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I think I'm making the right choice... I think I'm making the right choice...

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  #1  
Unread 02-03-2012, 08:53 AM
I think I'm making the right choice...

  Quote:
Originally Posted by JWaltersRN View Post
So I don't have all of the "big" issues a lot of the princesses have. No cancer or threat to life. I have had severe pain and bleeding since my first child was about 3. Even after my ablation in Aug 2011, i still have bleeding and pain 2-3 days per week! Pelvic muscle spasms have caused such severe constipation for so long that my bowel has stretched to 4times normal width, and I'm dependent on huge amounts of colace as well as daily liquid glycerine suppositories for a BM. Fun stuff! Also, the muscles pull my tailbone out of position enough to cause sciatica pain down both legs so bad I often cannot get out of bed for days.
In addition, there is a lot of pain with sex and for days afterward, sexual dysfunction is not descriptive enough. My DH asked my MD if I could be allergic to his semen, because the bleeding and cervicitis follow intercourse was unbelievable.
I'm sharing this because these symptoms were always ignored by my doctors. The rationalized the back pain as being due to a car accident 13 years ago, told me that my pelvic pain was because of bowel distentition and the only reason sex was painful was because of retroverted uterus.
I finally begged an appt with a pelvic pain specialist, and he finally explained that all my symtptoms were caused by the uterus, irritating the muscles, causing severe spasms, and messing everything up!
I started on Valium-baclofen vaginal suppositories to relax the muscles and I must say, this is the first time in 3 years I have been able to stand upright or sit for longer than 30 minutes without wanting to die!
The moral of this, admittedly long, post is that you must tell them everything, and keep looking until you get a doctor to hear you! My Gyn was convinced it was a GI problem, my GI was convinced it was neurological, Neuro was convinced it was GYN... I'm a nurse and case manager and I know how this system works and it still took 5 years to get a real evaluation of ALL of my symptoms and determine the real problem!
Now, I'm just scared of the recovery, caring for my 8, 2 & 7 month old, and I'm worried about vaginal numbness or inability to feel/enjoy sex ever again...any help?
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  #2  
Unread 02-03-2012, 09:29 AM
Re: I think I'm making the right choice...

With all the pain you've been through, I would think it would be a huge help with quality of life. Recovery really isn't that bad. How heavy is your 7 month old? That might be a concern with lifting, other than that recovery is usually quite a bit easier considering all the pain that was causing the problems in the first place is gone.
  #3  
Unread 02-03-2012, 09:32 AM
Re: I think I'm making the right choice...

He's about 18 pounds, my 2 year old is 27 and quite the snuggler!
How long is it until you can pick them up or hold them again? We have a Disney trip planned for the first week of August, I'm worried my daughters birthday trip will have to be cancelled, any thoughts on the traveling after surgery and how long until you can walk around all day?
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  #4  
Unread 02-03-2012, 09:54 AM
Re: I think I'm making the right choice...

JWaltersRN,
I think with all you've been through that this may be a walk in the park for you. Everyone's recovery is different, but you've already experienced so much pain that I don't think the hysterectomy recovery will compare. Finding the cause of the problem is likely a huge load off right there - that seems to have been the difficult part. That having been said, of course you should follow the doctor's instructions to the letter and you'll likely be able to do all the things you want in about 6 to 8weeks.

Allow people to help...friends, family - take support where you can so that you can be there for those family trips. If you get the rest you need, your body will heal itself. Be good to yourself.
  #5  
Unread 02-03-2012, 12:25 PM
Re: I think I'm making the right choice...

Got my surgery scheduled, March 15th it is... Kinda freaking out. I think the anticipation will be worse. Trying to be positive about it, but really worried how I'll feel afterwards. Going to have my cry now, get it out of the way and then focus on getting my life organized so It can run without me for awhile...
  #6  
Unread 02-03-2012, 12:41 PM
Re: I think I'm making the right choice...

i cried too. i think that's normal. even though i thought things would be okay, i still cried - not even sure why. i felt alone, even though im not and then a few seconds later, i started to encourage myself and i was back on track. i know everyone's story is different, but be encouraged that we all came out the other side of surgery with a story to share - some recoveries are faster, some slower....most are surpisingly great and that's the amazing part.

we're ladies...we feel...we have emotions and that doesnt change with the surgery. we're still awesome ladies. i wish you happiness and healing.
keep asking questions - we're here for you.
  #7  
Unread 02-03-2012, 12:44 PM
Re: I think I'm making the right choice...

Line up as much help as you can with the kids, because you don't want to overdo it after your surgery. I went in for LAVH but they ended up doing it vaginally and I felt better two days after the surgery than I had felt in MONTHS! I am not kidding! Now I am 5 weeks post and I have more energy than I have had in a year and a half. I had no idea my uterus was making me so miserable! Your recovery will be a challenge with your little ones, but the weeks will go by and your life will will be so much better!! Don't hesitate! Concentrate on the rewards, and get as much help with the kids as possible. Good luck!
  #8  
Unread 02-04-2012, 11:49 AM
Re: I think I'm making the right choice...

Thank you everyone for your optimistic replies! I really, really appreciate it, ESP today. I lined up the child are so I'm pretty much covered there for the 4 weeks following surgery.
I have to admit, I am very weepy today. Even tho the hubs is being very supportive, and our family is rallying to step in and help with recovery, I am very distressed about not being able to hold my son for almost a month! He is my last baby, for sure now! And to know that by the time I am recovered enough to pick him up and hold him he will be almost a year makes me so sad! To miss even a moment of his squishy babiness is awful!
I also made a very bad decision, since I'm a nurse and I usually enjoy procedural education (I actually requested, and was granted, permission to watch my husbands last surgical procedure) I thought forewarned was forearmed so I accessed actual procedural footage of the LAVH... Bad idea! Watching that, knowing exactly what happens, and anticipating the part when I have to wheeled off is overwhelming! I much prefer being the nurse to being the patient! While I am a very compassionate nurse, I am a terrible patient. It's easy to be confident and reassuring for someone else, but why do I feel like I'm going to be the 1% where everything goes wrong?
Even avoiding the horror story posts doesn't help, because I ave the first hand knowledge of all surgical risks and outcomes...can't hide from experience!
My surgery isn't for 6 more weeks, and I'm wishing I could start chewing the Valium now! I'm so anxious! Maybe I just need to have a good cry, get it out if my system, but I feel like such a big baby!
  #9  
Unread 02-04-2012, 12:27 PM
Re: I think I'm making the right choice...

I was super anxious too and nurses at the pre-op visit and at the hospital kept asking me if I didn't have some high blood pressure medication! Think about how nice it will be to nap with your toddler in your arms. That might help a little. Hope the next few weeks go by quickly for you.
  #10  
Unread 02-04-2012, 09:01 PM
Re: I think I'm making the right choice...

I understand completely how you feel! I have a 4 yr old who has a birthday @ the end of this month & my TAH/BSO has been schedule for Feb 14th so we are not going to get to do his party. Planning to in April. We have an 18 month old & they told me I could not lift anything for 6 weeks and should not bend over & do things for time period as well. I have a mass in my abdominal muscle that they are also having to remove & repair. It totally stinks! & I hate that I don't feel much like doing anything before hand. I see all the posts abt ppl cleaning house etc & mine has been a wreck forever & I know it wont be any better until I recover.

btw there are two ppl operating & the ob/gyn said I could pick her up in abt 2 to 3 weeks as far as his part goes but had to ask the general doing the muscle part & he said no. so maybe you wont have to wait as long )
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