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Beginning My Journey Beginning My Journey

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Unread 02-07-2012, 08:01 AM
Beginning My Journey

I went in for a checkup last Wednesday and was told I have the uterus of a 20 week pregnancy. Had been having some lower back pain (taking care of my 11 month old grandson part time) and little bit of incontenance which I attributed to my age (60). Never had anything come up at other check ups. Since then I've had ultrasounds which showed calcified fibroid tumor on uterus and cyst on ovary. Had Cat scan yesterday for the doctor to see if anything else is going on. Doctor has recommended total hysterectomy, robotic, which I'm fine with. Went through menopause over 10 years ago so this has really thrown me. My CA 125 was 9 and while I know that is not a diagnostic tool on its own I am taking some solace in that. My husband and i meet with her tomorrow and will schedule surgery. I'm thankful for this website because I'm really fretting right now, can't sleep (doctor told me not to lose any sleep over this-easy for her to say), can't turn the "what ifs" off. Just want this behind me.
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Unread 02-07-2012, 11:54 AM
Re: Beginning My Journey

Hi llt

I'm sorry to hear you are facing this health issue. I was like you, mind racing and losing focus due to the whirlwind of doctor visits, tests, consultations, and ultimately the news that I'd have to have this major surgery. I wish I knew a good secret to calming nerves and avoiding fret and worry. It did help me to know I was not alone when I discovered this site.

There's so much support from others who have been where you are and are willing to share their experiences. We're all a little different and unique, so no two stories are completely alike, but to me it does still help to know there's that kind of support here for the asking.

Good luck with the meeting tomorrow -- write down all the questions you may have and bring them with you so you don't forget them (like I did), as far as what to expect, how long you'll stay, what you should do prior and after, etc.

Unread 02-07-2012, 12:43 PM
Re: Beginning My Journey

the hardest thing to do is turn off your brain! doing the "what if's" is natural. I do it constantly. i make myself crazy at times. this is a great place to type out those what if's. here you can realize there are others with the same worries and concerns and we can all help each other out with it.

big hugs
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Unread 02-07-2012, 02:14 PM
Re: Beginning My Journey

I understand that, I'm a worrier! I had horrible back pain for 2 years prior to my hyst.. no idea it was related, blamed my mattress! lol Have had no back pain at all since. It's amazing how achy and hurtful carrying around a huge uterus can be! And we don't even notice it as much until its gone, then you will really be able to feel a difference. That's the best part of it all I think. And I can go a WHOLE lot longer in the car without stopping to pee! lol My husband is quite thankful for that. ((Hugs)) It's a hard wait for sure, the only issue I've had since is with depression ( I wanted another child).
Unread 02-07-2012, 02:58 PM
Re: Beginning My Journey

even though we are done having kids, i am still sad about the fact that i cant have anymore. i think thats natural.
Unread 02-07-2012, 06:48 PM
Re: Beginning My Journey

Thank you all for responding. What a blessing it was to see your comments. I do understand how it would be a disappointment to be told you won't be able to have more children. I'm truly sorry for that. My boys are 29 and 34. I have one grandbaby (11 months) and expecting another in May. Of course I'm not looking forward to the surgery but the sooner I can get it behind me (and the not knowing) the sooner I can get back to enjoying being a grandmother (nanny). Also looking forward to better bladder control. My husband will appreciate that too. Just anxious to get results of CAT scan tomorrow, schedule the surgery and get results afterward. Again, your sweet comments made me cry (on such an emotional roller coaster).
I'm making my list of questions right now, thank you. Hugs to all of you!!!!
Unread 02-07-2012, 07:42 PM
Re: Beginning My Journey

I feel the same way. I found out today that I'm having a TAH on March 15th and couldn't believe how sad I felt. My yougest is 17! Still couldn't help crying.
Unread 02-09-2012, 09:23 AM
Re: Beginning My Journey

Just had meeting with OB/GYN today to get results of CT scan. Thought we would be scheduling surgery but she is referring me to a specialist. CT showed no problems with any other organs, as well as no swelling of lymph nodes. My CA125 is 9 (which is good for me, I'm 60 and post menopause). Unfortunately there is a 13 cm complex mass on left ovary that probably has solid and cystic components. Also a 3.3 cyst on right ovary. Uterus is enlarged but she really didn't address that much. Said she consulted her associates and they all believe it is benign but is sending me to specialist for more tests. Also, results of pap smear is normal. I really wanted to get my total hysterectomy scheduled and behind me. My husband was with me and when I dwelled on the one POSSIBLE negative (large cyst on ovary) he said all he heard was positives. She emphasized that they thought it was benign but she just felt better getting the second opinion before surgery. Even though I trust my doctor, I'm thinking I may just have the specialist do the surgery. At least there they could biopsy the cyst during surgery and then do whatever else might be necessary. Any thoughts or advice would be appreciated. I'm not doing well right now.

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