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Overwhelmed and scared Overwhelmed and scared

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Unread 01-02-2012, 08:32 PM
Overwhelmed and scared

Hi! I'm 50 years old and wading through peri-menopause. After a very heavy bout of bleeding, my gynecologist had me get a sonogram, and then a pelvic MRI. What they thought from the sonogram were fibroids in my uterus, looked suspicious in the MRI. There's an "atypical mass" in my uterus, and my gyn wants to remove my uterus immediately.

I'm dealing with the double-whammy of hysterectomy *and* a possible sarcoma/cancer. Yes, it could (and I'm working on believing that it WILL) be benign, but I am still scared.

I read that hysterectomies have lead-time and 2nd opinions, but my gyn doc wants to GO-GO-GO. I'm uncomfortable with that, and am not sure if I should see an oncologist gyn?

I have more questions than could ever fit in a single post, and some of the articles I'm reading here overwhelm me more. I don't know where to begin...
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Unread 01-02-2012, 08:58 PM
Re: Overwhelmed and scared

It's overwhelming facing this surgery. I had my surgery for several reasons, one of which was possible cervical cancer. I think a second opinion is a good idea. You don want to be rushed into surgery until you understand any and all options. You also dont want to wait too long either. And a GYN oncologist is a good idea too. Take a look at the tab "give me a second" on this website, maybe that will help. Please post all your questions, we are here for you and we understand what you're going through.
Unread 01-02-2012, 09:16 PM
Re: Overwhelmed and scared

Thanks so much, sugarandspice.

I think what's got me most overwhelmed is that the 'mass' in my uterus is already 10cm x 7cm x 8cm (and it grew quickly within the past year), so my gynecologist wants to remove my uterus immediately. I'm torn between taking the time to know everything about hysterectomy, and getting the mass out NOW. Do I have time to look for an oncologist gyn doc? Should I?
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Unread 01-02-2012, 09:56 PM
Re: Overwhelmed and scared

I agree with sugarandspice for a gyn onc surgeon to look at you. I also had a go-go-go type surgery with an ovarian cyst that grew very fast. The first gyn surgeon my GP sent me to would not even touch me and sent me right away to a gyn onc surgeon. My cyst turned out to be benign, but I was glad to have that specialty doing the surgery. He was more experienced at handling the larger masses, and if it did turn out to be cancerous, he was very qualified to explore further to see the extent.

Good luck to you. I do know how you feel.

Super gentle cyber ((((hugs)))....
Unread 01-02-2012, 10:07 PM
Re: Overwhelmed and scared

Hi there, I remember feeling scared and overwhelmed as well. I had somewhat of a "scare" but after a second opinion, and then a third, it was determined that there was a transcription error on a report and the situation became much less scary. ALWAYS ALWAYS ALWAYS go with your gut feeling, and it sounds like you want a second opinion. I say ABSOLUTELY. On another note . .. . . everyone always said that having a hysterectomy was the best thing that ever happened to them . . . . Eight months post op, I can tell you they were right. Hang in there, and remember that YOU are the most invested in your health. You are in charge here, not the doctor who wants to GO GO GO.
Take care.
Unread 01-08-2012, 08:10 PM
Re: Overwhelmed and scared

I did get a second opinion, from the senior gynocologist (30 years of experience) in the practice. I trust her, as she's actually my personal doc but she'd been out of town when everything happened so quickly.

The senior doc essentially agreed with the diagnosis of the junior practitioner, but without the "GO GO GO" and the fear. I felt much calmer after speaking with her. She said that I likely have a large fibroid (yes, it grew over the past year so it is a bit suspicious), but it is likely benign - especially since the pelvic MRI showed nothing unusual anywhere besides that area. She did urge me to have my uterus removed, however. Both to remove this growth (which takes up much of my uterus), and because it is causing my abnormally heavy bleeding. There's no telling when I would actually stop having periods, and leaving things as they are would be much worse for me. I agree with her, on all counts.

I've been wondering about ovary removal. I asked the senior doc, and she said I would get all kinds of opinions from different sources. She said that since I've had no problems with them, she suggested I keep them. However, both docs recommend removing my cervix because it is the 'bottom' of the uterus.

I am currently waiting for a surgery date. Surgery will be done by the junior doctor, who's up to date with the latest surgical techniques and is very good (the senior doc no longer performs surgeries). I am encouraged that the junior doc is arranging to have a senior oncology gynocology doc 'assist' during the surgery, so that he can be there to see if ANYthing looks suspicious. My doc seems very thorough.

My remaining question at the moment is.... WHY do they want to remove my cervix? What are the pros and cons?
Unread 01-08-2012, 10:56 PM
Re: Overwhelmed and scared

The cervix is the neck of the uterus, and some doc like to have it removed and some like the patient to keep it. It is also dependent on why you are having the surgery. You can also have mini periods if you keep your cervix, although the docs try to cauterize the lining so that does not happen. Nothing is a guarantee, because you do not have a dotted line that says cut here on your uterus.

Ask your doctor why she suggests removing your cervix, and the pros and cons health wise with you keeping it.

Unread 01-09-2012, 10:11 AM
Re: Overwhelmed and scared

There is a study pinned to the top of the board. I participated in it and found it very informative regarding whether to keep your ovaries.

I opted to keep my cervix because it wasn't broken. I was also concerned about sexuality since I'm one of those women who like a bit of bumping there. I haven't had any abnormal paps. It looked healthy when they did my surgery. It appears that the cervix is attached to other things and I wanted the least amount of disruption possible.

I let her take my tubes. She asked me while I was getting prepped for surgery. I couldn't think of a reason to not and couldn't research it so I let her do it. I have since found out that cancer sometimes starts in the tubes and they don't seem to serve any purpose once you remove your uterus.

On the down side, keeping your uterus means you need to have paps and you have the possibility of mini periods.
Unread 01-13-2012, 07:47 PM
Re: Overwhelmed and scared

I was finally given a surgery date. After all the scary GO GO GO from my original doctor, who said we needed to get the surgery done right way, the earliest they could put me on the schedule is February 23.

So now I have another month and a half to wait for my hysterectomy. I guess the "good news" part of this is that they can't be TOO worried about the fibroid/growth, because they sure didn't rush to get my uterus chopped out like next week.
Unread 01-13-2012, 08:37 PM
Re: Overwhelmed and scared

I too had a mass on my ovary and my obgyn of 20 years sent me to a cancer specialist immediately my surgery was scheduled by the specialist within an hour of seeing me. Talk about scared my Husband and I were petrified - fast forward surgery was a breeze everything was benign they even found a dermoid cyst just roaming around inside me that neither doctor knew I had - bottom line do not panic !!! I did and it turns out I worked myself into a frenzy for nothing I did not even need pain pills keep positive - you are going to be fine .

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