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Surgery scheduled for Dec 12th, still trying to decide Surgery scheduled for Dec 12th, still trying to decide

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  #1  
Unread 11-15-2011, 01:09 PM
Surgery scheduled for Dec 12th, still trying to decide

I recently saw a gynecological oncologist for a 2nd opinion due to an elevated CA125. He recommended a complete hysterectomy which I have scheduled for December.

I am Factor V Leiden positive so I cannot take HRT. My OB/GYN and Endo are recommending keeping one ovary so that I don't go into immediate estrogen deficiency and have menopause symptoms. they're also very concerned about possible cardiovascular problems and osteoporosis.

I am 42 and am really struggling to make this decision.

I have a lot of pain and have been struggling with recurrent ovarian cysts and PID for years. However, other than an elevated CA125 which the OB/GYN and the gyn oncologist do not seem to be too concerned with (although it's a big concern to me), there is not urgency in this decision, just daily pain to deal with...and limited sex.

Some friends have had hysterectomies themselves and are confident that it will alleviate my pain. However, I'm concerned that I may be setting myself up for more problems down the road (such as cardiovascular disease, osteoporosis, mood swings, depression, weight gain, etc.) which may be worse than the pain I'm in now. Not sure if the risk of those results would be worth the potential pain relief.

I had one doctor suggest doing a course of Lupron to see if that provided any pain relief.

Can anyone provide some of their thoughts or guidance on this issue? Thanks in advance for your help.
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  #2  
Unread 11-15-2011, 02:26 PM
Re: Surgery scheduled for Dec 12th, still trying to decide

Dont fret you seem to be upset with future things that no one knows or has control of. HUGS HUGS N MORE HUGS!!! you shouldnt have to live in pain. Its your quailty of life you should be excited and look forward to getting it back!!
  #3  
Unread 11-15-2011, 09:03 PM
Re: Surgery scheduled for Dec 12th, still trying to decide

From what I understand, an elevated CA125 can occur with benign tissues releasing the protein the test keys on. It does not necessarily indicate cancer. I had a normal CA125 with an ovarian cyst, but had another screening test that was elevated. I had a TAH BSO, and my cyst and fibroids tested in the OR came back benign.

You need to make the decision that is right for you - so take time to make the decision. It sounds from your post that you have time to way the pros and cons. Talk to your doctor more about your concerns. Good luck to you.

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