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Those who've ALWAYS had bad periods, lots of clots, long lasting, etc Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

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  #1  
Unread 10-31-2011, 03:40 PM
Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

What was your final diagnosis - either pre-surgery, or post-biopsy? I've had miserable cycles since day one. Even as a 12 year old, thought quarter-sized and larger clots and 14-day periods were normal. My dr suspects adeno, but of course won't be confirmed until biopsy. Just wondering if anyone else has always battled AF-from-Hades, and if so, what your dx was.
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  #2  
Unread 10-31-2011, 06:25 PM
Re: Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

Hi,

From day 1 (thirty-three years ago), I have had heavy, clot-filled, long lasting periods, horrendous back pain into the backs of my thighs, slept on towels, etc. My two pregnancies were welcomed! Thought it was something I just "had to put up with". Two years ago things got a lot worse. I'm 47 with a strong family history of ovarian cancer, so after discussing with my GP and OB/GYN, opted for a vaginal hysterectomy with BSO. I'm almost 4 weeks post-op and recovering well. However - my pathology came back as adenomyosis, so chances are, your doc's suspicions are correct.

Good luck. I'm glad I decided for definitive treatment rather than the band-aid D&C or ablation.
  #3  
Unread 10-31-2011, 06:29 PM
Re: Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

From the beginning until perimenopause, I had cycles that started every 20-21 days and lasted 14 days each, meaning I had only one week out of every three where I wasn't bleeding. They were extremely heavy for at least a week of the 14 days every month and very painful.

In my 40s I went on depo Provera for a few years (in hindsight, I don't recommend doing this) and had no periods for those few years plus one afterwards, and when they did return they were lighter and easier to deal with but that could have been age-related.

I had my surgery for prolapse in the end. Pathology came back absolutely fine.

s,
-Linda
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  #4  
Unread 10-31-2011, 06:30 PM
Re: Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

I had no problems with bad periods or clots until after my 2nd son was born... then it was BAD, like you said. long bleed times, horrible clotting, cramping that made it difficult to walk, I would go through a super-plus tampon and pad in under an hour, had to call in sick to work, etc. Every month the symptoms seemed to get worse for 4 years. I had a dvH 2 weeks ago, and already feel better. biopsy not back yet, but I had endo, and one ovary was wrapped backwards & stuck to the uterus, which he suspects caused a lot of my pain. So if it is not adeno, it could be something "structural" too.
  #5  
Unread 10-31-2011, 06:34 PM
Re: Those who've ALWAYS had bad periods, lots of clots, long lasting, etc

For the better part of 10 years I had a cycle that was every 21/25 days, heavy bleeding, clots, cramps, back pain etc... After my hysterectomy, pathology showed adeno.
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