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Diagnosis - Uterine Cancer Diagnosis - Uterine Cancer

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Unread 01-02-2002, 08:33 PM
Diagnosis - Uterine Cancer

Hi and welcome!
I hope to put your mind at ease a bit. I know the devastation, horror and anxiety that you feel.
I had stage 2B, grade 2 uterine cancer. Uterine cancer has 3 grades that I know of, grade 1 is the least aggressive and stage 1 is its earlist stage. Grade 2 is a little more aggressive and grade 3 is the scariest. There are 4 stages. From what you are saying it seems that you will be completely cured with the hyster and shoud have an excellent prognosis. Please feel free to email me at anytime. This is what I have learned since my diagnosis, but you should always talk with your doctor for clarification. My prayers are with you. Be strong and be positive!
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Unread 01-03-2002, 05:10 AM
Diagnosis - Uterine Cancer

Please get in touch with your doctor and find out exactly what the tests read and what he feels would be the next step. We can all take guesses as to what the dr is going to do, but you really do need to know for sure so that you can prepare yourself for the next step, if there is one. Please don't let your imagination run wild! Call the doctor first and see what he/she has to say. Please keep in touch!
Unread 01-03-2002, 12:23 PM
Uterine Cancer

I too was not a candidate for Uterine Cancer and was diagnosed after my yearly exam. I had a radical hysterectomy in July in which they removed everything including the surrounding lymph nodes. I was staged at 1B and am happy to report that the pathology report on the "nodes" were negative and I did not require any chemo or radiation. I have doctors apppointments every 2 months. The last was a couple of weeks ago in which my doctor did a pap and the results were normal. My understanding is that once they remove everything the chance of the "C" coming back are pretty slim. I understand all of that but every time I go to the doctor I still worry. My doctor didnt think I had cancer and I did. Did you have your ovaries removed??? If you have any questions I will try to answer.
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Unread 01-03-2002, 08:48 PM
Diagnosis - Uterine Cancer

Hi there,

With some of these ladies saying they are not allowed to have estrogen I would ask my doc why he wants to do what he wants to do and get gyn/onc 2nd opinion if necessary. I always ask my doctors why they make the decisions they do and they are pretty cooperative in telling me.

(of course a DVM degree may have something to do with it ...)
Unread 01-04-2002, 04:57 PM
Diagnosis - Uterine Cancer

I just got diagnosed with Stage 1A cervical cancer. Your post caught my eye because I too live in Manhattan. Please email me. I have found two great gynecological oncologists that it might be good to go to for a second opinion.

My email is [email protected]

Unread 01-04-2002, 11:26 PM
Hugs for you Jacqui!!!

Hi Jacqui: I just wanted to tell you I too had uterine cancer early stage. I am approaching two year post this April! So you can do it too!!

I also had a-typia cells with benign hyperplasia for a couple of years prior to my hysterectomy. I had several biopsies before my diagnosis and (very minimal spotting once in awhile -early into my menopause-- until that March of 2000 I had bright color and rest is history.... I had a conservative first GYN and changed Dr.s. Mine was estrogen fed as well they said. I take no HRT currently and so far I am doing very well.. any hot flashes are minimable (so far so good). I was required to have a Pap test every three months then every six months--so far so good on this part. Actually just had my last pap a few weeks ago and just got the results today which are fine. (thank goodness) .

My best advice is to have close communication with your two specialists (Gyn and Oncologist). I had "brain fog" early on in my diagnosis" thank goodness my DH went with me in those early Dr. appointments (before surg) to help me digest and understand everything once I got back home... as in "what did he say again"? They are the professionals and as hard as it was for me to ask questions --I surely DID...notes and all...

Just remember it is so early still for you and I can't emphasize enough how it pays off down the road to rest and build back your strength slowly but steadily.. The added support on this site was such a comfort for me as I didn't find it until I was 3 mo post...so I still pop in now and then... Just want to send you a BIG {{{HUG}}} and hope each day you will feel better than the last... I just remember it getting better each day some days slower than others till it becomes a faded memory.. So we do share in our reasons for our hysts!! You will feel better cause I am cheering for you!! Carole
Unread 01-06-2002, 09:18 AM
Diagnosis - Uterine Cancer

I'm scheduled for an endo-biopsy Jan 24 to rule out hyperplasia and/or endometrial cancer, before the doctor goes on to see if I could have endometriosis. Your post about bright colored blood caught my eye. I sound stupid, maybe, but what color is normal spotting supposed to be? I can't find it in any of my online research. Mine has been bright red--a very pretty color, in fact.
I've heard the endobiopsy is very painful, even though extremely short--like 10 seconds. Is it painful?
Unread 01-06-2002, 10:19 AM
Diagnosis - Uterine Cancer

Annabella - re: the endometrial biopsy. I had two. The first one, I did on no painkillers. It was very short and the pain was quick, but it was bad enough that it exhausted me for days.

The second time, since I knew it was coming, I discussed with a nurse. She suggested taking 3 advil 1 hour prior to the procedure. It made all the difference. The procedure was slightly uncomfortable, but not really painful. Plus, I felt good enough to go to a silent auction fundraising party at my son's school that night (I had been the fundraising chairperson and didn't want to miss it.)
Unread 01-06-2002, 11:14 AM
Diagnosis - Uterine Cancer

Thank you!!
Unread 01-07-2002, 01:32 PM
Diagnosis - Uterine Cancer

Had to reply, because the phrase "normal spotting" sounded funny to me. Actually it is an oxymoron, because there is no such thing as normal spotting ... unless maybe you are on the pill or something.

I started a thread asking sisters who had been diagnosed with enodmetrial cancer to tell their symptoms, and the answers ranged from spotting every color from red to black to heavy bleeding to, in one case, no bleeding at all!! So I do not think quality or quantity of spotting is reliable as a diagnostic indicator, sad to say. I have this weird light tan discharge one week out of the month besides my regular period which is quite copious at times, and haven't found anyone on this board with that symptom.

I have heard from ladies who said that their endo biopsies were extremely painful. When I had mine (results: normal! Go fig) it was quite painful, but nothing I couldn't handle. However, I am used to menstrual cramps and back pain bad enough to cause vomiting, so maybe I am just used to that much pain. I remember thinking that if it was going to hurt much more than it did I would have to ask them to stop, but that was as bad as it got. I did also take my customary menstrual-cramp dose of two 220-mg naproxen beforehand, so that may have helped me out some as well. I had mild cramps the rest of that afternoon, but I felt well enough to go see a movie (where I could just SIT, LOL!)

What they don't warn you about is the weird stuff you pass a few days later. If they use a tenaculum on you they use clotting agents, and these make a strange reappearance a few days later. I got this long, ropy stuff that looked like I was passing huge pieces of tissue! If you pass this stuff, don't faint!!


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