodin and my DH is prescribed tramadol for his chronic arthritis pain. I like it, a little too well.

Best of luck finding a route to less pain.
  #5  
Unread 11-01-2011, 09:13 PM
Re: Mirena Coil.. experiences? opinions?

  Quote:
Originally Posted by sharshar View Post
Newbie here.. This was NOT supposed to go into my introduction.. doh!

I'm new and slightly confused.. I was ready to go to my doctor and beg for a hystectomy to relieve the daily pains I experience due to endometriosis.. but, reading up on it, I realised it's not always such a good option.. So, she has given me some options.. 1. Toradol for pain.. sure that *might* get me through the rough days, but I've never taken it and I'm not sure I want to start.. 2. Lupron - Not sure if I want to experience menopause just yet.. 3. Mirena Coil..

I have some options there, and I think I'm leaning towards the Mirena Coil, but I'd like some opinions from others who have been through a situation like mine..

I wonder if I shouldn't ask about the removal of what is already there before taking on anything at all, firstly..

Anyone have any experience or opinions.. Much appreciated!

Thanks,
Shar
I have Adenomyosis and was on the pill. My dr convinced me to have the Mirena put in and said it might help me. It was the worst thing I could have doneI had heavy bleeding and discomfort for the first months non-stop. I had weight gain, and I developed very large cyst on my ovaries that were extremely painful. I could not sit, lay on my left side, and I continued to bleed. By month 2 and after several trips back to the drs I had a really swollen abdomen. I looked like I was 4 months pregnant, no lie. I had an ultrasound and found out that the mirena moved and was lodged into my endo cervical canal. I had to have it removed immediately. Felt great after for about 3 days and then started bleeding uncontrollably. I have been suffering ever since. And still getting the cysts. I would look further into the Mirena before make any decisions. Good luck to you
  #6  
Unread 11-03-2011, 06:54 AM
Re: Mirena Coil.. experiences? opinions?

Hi

Welcome. This is my experience with Mirena.

I had the Mirena inserted in 2007. Actually my Dr tried to insert it and couldn't so ended up inserting in via surgery. The bells should of started ringing then, but didn't unfortunately.

I ended up in emergency surgery a few days later after experiencing severe abdo pains, worse then I have ever experienced with endo. It was removed and found that it had was hitting a wall causing contraction like pains.

Still, you would think the bells would of started ringing, but no.

I went back and had another one inserted, via surgery again. Finally success. For 5 months, I was pain free, period free and feeling the best I had felt in decades.

Unfortunately that didn't last. I ended up in a depressive state with extreme anxiety. I could barely get out of bed let alone leave the house. I actually didn't even think twice about the Mirena causing these issues. I thought it was post traumatic stress from a bad pregnancy and birth with my son which was followed by more surgery and hospital visit due to retained products.

It was only by chance that I was talking with a friend who was a pharmecutical representative for the company who manufactured Mirena. She in fact used to go around to Drs getting them to use it for their patients. She thought after so long "selling" it to Drs that she would try it for herself. Within a couple of months, she also ended up suffering depression and was put on medication. Lucky for her the bells did ring and she got it removed. Within a couple of months, she was back to normal.

I decided to do quite a lot of research and was VERY VERY surprised or more shocked at what I discovered about Mirena. Around this time I also started bleeding non stop and finally went back to my Dr and demanded it be removed. Surprise surprise, he couldn't remove it in his rooms, so I had to have surgery to get it removed. What was even more of a surprise was it was discovered that my endo had become so aggressive while I had the Mirena in, that I ended up having more surgery to excise the endo, a pelvis full of chocolate cysts and adhesions removed along with a hysterectomy.

Within a couple of months following surgery it was like the cloud had lifted. My depression had basically disappeared. My Dr said, although he hadn't seen it often, he certainly had patients who had plummeted into this same depressive state.

I clearly can only talk about my experience with Mirena, but I would never recommend it to anyone, not even my worst enemy. It ruined my life, but not only mine, my whole family and friends who felt useless as there was nothing they could do to help me.

Now, fast forward to today, I am nearly 2 years post hysterectomy and I am still having pain issues as a result of adhesions and ovarian cysts, but I am pleased to say at least my endo hasn't returned.

My only advice is do your research if considering the Mirena. I have never tolerated any synthetic hormone and I guess Mirena was no different.

Wishing you the best of luck in making your decision.

Take care
  #7  
Unread 11-03-2011, 08:11 AM
Re: Mirena Coil.. experiences? opinions?

Hello I had severe endometriosis and my dr had me start on the lupron shot 2 years ago, it was the BEST thing I could have done! The menopause symptoms where not bad as they put me on nornethidrine (sp?) To counteract then and I felt like a normal person for the first time ever! No pain no bleeding...awesome! I then after a year and a half decided to have a full hyst including my ovaries, again, best thing I have done! I love life and I have no pain to think of and I can function normally now. The benifits for me far outweighed the risks, and it is different for everyone. So look into the lupron shot, it might just be worth it!

Mel
  #8  
Unread 09-15-2013, 06:05 AM
Re: Mirena Coil.. experiences? opinions?

Wow. I had no idea the Mirena could be so awful. Personally I tried it twice. First time for about 1 yr then replaced in in surgery following endo excision. Then after another year we removed in my next endo operation as it clearly wasn't helping at all. But I was glad I gave it a go. I had no real negative experiences with it. Apart from annoying spotting... It just didn't help the endo. Good luck with your decision.
  #9  
Unread 09-15-2013, 09:01 AM
Re: Mirena Coil.. experiences? opinions?

I have had 2 experiences with the mirena. First one was after the birth of my daughter. Insertion was easy, had it for almost a year. I only had it removed to get pregnant again. Only downside was DH would get poked with the strings sometimes.

Fast forward 10 years. I had one places this past march. For heavy bleeding and pain. Insertion was horrible, the pain after was worse.doc said to expect increased bleeding and cramping for 3 to 4 months. I wanted to cry,infact I did in my car. isnt that why i had it placed to help with this?! i went back at 3 days to have it checked, everything was ok according to the doc. I left it in for one month, then had it removed.

I then was told he wouldn't do anything else but put me on a progesterone bcp. I was do upset. My pain at this point had sky rocketed.

I went to a new gyn who was surprised he even suggested the mirena. She said its pretty clear there is some type of scaring going on in there. I am so happy to have found her. I have surgery scheduled for 9-30 I'm very nervous but anxious to get some relief!
  #10  
Unread 09-16-2013, 03:11 PM
Re: Mirena Coil.. experiences? opinions?

Is depo provera not an option? I ask because I just went through a similar debate myself over whether to get the mirena or depo provera (I decided against lupron only because I worried I wouldn't come out of menopause if I tried it and I haven't had a baby yet and would like that chance though my age is against me: upper 30's). I just got a depo provera shot today. Not sure how it is going to work but hope it will help since BCPs did nothing after about 4 months.
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