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Would like to keep cervix - hoping to hear success or failure stories from post ops Would like to keep cervix - hoping to hear success or failure stories from post ops

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Unread 01-09-2012, 09:58 AM
Would like to keep cervix - hoping to hear success or other stories

I am set to currently get s supracervical hyst in a couple weeks. Due to mild/moderate endo and horrendous and constant bleeding and cramping.

My doc says I can leave my cervix if I want. Have had no history of abnormal paps. She likes to take crevices out as she says it is an easier surgery for her - but has left many in and will do what I wish.

That said there is a chance I could lose it anyway based on what she finds when she gets in there. Am supposed to get it done laparoscopically.

Can anyone who left their cervix in tell me the good and the bad? Have lots of people had problems with the monthly bleeding? If I bleed some - won't ruin my life - but will it be like a regular period?

How about anyone that had it out? Have read prolapse doesn't seem to statistically be an issue with taking it out, but interested to hear success or not so good stories of having it out too. Especially from folks that are a long way post op so they really know how they are functioning on a regular basis.

Seems everyone has a different opinion, which makes the decision hard. My gut says leave it - but am a little scared of possible complications. But not sure if that is just a lot of Dr.s using scare tactics vs. reality. I know there are and can be complications with taking it out too- so I feel like I can't win!

Just really scared and nervous and would appreciate input. I have scoured tons of other threads on the topic but seems a lot are opinions - I would love to see more actual outcomes after the operation - good or bad. Thanks!
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Unread 01-09-2012, 08:42 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

Like you I had no abnormal paps and even though I had no choice about abdominal surgery, I wanted the least amount of work done inside me so I chose to keep my cervix. For me, it was a good choice. I have had no mini-periods, sex feels the same and I didn't have to deal with a healing vaginal cuff. I realize that there is a risk down the line where I might need to have my cervix removed but for me so far, it has been a good thing in keeping it. My recovery went very well and I was one of the lucky ones to have no pain except for pulling from the incision when I moved beginning at one day post-op. No idea of the day of surgery as I was totally out of it for the evening. I think that keeping my cervix helped making me pain-free as there was less work done.

I know that other ladies will share their experiences both good and bad. You might also want to do a search for "Keep cervix or not". I hope that with these stories, you will make an informed decision that is right for you.

Good luck with your surgery and recovery.
Unread 01-09-2012, 09:03 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

Thank you for the reply! Glad to hear your went well. I am getting a RObitic assisted surgery - so hoping everything will be minimal!

Like I said - it is nice to hear a success story - but I know all our stories will be unique! My sister had her cervix left in and had much worse Endo than me and knok on wood she is 3 years post op. But I know my case could end up differing from hers too. My gut says leave it, but am also so nervous if things don't go right about another surgery. My concerns if I have to get my cervix out that my vaginal cuff may not heal well as I tore with my delivery of my kiddo and it never healed right. I had to go through several rounds of silver nitrate to get it to heal. I know a vaginal cuff is different, but in my mind still the same type of tissue to heal, so it worries me. I guess I will keep fingers crossed and pray I will be in the good side statistically! I have read through TONs of other posts on the topic - but still confused. thanks again for your reply! Hope to see more
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Unread 01-09-2012, 09:17 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

I chose to have my cervix out. I have had no abnormal paps or history of cervical cancer. I did not want to have even the smallest potential of cancer nor did I want to have mini perioids. My
only concern was the affect it's removal might have on my sex life. I had a da Vinci and my recovery has been relatively smooth - I am only 12 weeks out, but I have no regrets having everything out. I'm on HRT and sex has been great! My orgasms are still very strong and easier to come by. I think you are doing the exact right thing in researching your options. Any choice you make will be right for you since you are being so thorough. Good luck and happy recovery : )
Unread 01-10-2012, 07:59 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

I had an SAH and kept my cervix. I knew I would still need annual exams and would have the potential for mini-periods. I still have the potential for cervical cancer, but decided I could get the cervix removed later if it became a problem. I didn't to go through the vaginal cuff healng or have a shortened vaginal canal. There are arguments for both sides and it really depends on what medical problems you are facing and which arguments are most important to your needs and life. Best wishes whichever decision you make!
Unread 01-10-2012, 10:11 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

Originally I was going to have my cervix removed, but this site opened my mind to options. I then discussed keeping my cervix with my DR who agreed it made sense, "why remove something that is still healthy"? She added that cervical cancer is easily detected with yearly pap smears and that I would have a somewhat easier recovery by keeping it.

I kept my cervix and am 100% happy with my decision. If you haven't already, search previous posts on keeping/not keeping cervix. Gather info, then talk to your DR.

Good luck in making your decision!
Unread 01-10-2012, 11:02 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

Thanks everyone! This is such a huge and difficult decision. I think I have now researched too much and am freaking out and so scared about surgery. I guess it is normal - but still there. I have just under 2 weeks till surgery.

I have some endo and horrendous periods. Bleed 2-3 weeks a month when not on BCPs and even on BCPs periods are so painful and hurts to urinate or have bowel movements when on my period. I know the endo is probably contributing to it. I have seen a couple docs and both gave me the same opinions. So I guess the surgery is for the best. Just wish it wasn't so scary. When do you stop freaking out? I guess not till after?

I know leaving the cervix in puts me at an endo risk - but my gut seems to be leaning that way. But at the same time I don't want to get a second surgery - but then the vaginal cuff healing nightmares have me super scared. Especially since I tore badly when I delivered my kiddo and I couldn't heal on my own without silver nitrate. So makes me worry I would have similar problems with a cuff. I will discuss it all with my doc and hope for the best!
Unread 01-12-2012, 11:29 AM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

I had trouble with constant bleeding (20 years), so the cervix had to go.

Don't miss it, have no idea what I would do with it if I had it.. lol!

No cuff issues, really no issues at all now..
Unread 01-12-2012, 02:52 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

I'm 6 weeks post-op and I kept my cervix. It was healthy and my surgeon was an endometriosis specialist so I was comfortable with his skill level. I felt there was no good reason to take out an organ if it was healthy and liked the additional support the cervix offers internally. My hysterectomy was for adenomyosis and I have had absolutely no bleeding since two days post-op. I really don't look forward to my annual appointments but I felt there were a lot of good reasons to hang on to my cervix. Good luck!
Unread 01-12-2012, 03:02 PM
Re: Would like to keep cervix - hoping to hear success or failure stories from post o

my cervix was severely scarred and small and disappearing?? I guess due to scarring etc. I didn't have the option once they saw the condition of it. I am only 2 weeks post op and so do not know what to expect here on out..but I am glad it is done and over..LOL

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