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First time here and curious First time here and curious

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  #1  
Unread 12-24-2001, 06:17 AM
First time here and curious

Hi everyone. My name is Brenda and my TAH/BSO is scheduled for 1/7/02.....anxiously waiting it's been a long time coming. I have an enlarged uterus (about 12-13 week size) with 1 semi large firbroid on the out upper side and after last ultrasound, about a week or so ago, they found many more and diagnosed them as progressive fibroids. They also found a 4+cm cyst on the right ovary and the one that was on the left one during my ultrasound in July was gone. That explains the excruciating pain that woke me up in the middle of the night a couple weeks ago. I have also been on HRT for the last 1 1/2 years which was intended to control the bleeding..not! Yes, I'm menopausal at 41. Since July constant bleeding and pain has been increasing, almost intolerable at times and there is nothing more medically that can be done; and I'm okay with the surgery. My husband & I don't have any children and have no plans to. I have a history of adhesions, and lots of them and I'm wondering if anyone else has had a similar experience. I suspect these fibroids are attached to the intestines, etc. as my Dr. wants to get in there to take a look and due to previous ovarian problems (no cancer just cysts) doesn't want to leave them in either; which I agree with. One funny thing (depending on your sense of humor) about 1 1/2 ago during a lap looking for endometreosis my OB discovered all the unexplained adhesions, but also discovered I had no left ovary--just a nub! All these years, and all the ultrasounds everyone always thought it was just a small ovary! I also have irritable bowel syndrome so I'm already on meds for that plus I've started taking stool sofeteners to keep the bm's going--too painful otherwise. Sorry for the rambling, but I'm so glad I found this sight and wondering if anyone else has been here?

Thanks, and Merry Christmas to all!
Fiddlerbrenda
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  #2  
Unread 12-24-2001, 06:40 AM
First time here and curious

Hi Brenda,

My TAH/BSO is scheduled for 1/7, too. I'm beginning to feel anxious about it. I'm having it because of repeated bad paps, DES exposure and ovarian cycsts. I once had a cyst that burst and went into peritonitus. That was pretty yucky! Anyway, I wish you all the luck in the world. I'm sure you're going to start feeling alot better once you have recovered.

Jody
  #3  
Unread 12-24-2001, 07:21 AM
First time here and curious

Hi Brenda and welcome to hystersisters. I had fibroid on uterus, cysts on both ovaries AND trouble with cervix...hence my tah/bso. Your story sounds similar.

My surgery and recovery went smooth....had estrogen patch put on the day after surgery but opted to take daily pill once I got home...no major problems with HRT to date and it'll be 2 years in March.

Glad to have you with us. We'll be with you every step of the way.
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  #4  
Unread 12-24-2001, 07:21 AM
First time here and curious

Brenda,
I also had a TAH/BSO Oct.22, 01 and it was the best "gift" for myself ever.. I too had an enlarged uterus, fibroids, adheisons... I can relate too what you mentioned about having Laps done. I saw 3 gyns' and was totally mis-diagnoised. Was told that I had IBS, that also nothing at all was wrong with me. Yes, I'm very thankful for this Hystersister Site too. The communication & friendships that I've developed is so Wonderful. Please join us in chat when you're available, also it's a great place too ask questions & meet friends... Merry Christmas! Welcome...

[email protected]
  #5  
Unread 12-24-2001, 07:29 AM
First time here and curious

Dear Brenda!

Boy do we all have our stories to tell! In addition to reading the message boards, you may want to check out the Ladies In Waiting or Princesses Tell Their Stories in the drop down menus at the bottom of the HS Home Page. Here is a link to the home page:

https://www.hystersisters.com/

Included in the Ladies In Waiting drop down is this list of pre-op questions for your doctor. I also found it helpful to write down questions as I perused the message boards. The link to the questions is:
https://www.hystersisters.com/questions.php

Finally, there are many things we can do to prepare our family, our home and ourselves for our upcoming surgery. This list is ideas on things we may need for the hospital:
https://www.hystersisters.com/list.php

I found that doctors are pretty good at giving us the clinical view of what to expect, but generally leave out the emotional needs we have at this time. I continue to visit Hyster Sisters as I recover for much needed support. I hope you find this is so, for you as well. You ladies are incredible in giving to your sisters!

I wish you well in your journey and here's hoping for a You, that feels well and happy! Happy Holidays to you also and big s!
  #6  
Unread 12-24-2001, 08:01 AM
First time here and curious

Jody,

Thank you for sharing your thoughts and "soon to be eliminated problems" with me. I know I can't wait to start feeling better and I'm sure you probably feel the same way. I wish you all the best with your surgery and God's speed in the recovery process. I'll be talking to you.

Brenda
  #7  
Unread 12-24-2001, 08:15 AM
First time here and curious

Thank you! I'm glad I registered; it's quite a comfort to know there are other women out there with similar circumstances. I was so excited to find this I think I've been through just about everything I could access without being a member. That's what made me decide to register.......I wanted more.

Thanks for the hugs and have a wonderful Christmas!!!

Brenda

P.S. Thanks for starting such a wonderful site!
  #8  
Unread 12-24-2001, 10:25 AM
First time here and curious

Hi, Brenda!
Just wanted to pop in and add another "welcome!" Your story and mine sound so alike! I'm 42, no kids and had my hyst 10/23. Had gobs of end and adhesions. My right ovary and tube were so stuck that the path report said "hard to distinguish where the ovary ends and tube begins!" What I thought was IBS was just bunches of endo that sorta' stuck everything together. My digestion is so much better now, no bouts of dia and constip - just regular movement! I've even lost 12 pounds! BEST thing I've done for me! Too many years of too much pain and now - I'm good! Life is great! Yippeee!

It's normal to get a bit nervous while waiting, so check back here often and get as much info as you need to feel comfortable with your decision. I didn't have much of a choice, given all my pathology, but I am SOOOOOO glad I did this. Only wish I'd have done it YEARS earlier! Hope you'll find all you need here, too - the ladies are just super - a real blessing!

Take care and let us know how you're doing!

Love,
-di
  #9  
Unread 12-25-2001, 05:08 PM
First time here and curious

I had colon surgery 6 years ago because my colon was twisted and obstructed (cogenital defect). I had both my colon surgeon and 2 gyn surgeons during my hysterectomy this November. Read my story if you want more details (see link below). Good luck.
  #10  
Unread 12-25-2001, 05:44 PM
First time here and curious

Brenda, your story sounds somewhat like mine. I knew I had ovarian cysts and assumed that was the pain that woke me one night in late November and agreed to a 12/11/01 hysterectomy. When my GYN opened me up, she saw what she thought was colon cancer and called in a specialist, who immediately knew I'd had a perforated bowel (that pain two weeks before) and removed 18" of colon along with the uterus, cervix, tubes, and ovaries. All the path reports came back negative.

At two weeks post-op, I feel so good that I can only imagine how wonderful I'll feel a month from now, then two months, etc. I had a wonderful hospital experience (five days) but saw in other posts that you have to speak up loudly if you're not having a wonderful experience.

Stay positive and I think you'll have half of it whipped going in. And feel free to write if you want! ([email protected])
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